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Member Since 19 Aug 2004
Offline Last Active Oct 17 2009 02:10 PM

Posts I've Made

In Topic: Gluten Free Chinese Food

02 June 2009 - 05:31 AM

Soy sauce for sure but also cross-contamination- are they cooking it in a shared pan? If you get a meat fried rice, is the meat safe? You're brave. Chinese food is one thing I haven't tried yet (except PF Changs- I do Thai).

Let us know how it goes!!!!!!!!!!!

Fried rice is a definite risk. I always get my food steamed with no sauce and add my own at home. Also, I just get plain white rice.. boring.. but safe!

In Topic: Need Chick-fil-a Fries Feedback

02 June 2009 - 05:23 AM

I've read a lot that says Chick-fil-a has gluten-free waffle fries and hashbrowns. We'd love to get some feedback from those of you who have tried them and how it went. My son is newly diagnosed and afraid to chance it. But it sure would be nice to grab something out from time to time if we needed to.

I eat their fries and hashbrowns all the time. I have NEVER had a problem from ANY of the different locations. Their grilled chicken salad is also safe and very good. HOpe this helps!


In Topic: Iron Infusions

08 April 2009 - 06:27 AM

I have had the iron infusions. They tend to be slightly painful and I personally had a reaction to each one. They had to stop my treatments early. I was severly anemic and it was affecting my breathing. From my understanding, the reactions that I had were rare, but the common one that I had was severe joint and back pain. It went away within a day or so though.

If you have more questions, let me know!

I was just told I have a pretty bad iron deficiency (due to Celiac malabsorption and/or crazy irregular menses) and my GI has suggested I go for iron infusions rather than bother with pills. He just doesn't think those will absorb properly, and that the infusions will get my iron levels up faster.

I've been doing some research (as always ;)) and reading about possible side effects, what to expect when I go for the first infusion, etc and so far it doesn't seem like a big deal. I'm a tad concerned about an adverse reaction to the drip, but know that the first infusion is typically done in a partial dose and very slowly to watch for reactions, and then proceeds if no reaction is noticed.

I mentioned the anemia and the infusions to a friend of mine (via text conversation) and she said this: "Iron tastes bad and stains - also can have a very bad effect on your kidneys fast"
I wrote her back and said I could deal with the staining and the bad taste if it made me better, and that I hadn't found anything indicating possible damage to the kidneys.
She writes me back again and says "They will shut down and have to get blood transfusions"

So my first thought is to call BS and that she doesn't know what she's talking about because I haven't seen anything in my research that said ANYthing about possible kidney issues.
(She's pushing me to go to her NP for nutrition counseling, and I plan to, but I don't think this will be easily fixed with nutrition alone - at least not very quickly.)

Buuuuut.....I want to be fully (and correctly) informed about this before making the decision to do it. Is there any truth in what she's saying? Are there other adverse effects I might not know about?

I'd like to hear from those of you that have had this done and are in the know.


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