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sugarsue

Member Since 10 Sep 2008
Offline Last Active Feb 04 2014 03:36 AM
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Posts I've Made

In Topic: The Lyme Disease Thread

25 September 2010 - 04:28 PM

This thread is full of information, and I've been taking time to read through the multitude of pages - but they stop here....

Is anyone else out there still suffering with Celiac and Lyme?

I am on my 4th month of treatment for Lyme. My blood work was sent off to Igenx 2 days ago, but I just got some Labcorp results back last night that were "abnormal". My CD8 - CD57+ Lymphs was low - it's 57. I looked it up on the internet and it says that means I have only 2 possibilities.... I have Chronic Lyme or HIV. Well, I'm sure I don't have HIV, and so I guess I should be grateful that it isn't that! But Chronic Lyme is not much fun either.

Hi, I found this forum tonight, we've been members of the celiac forum for a year or two now but I didn't know there was a lyme forum too. I am waiting for my daughter's Igenex test to come back and will go this week to get my test and my other daughter's test taken. We are all gluten intolerant and have multiple allergies and food sensitivities. My 9 yr old daughter has multiple problems and so do I and I am becoming convinced it is lyme. We will see a lyme specialist soon. I wonder how celiac and lyme fit together.

In Topic: Newbie Anorexic With Neural Symptoms

24 July 2010 - 04:49 PM

Do you have a history of strep infection? If so, please check out the possibility of PANDAS. There could be an association between celiac and pandas since both auto-immune conditions. PANDAS can cause anorexia, OCD, Tics, Tourettes and other neurological issues.

http://www.webpediat...com/pandas.html

http://www.latitudes...hp?showforum=17


Hugs to you and I hope you find the answers you are looking for.

Susan

In Topic: Self Diagnosed- And Fell Off The Wagon

20 July 2010 - 05:07 PM

The super walmart near us has a gluten free section and sells Annie's gluten free mac and cheese. We love it.

Also we think, Mai-Fan Rice Sticks is a really good pasta substitute, also available at super walmart.

Easy low carb recipe books could hold a lot of ideas for you too.

Good luck and I'm glad you found out what makes you feel better!

Susan

In Topic: Does This Sound Familiar

20 July 2010 - 03:26 PM

Skigirl, I find it very helpful to hear how gluten affects others to try to understand what she is going through. I am allergic to wheat so when I get it I itch. But I don't have the neurological stuff and it's so hard to understand. Do you do anything to help with your anxiety when you get glutened?

Susan

In Topic: Does This Sound Familiar

20 July 2010 - 03:24 PM

This behavior is similar to what we have experienced over the years with our daughter who was recently diagnosed with Celiacs. She would have terrible outbursts that would start for no apparent reason and then they could last for up to an hour. She would follow me, yelling, chanting, crying etc if I tried to get away. She was inconsolable, would not respond to calm talking, yelling, comforting etc. I recently wondered if perhaps she was bipolar. It was exhausting for both of us. It occurred most often at night and in the mornings, before school, leading to many absences. I honestly feel that she felt so awful and tired from the undiagnosed problem that she was beside herself. This was a very typical behavior for her at age 7-10. We had some improvement as she got older, but the most dramatic improvement has been since we have gone gluten free. I wish you success with the gluten free diet, I know that it has resulted in marked improvement for our dauthter and our family in just one months time. Best wishes!


Lynn, this does sound very similar to my dd. I also have to worry about whether she is exposed to strep so this makes it so complicated. We have been gluten free for so long but really, probably too much of the little exposure. Thanks for the support.