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Snow Angel

Member Since 13 Sep 2008
Offline Last Active May 28 2012 05:07 PM

Posts I've Made

In Topic: Does It Sound Like My 20 Month Old Could Have Celiac?

07 January 2009 - 12:46 AM

Janelle...I have to add my 2cents.. not necessarily celiac related

her Immunoglobulin G was low 186 (382-1026).

Might want to follow up with this, preferrably with an immunologist who knows about hypogammaglobulina..You can get good doc referrals from http://www.primaryimmune.org/ if you call/email them., (they have a forum too) ...I am not familiar with pediatric ranges, they are lower than adults because once they stop getting yours from the placenta they have to start producing on their own and can have transient phases of low values, so this could come up and be nothing to worry about. Some subclasses like IgG2 may not be fully developed until after 8-10yrs.

She also gets sick all the time. She has had a cold/ear infection/cough/croup/runny nose thing going one since like the beginning of Oct. She seems to be getting over something then she comes down with something else. She is very pale, bags under her eyes and exshusted all the time now. She was dianosed boardline iron defeincy aneamia.

But..your DD is 50% below range, IgG2 (the most common deficiency in kids) makes up only about 20%, and she has too many symptoms to ignore..that are VERY common for immunodeficiency. You should have her total IgA count if they did celiac tests. See if that is low/ below range too, that addition would also be a indicator of a problem here. Because of her age testing will be harder, but they should check IgA, IgD, IgE, IgM and subclasses IgG1, IgG2, IgG3, IgG4.

How high are her platelets- have they just been trending up and now over range or was it a one time #? a little elevation can be chronic inflammation/anemia...alot high is NOT good. Point that out to doc when you call. How's the WBC? any low? high?

Other good info @ Jeffrey Modell Foundation / national primary immune defficiency.
the domain name looks weird but its the right place ->http://www.info4pi.org/
I'm sure i worried you ..i'm very sorry, I don't have perfect information & I don't understand these problems for young children - please keep that in mind.

In Topic: Tazo Organic Iced Greentea

02 November 2008 - 07:52 PM

I just called them (I drink Awake Tea, so I had a box here with their phone number)

I was told that the Organic Iced Greentea was gluten-free, as are all the bagged leaf teas.

Enjoy! :D

jerseyangel, ..I've had their Wild Orange & Earl Grey since celiac so far so good ..but on their website it says (and ofcourse I just rechecked 1min ago)

All of our teas are gluten free, except for the following: Green Ginger, Tazo Honeybush and Lemon Ginger & Tea Lemonade

The first two are bagged teas, last two bottled.

So the customer service rep is right about the Organic Ice Tea. But either the rep is wrong or the website is, about the 2 filterbags... I plan on avoiding those.
http://www.tazo.com/...asFlash=1&init= [click "what is Tazo" click "Faqs" ]
(took me an hour to find it the first time <_<

In Topic: Can Some Please Explain Dh?

30 October 2008 - 07:32 AM

Thanks Snow Angel

I didn't think any tea had gluten in it, I'll look into that. I think I am just allergic to green tea because I didn't get the same reaction as I do to gluten.

You welcome, maybe your reaction is for another reason or barley feels different then wheat.. idk... I haven't figured it out & probably never will.., but unfortunately if you can't eat gluten then you can't trust any prepared food or DRINKS. (so far bottled water hasn't done me in Yet!!) I just hope it goes away for you.

In Topic: Help! Can't Find Fexofenidine!

30 October 2008 - 05:02 AM

In the US, Teva's Fexofenadine was listed as safe a/o 02/07 in Wheaton Support Group list. You can get a copy here.

In Topic: Can Some Please Explain Dh?

29 October 2008 - 11:47 AM

green tea made me break out in horrible hives

Some green tea is gluten free, some is not...check your brand. I have read some have barley but I think that is in restaurants. I don't know what it is in tea that would be gluten otherwise. He is my current list of gluten-free teas. I have checked the websites just recently.

Tazo Tea 10/08 All of our teas are gluten free, except for the following: Green Ginger (teabag), Tazo Honeybush
(teabag) and premade drinks: Lemon Ginger (bottled tea) & Tea Lemonade (bottled tea).

Stash 10/08 All of our teas are gluten-free.

Celestial Green Tea: 10/08: Green tea, Organic green tea,Decaf Green Tea, Decaf Mandarin Orchard Green Tea, Honey Lemon Ginseng Green Tea, Raspberry Gardens Green Tea, Blueberry Breeze® Green Tea, Cranberry Pomegranate Green Tea, Decaf Honey Chamomile Green Tea,Decaf Lemon Myrtle Organic Green Tea, Decaf Mint Green Tea, Goji Berry Pomegranate Green Tea, Antioxidant Green Tea, Tropical Acaí Berry Green Tea, Tropical Grapefruit Green Tea.

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