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climbmtwhitney

Member Since 14 Sep 2008
Offline Last Active Oct 12 2012 01:57 PM
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Posts I've Made

In Topic: Possible Dh In 5 Year Old Son

24 September 2012 - 10:17 PM

Hi all, I'm keeping an eye on my 5 year old son. He has skin coloured bumpy elbows which sometimes scab, but are sometimes just clean bumps, too! He also has a rash that comes and goes on the back of his neck. I'm just watching it for now - the areas are classic DH spots, but he doesn't seem to be itchy on his elbows, just his neck. And it is presenting differently to the way mine did. Has anybody seen just 'bumpy skin' as a DH presentation?
Thanks for any thoughts


Yes! My son gets DH on his elbows and the back of his neck too. Usually just bumps as well. Sometimes very red, sometimes not. The ones on his elbows are super painful for a day or two. They're itchy, but only mildly. He's 9. At first (several years ago) he would get them on his neck (and those were very itchy), but now it's almost always on his elbows. The last 2 times he accidentally had gluten it took about 24-48 hours and he had the rash. We were 100% positive he had gluten. Once was at school when his teacher gave him an ice cream sandwich and he thought he could just pick off the crust. :blink: The other was when I mistakenly mixed up the Applegate chicken nugget boxes at the store and he had 1 bite and said "mom, these taste different!" His one bite and my one bite (while serving them) made us both horribly sick. : (

In Topic: My Kids Are The Only Ones With Celiac Disease At Their School. Same With Eve...

25 August 2012 - 10:44 AM

Now that we have 3 kiddos in the family diagnosed with Celiac/gluten issues, I'm trying to find local buddies for them. We are the only ones in the school at this point. The school nurse is going to send a letter around to the other local elementary schools in the area to see if there are any other students in the same situation who would like some friends.

We are in touch with our local ROCK group, but they don't get together very much and are spread throughout the city.

How about everyone else, how do you keep your kids from feeling isolated? And, are they the only ones at their schools?


Hi Polly,

My children's elementary has about 700 kids. There are a few other gluten-free'ers, but none happen to be their friends. Most oldest two have moved on to middle school. I think that having a friend with ANY food issue can be helpful. We have a friend with a peanut & sesame allergy, one with a cinnamon allergy, one lactose intolerant with a gelatin allergy, one that's vegetarian, one that can't eat pork or beef, and one that can't eat pork. When we have a few of those friends over and throw in my gluten-free/CF/SF kids, it can definitely get crazy, but it's all doable and no one feels left out or strange. They actually laugh about it! So how about looking for a friend with a food allergy or restriction besides gluten?

Also, my kids attend Camp Celiac every year for a week. Everyone there is gluten-free! They have a blast! Do you have any gluten-free camps like that?

Jillian

In Topic: Mouth Ulcers?

22 June 2012 - 12:47 PM

Hi Kirstie,

Yes! Mouth ulcers (i.e. canker sores) can be from gluten. I got them chronically (3-5 at a time regularly) as a child and I have Celiac. That was before diagnosis. My Celiac daughter also had them chronically before diagnosis. I don't get them anymore if accidentally glutened, but my daughter sure does.

Here's a link to research on the subject.....

http://www.reuters.c...E55S6UI20090630

There were a bunch of articles a couple of years ago about this. I remember one suggesting the pediatricians test all patients with chronic canker sores for Celiac.

Jillian

In Topic: Mixed Up The Applegate Boxes!

17 April 2012 - 06:44 PM

You know the old adage! shit happens....That is hard when you, a parent gluten a kid or yourself.. You just want to kick something! But on the other hand you learned a great lesson.. So mishaps don't happen we need to always take time & take a second look esp. when there is a gluten & no gluten household...easy to do...

Happens to the best of us.......hope everyone feels better soon.....


Actually we're a 100% gluten-free household - for 4 years. My nanny bought them by mistake and I used them by mistake. Neither one of us noticed. The boxes are seriously almost identical. Grrr.

My stomach is still in full revolt. And my little guy is miserable too. : (

A good lesson in slowing down.

In Topic: Well My Son Got A Good Report Card...sort Of...

28 October 2011 - 12:23 PM

Hi.

I think the all the other posters have great ideas. I just wanted to throw one more into the mix......

My son reacts horribly to artificial food dye, artificial preservatives (like TBHQ and Sodium Benzoate), and some artificial flavor (like cherry). He gets VERY hyper within 20 to 30 minutes of consuming it. It was leading to poor concentration, inability to sit still (literally), poor behavior, poor choices, etc. We figured it out the summer after kindergarten. The same day we removed all traces (even his toothpaste) he was a new child. Without it he's happy-go-lucky, funny, charming and sweet, and smart as a whip. He can sit and play Legos for 3 hours. With it he's an absolute moody wreck, yelling, fussing, snapping and running across the sofas.

He's in 3rd grade now. Doing awesome. BTW he's also gluten and dairy free. He was Gluten-free Casein-free for just under a year when we figured out the other stuff.

Good luck with everything.

Jillian