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roxnhead

Member Since 14 Sep 2008
Offline Last Active Feb 04 2010 10:20 AM
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Posts I've Made

In Topic: Severe Muscle Weakness. Unknown Cause.

06 January 2010 - 07:18 PM

Hello,

I also have had severe muscle weakness so much so that my nuero was thinking myasthenia gravis(negative blood test). What I did find out is that is caused by carbohydrates which just sounds crazy I know. We still haven't figured out why? It appears to be very unusual.So if I stay no-low carb I can have muscle strength. If I eat carbs my muscles are mush, stair-climbing any activity that is repetitve-sweeping, raking. My parathesia in my legs and feet are much better now too. especially restless legs. Celiacs appear to be deficient in Vitamin D and B-12 of which I am and take large doses. I would always get a copy of your lab request and report and research yourself, there are alot of discrepancies of lab values out there. What was fine with my G.I. was very low noted by Naturopath. Good Luck and be well!

In Topic: Please Help Me Understand My Prometheus Results

05 January 2010 - 12:32 AM

HI ALL,

I ALSO COME FROM NORWEIGIAN ANCESTRY! MY MATERNAL GRANDMOTHER WAS 100% AND MATERNAL GRANDFATHER 50%. MY FATHER'S PARENTS IRISH/DUTCH/SWEDISH--NORTHERN EUROPEAN. MY ANTI-GLIADIN WAS THE ONLY POSITIVE BLOOD TEST. MY ENDOSCOPY'S (2) WERE NEGATIVE FOR CELIAC BUT SINCE GLUTEN-FREE DIET IS WORKING G.I. CONFIRMS LATENT CELIAC. DIAGNOSIS HAS ALWAYS BEEN SUBJECT TO QUESTIONING? I DECIDED TO HAVE GENETIC TESTING-POSITIVE FOR BOTH DQ2 & DQ8. SO MY QUESTION IS DOES THIS FINALLY CONFIRM THE CELIAC DIAGNOSIS? I WILL REMAIN gluten-free BUT MY QUESTION IS FOR MY FAMILY MEMBERS BENEFIT--SINCE I HAVE 2 MARKERS DOESN'T THIS MEAN MY CHILDREN WOULD HAVE AT LEAST 1 AND MY SIBLINGS AS WELL! I WILL GO TO THE MEDICAL LIBRARY TOMMORROW I NEED A TUTORIAL ON GENETICS!

In Topic: Latest Test Results In!

02 December 2009 - 03:29 PM

:o Yeah I just checked my VSL#3 DS- probiotic it has maltose--I've been checking and it sounds like gluten to me--I continue my search Donna

In Topic: Specific Carbohydrate Diet (SCD)

26 October 2009 - 11:25 AM

Heya,

So many months ago when I first went to see my nuerologist which is also an Integrative health center(naturopath) he stated that all of my past health issues are due to Iodine deficiency. The cervical cancer, thyroid-Graves, Auto-Immune, High Blood Pressure iodine deficiency can all be directly the cause for my illnesses. He then had testing done by Doctors Data 24-hour urine iodine that showed an excretion rate of 46%. I have been taking Iodoral ever since(high potency iodine/potassium iodine supplement @ 8333% daily value). I have noticed no difference, either pro or con. What are your thoughts on this? As always my problems are carbs-stay away feel pretty good. My energy levels are up, I am able to have coffee again which motivates and sustains my energy. I am really starting to believe my problems are not with gluten, casein, mold but the amount of carbs a food has. For example I can have an apple or banana a day, or a couple of wheat crackers(low carb) but if I go over my carb limit I start reacting to environmental molds, food molds. Another example: I had a pancake last night after unsuccesful attempt at a non -gluten low carber(what a disaster) now this morning I am reacting to my morning coffee(mold)- gluten or carbs that's the question? My goal is to be gluten-casein free but lately as I tend to feel better I am "pushing the envelope"!I think that my body is lacking the enzyme to break down carbs-due to radiation/chemo-5mos later-E-coli food poisoning- which resulted in SIBO. I have been on Rifaximin for the SIBO for a week and have one more week left-but notice my carb dilemma still intact- So Sibo or no Sibo? I continue to search for answers, which only brings more questions? I have ordered the acid test strips along with Himalayan Sea Salt at Lame Advertisement.com. Which makes me wonder, how do I know that my supplements are not responsible for my results? When speaking of salt is it really iodine deficiency?

P.S. Do you notice all the carb blockers-diet supplements out there, Alli for one! My daughter stated " All they do is make you run to the toilet because if you eat carbs they go right thru you" and this essentially is my problem! Taking digestive enzymes specifically, Alpha amylase can be the reason for my continued recovery.

In Topic: Specific Carbohydrate Diet (SCD)

18 October 2009 - 11:38 AM

Ali,
How does one know if they are too acidic or alkaline? What testing is done if it is not blood? As always its encouraging to hear your thoughts. You are always asking why? This is just like myself, I do not accept the status quo. There must be some reason, deficiency, problem with the way our digestive system is working/not working that leads to gut dysbiosis/SIBO and the many food intolerances that more people seem to be having each day. How does our environment have such an effect on so many peoples digestive difficulties? Surely the 60's - 80's didn't see as much G.I. issues and their diets were just as bad. It can't all be diet? I believe there is a genetic component, environment and ??? your thoughts. I thought that an acidic environment is needed to keep the beasties at bay? That having low acid gives the beasties an ideal environmnet? Donna