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Member Since 15 Sep 2008
Offline Last Active Sep 16 2009 09:42 AM

Topics I've Started

Creon Digestive Enzymes

18 June 2009 - 03:40 PM

I was diagnosed through positive blood test and positive biopsy 9 months ago. I'm still not where I want to be in terms of my symptoms even after having been gluten free for 9 months, so my GI just prescribed Creon (digestive enzymes). I read that they are normally prescribed for people with pancreatitis or cystic fibrosis, and I'm wondering if anyone else with celiac has been prescribed Creon, whether you have had any significant side effects, what dosage you're on, etc.

I'm always a little skittish about starting a new medication and worry about side effects....any personal experiences would be very reassuring. I read that Creon is derived from pigs' pancreases, and that there is a "theoretical" risk of viral transmission to humans.........particularly with the whole swine flu thing, that just makes me a little nervous (I'm sure I'm overthinking it....)

Thanks for any thoughts/experiences!

Questions From An Scd Newbie

29 April 2009 - 08:07 AM

Hello Everyone,

This is only my second time posting on the forum, so sorry if I'm not doing it right!

I was diagnosed with celiac in September 2008 (positive blood tests and biopsy) and have been gluten free since then. My gastro symptoms have really not gotten noticeably better at all, so I've decided to try SCD to see if things improve. I just have a couple of questions for all of you SCD pros out there:

1. I was so excited to try my SCD yogurt this morning when it was ready and was a bit surprised at how tart it was---so much so that i'm having trouble eatng it. Anyone else experience this? Any way to make it less tart without adding a lot of stuff? Also, it was a little runnier than I'm used to with yogurt. I made this batch with 2% milk--would using whole milk or 1/2 and 1/2 help?

2. I take a daily medication for anxiety, and I'm wondering if I need to be concerned about starch that might be in it--I'm taking Freeda multivitamin and calcium, and I know those are ok, but wondering about this one.....

3. After doing the intro diet for a few days, how long should I be taking to introduce other "legal" foods? I've read Breaking the Vicious Cycle, but it's not entirely clear.....I don't want to jump into certain foods too soon...

4. I was diagnosed last month with osteopenia--this isn't specifically related to SCD, but does anyone know if I should be taken a calcium supplement that also has magnesium (I think I've read something about needing magnesium for maximum absorption...is it enough if there is magnesium in my multi)?

Thanks so much for any advice!!

Toms Of Maine And Gluten Free

15 September 2008 - 08:02 AM

Hi everyone,
I was just diagnosed last week (through positive blood tests and biopsy) and have found this site to be extremely helpful already---thanks! Being a type A personality, I've been doing tons of research, and just wanted to share this response I got this morning from Toms of Maine:

Thank you for contacting us! All of our products with the exception of our liquid hand soap and liquid body wash are gluten free. The liquid soaps contain wheat protein however, all other products are gluten free.

Please don't hesitate to contact me if you have any other questions.

Tina Payeur
Consumer Dialogue & Services Representative

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