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Member Since 20 Oct 2008
Offline Last Active Aug 16 2012 08:51 AM

Posts I've Made

In Topic: Are My Kids Too Young To Be Tested?

14 August 2012 - 07:33 AM

Just because you have the genetics does not mean you have Celiac. It means you are predisposed to getting it, not that you ACTIVELY HAVE it. It's just like cancer genetic tests, you may have the genetics for breast cancer but it doesn't mean you have it at this moment.

Blood work and biopsy are the only ways to tell if you actually HAVE Celiac (and more Dr. are going with the 5 criteria of blood word, symptom resolution on the gluten-free diet, genetics and a few other over biopsy because the blood work is getting advanced enough to be conclusive.)

So there's nothing in the genetic test that waves a red flag saying "HEY you have Celiac!"? I have been completely mislead then. Wow...so why wasn't I told this? I honestly haven't ever read it either. OMG. I'm sort of shocked right now.

In Topic: Are My Kids Too Young To Be Tested?

13 August 2012 - 10:37 AM

My question is what is wrong with drawing blood and doing a genetic test? Why are docs SO adamant about doing a biopsy? Why go the invasive route? From my research, a genetic test is 100% accurate. And happened to be the only way I got a positive test. Biopsy was inconclusive, and TWO regular blood tests that were false negatives.

I have a 9 month old that I want to get tested. I can't stand not knowing for sure!

In Topic: Password Issues

13 August 2012 - 10:29 AM

It should only take a minute or two for the email to be sent. Is is possible your spam filter junked it?

Third time is the charm...got it :)

In Topic: Password Issues

13 August 2012 - 10:27 AM

It should only take a minute or two for the email to be sent. Is is possible your spam filter junked it?

No, because I got the initial confirmation just fine that supplied to link to celiac.com for the final stage of resetting the email. I click on the link and then it tells me that an email has been sent with my "new" password. And still nothing is there - not even in the junk folder. :(

In Topic: Newborn - Mother With Celiac

16 November 2011 - 09:47 AM

Ok, here is the certified lactation counselors' view :-)

1. Are you on any meds?

2. What kind of delivery (section/vaginal)

3. Can you feel yourself let down (tingle)?

4. Did you get engourged?

5. Do you own a pump?

Could be dairy and eggs. Also look at the oj. Very acidy.

I am nursing a 3 month old. I'm gluten-free and have been through my pregnancy. If I get to much cheese he's miserable. I feel your pain:-)


1. I am on valtrex, however have been scared to take it even though it's safe. Haven't had any since her birth date (11-7). But I am taking a prenatal still, which I was taking 8 months prior to conception for the vitamin D content. I take a fish oil and have been through out pregnancy. I also take a probiotic and have been since 8 months prior to conception. That's all.

2. I had a home water birth - vaginal of course Posted Image (I say that with loads of pride).

3. I haven't noticed a "tingle" when I let down. SOMEtimes I'll let down before I can get her on me...other times she's on me so quick because I try not to let her get fussy. I feed on que, not demand. I suppose the tingle I feel a couple seconds after she latches could be the tingle I read about. Not sure, really.

4. Nope. I was extremely full the first night I had all my milk in...I started getting it in the second day after birth. The third day I had it all and that night I was really full, but no engorgement.

5. I don't own a pump...yet. I'm getting one. I will need one later.

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