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Grace Maureen

Member Since 08 Nov 2008
Offline Last Active Dec 30 2009 11:02 PM
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Topics I've Started

Any Gluten Free Probiotics With Bifidobacterium Lactis?

30 December 2009 - 10:50 PM

Hi there,

I have been doing some research on probiotics and celiac disease. It seems that probiotics with bifidobacterium lactis would be very beneficial for those who are celiac. So, does anyone have any experience with one? The only one I was able to find on my internet research was called theralac. Has anyone used this? Are there any others brands of probiotics out there which are gluten free with bifidobacterium lactis?

I had purchases some PB8, which of course, doesn't have that strain of probiotic...anyone used this before???

Please let me know if you have any suggestions or experience!
Thanks!!!

Gluten-free Oven Cleaner Product?

21 October 2009 - 03:10 PM

I am wondering if anyone knows of a gluten free oven cleaning product? I have been militantly gluten free for over a year and my levels are still elevated. I am trying everything! So, have limited all cleaning agents to, of course, gluten free products only, but do not know of a good oven cleaner. Please help! Thank you!

What Type Of Doctor Should I Have Monitor Celiac?

25 March 2009 - 07:13 AM

What type of doctor should I have monitor my celiac? Currently, my general practitioner has just been prescribing any tests that I tell her I need, but she knows nothing about Celiac disease. I had an endoscopy by a GI doctor, but other than that, have never seen one before or after the endoscopy. So, are there specific types of doctors that I should have monitor my illness? (I have also had a one time appt with a nutritionist-wasn't all that helpful).

Thanks for any help!
I have been gluten free for 6 months since 6/12 months of diagnosis.

Elevated Ttg Iga Post 6 Months On Diet

25 March 2009 - 07:07 AM

I was diagnosed with Celiac Sprue in late August of 2008 (via blood tests and endoscopy). My diagnostic TTG IgA test was leveled at 157. I was just retested and now my level is 65. So, my doctor told me that I must be doing a good job with my gluten-free diet as my number has clearly dropped, but everything that i have read has said that it should be at a negative level....So...am I doing things right? Shouldn't my test be negative by now?
I am obssesive about my diet, I even use gluten-free soaps and makeups, etc... I have only eaten out twice since I started the diet in September. I guess my real concern is that one of my prescriptions may not really be gluten-free. That is the only thing that I can think of.

Or could it just be taking this long to drop down to normal?

Also, if one does have a set-back due to a cross-contamination, how long will their numbers typically show positive on a TTG IgA test?Unfortunately, I am part of an HMO, and my doctor admits that neither she nor any of her colleagues are very experienced with celiac, so I have been telling her what tests to order and what needs to be done...so, her telling me that I must be doing well with my diet, isn't a very reliable opinion.

Any opinions or help would be sooooooooooo appreciated.

Thank you!

PS Why can't our doctors just know more about celiac? argh

Confused About 6 Month Follow-up Ttg Iga Test

24 March 2009 - 05:15 PM

I was diagnosed with Celiac Sprue in late August of 2008 (via blood tests and endoscopy). My diagnostic TTG IgA test was leveled at 157. I was just retested and now my level is 65. So, my doctor told me that I must be doing a good job with my gluten-free diet as my number has clearly dropped, but everything that i have read has said that it should be at a negative level....So...am I doing things right? Shouldn't my test be negative by now?

I am obssesive about my diet, I even use gluten-free soaps and makeups, etc... I have only eaten out twice since I started the diet in September. I guess my real concern is that one of my prescriptions may not really be gluten-free. That is the only thing that I can think of.

Or could it just be taking this long to drop down to normal?

Also, if one does have a set-back due to a cross-contamination, how long will their numbers typically show positive on a TTG IgA test?

Unfortunately, I am part of an HMO, and my doctor admits that neither she nor any of her colleagues are very experienced with celiac, so I have been telling her what tests to order and what needs to be done...so, her telling me that I must be doing well with my diet, isn't a very reliable opinion.

Any opinions or help would be sooooooooooo appreciated.

Thank you!

PS Why can't our doctors just know more about celiac? argh