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Member Since 22 Nov 2008
Offline Last Active Jun 05 2009 06:46 AM

Posts I've Made

In Topic: Sam's Choice Pink Lemonade?

01 June 2009 - 09:55 PM

Well, see, that was my problem. The label has none of those things on it. No gluten info, no allergen info, no contact number to call to check. So I gave up and let him have some and he seemed fine so I guess it's gluten free. But I'm not happy with Walmart for making it so hard to ask a simple question. <_<

In Topic: Sick Of The Bloating!

25 April 2009 - 07:39 PM

Some exercises I have just started trying: http://www.dailymail...beat-bloat.html

I love how the article above the exercises disses patients who think they have a problem with wheat, but then at the bottom they advise patients avoid bread, malted products, beer, vinegar, and soy sauce! rotfl :lol:

In Topic: Secondary Autoimmune Narcolepsy From Celiac

22 April 2009 - 09:22 AM

There are no official stats on it, which is something I'd like to do myself in grad school, but from what I've seen on forums and from an informal poll I did, there are a lot of people with Narcolepsy that could benefit. The Narcolepsy genes have also been found to be Celiac genes. IMHO it would be beneficial to screen all Narcolepsy patients for Celiac, although a blood test might not catch it if the transglutaminase is primarily in the CSF.

In Topic: When Should I Introduce Wheat?

21 April 2009 - 06:31 AM

Wait until at least 6 months of age. It takes babies a few months to grow a proper lining in the gut and introducing gluten before then could increase her risk of getting Celiac later.

In Topic: Celiac Treatment Research

20 April 2009 - 05:48 PM

I think the entire notion of "building up a tolerance" is pure rubbish. I would point out, that many on this board have noticed an increased sensitivity to gluten after being gluten-free for a while. However, the damage to the intestine had still been occurring before the change in diet. Only the appearance of outward symptoms were suppressed.

Well, I do believe there is evidence that desensitization works in some cases. And this group found positive results in doing this treatment in mice. Of course, mice aren't humans, so we'll see how the human trials go. They indicate the treatment takes months to complete.

My issue with the whole thing is in calling it a "vaccine". It's not a vaccine. A vaccine is injecting modified or killed virus into your body that you have not been previously exposed to so that you can make new antibodies against it to fight it off when you are eventually exposed to the illness.

Gluten is not a virus and our whole problem is we already make antibodies against it which then attack our own cells. So this treatment is more like an antivaccine, really. I wish they would just call it what it really is...gluten desensitization. "vaccine" is so misleading! It's not like you get one little shot and you're cured.

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