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Member Since 22 Nov 2008
Offline Last Active Jun 05 2009 06:46 AM

Topics I've Started

Sam's Choice Pink Lemonade?

30 May 2009 - 11:18 AM

My boyfriend got some Sam's Choice Pink Lemonade and regular lemonade at Walmart as a treat for our son who just went gluten free. I read the ingredients and it has "natural flavors". But there's no phone number and the walmart website doesn't have any gluten info on any of their products. So how can I find out if it's ok besides simply trying it? I can't imagine lemonade would have gluten in it, but I just need to know for sure. Has anyone tried this product? Thanks!

Secondary Autoimmune Narcolepsy From Celiac

03 April 2009 - 09:33 PM

I recently read that Celiac is known to cause secondary autoimmune disorders and allergies. I have Narcolepsy that is triggered by gluten, but I also have some lingering Narcolepsy symptoms on a gluten-free diet that seem to be from permanent damage.

I found out I have a Celiac haplotype DRB1*07-DQB1*0202 and I also have a Narcolepsy/Celiac gene DQB1*0301. Since gluten triggers most of my symptoms and I have what's considered 'atypical' cataplexy (ie: 'spontaneous' several days after ingesting gluten) in addition to classic cataplexy triggers like laughing, which isn't as severe, I figure my Narcolepsy is secondary with some minor permanent damage from the Celiac.

I'm going to run it by my doctor next time I go in. I did tons of research on it...it was fun! :)

Enterolab Hla Test

26 March 2009 - 05:31 PM

Ok I know I'm being the impatient one here, but how long does it usually take to get gene results back? They got my cheek swab on the 18th. They say to give them 3 weeks but I'm hoping that's just them trying to give themselves wiggle room when they get swamped with orders. And now that I've posted this I'll probably get it tomorrow. Funny how those things work. :rolleyes:

Testing Rice

14 March 2009 - 11:41 AM

In the past I have had trouble with rice as well as gluten (it makes me sleepy and I feel 'weird') but recently have tried a couple of rice-based pizzas with success. So, I want to try plain rice again but am unsure which brands are known to be gluten-free and safe. Cheaper is better, but I want to get it right, so I'm open to all suggestions.

Thanks for your help! :)

I Ordered My Hla Test Last Night!

07 March 2009 - 11:26 AM

I got my tax return yesterday, so I did what I promised myself I'd do and went to the Enterolab site to order my HLA test. I'm just testing myself for starters and might test my son at a later date depending on the results of this one. I'm so excited! I can't wait to see the results. It can't be negative...there's too much that runs in our family. I'm really hoping it validates some of my suspicions.

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