- Celiac.com Celiac Disease & Gluten-Free Diet Forum
- → Viewing Profile: Reputation: bigbird16
bigbird16Member Since 04 Dec 2008
Offline Last Active Feb 11 2013 05:47 PM
- Group Advanced Members
- Active Posts 169
- Profile Views 6,221
- Member Title Advanced Community Member
- Age Age Unknown
- Birthday October 16
DC Metro Area
Posted by bigbird16 on 25 November 2012 - 03:34 AM
Posted by bigbird16 on 12 November 2012 - 08:58 AM
Posted by bigbird16 on 27 September 2012 - 06:42 AM
A lot of us were bread and pasta fiends. I was a baker and cake decorator. I loved baking for people. I rarely ate my own cakes, as they made my stomach hurt. (Hmm, I wonder why?) My favorite breads to make were banana nut and dill onion. I loved it when my home reeked of sugar and flour from the cakes.
When my dad suggested that my migraines might be connected to gluten, I gave it up. Cold turkey. The possibility that there might be even some relief from the incredible daily pain was enough to make me stop eating gluten. I had no idea that so much of what I had been feeling would be affected by dropping it. I had been feeling like I was slowly dying with extreme fatigue and various pains. Instead of genuine hunger, I felt a gnawing pain in my belly. Within days I started to feel better, and a matter of weeks later I felt better than I had in ages with increasing energy. My stomach actually started to rumble when hungery instead of hurting, and I didn't get lightheaded anymore.
Too bad I didn't know about testing beforehand. When I did inquire about testing, I was blown off and couldn't even get an appointment to see a doctor for at least another two weeks. I had been gluten-free for a number of weeks already. I ordered a Biocard test to see if I could test myself, and I tried going back to eating gluten so I could be tested. I didn't make it through one meal. I had a violent reaction. That was my answer. Of course I tested negative on the Biocard test; I had already been free for too long. Who cares. I understood what my body was telling me. Screw the tests.
I mourned the loss of my breads and pastas and cakes and cookies. I wondered what I would eat that would satisfy me. But I took it as a challenge to get creative in the kitchen and try new things. I've tweaked my diet over the last four years, discovered more intolerances, and am in a happy place. I know what fuels me well, and I know what makes my body happy. It's a far far cry from how I used to eat.
Give up the stuff that hurts you, and play with your food! Sure it will take some adjustment time, but it will get better.
Posted by bigbird16 on 22 July 2012 - 05:38 AM
Scott, on the celiac.com website you list corn as an acceptable food on a gluten free diet, with no mention that it may not be appropriate for some people. You say: "In any case, as far as we know, corn does not seem to cause harm to celiac patients."
Would it hurt to say that corn may be harmful to some people? Do you see what I'm saying? I'm coming to you for current, accurate information and making a blanket statement that corn does not seem to cause harm, etc. is absolutely not accurate across the board.
Corn IS acceptable on a gluten-free diet. So are sorghum, buckwheat, lupine, amaranth, etc. But they are not acceptable across the board. Corn and rice are the only gluten-free grains or grasses that I do not have some sort of reaction to; I am very sensitive. Sorghum, buckwheat, lupine, etc. make me feel like a sick dog's excrement. So should there be a disclaimer for ALL things containing gluten-free grains and grasses? No. I use my brain. For the new Celiac, there's no reason to be alarmist. You don't automatically strip your diet of things that MAY be a problem. If you don't feel better on a gluten-free diet, THEN look into what may be other culprits. NO food is acceptable across the board. You can be allergic or intolerant to anything that's consumable. You simply have to listen to your body and do what is right for yours. This is a wonderful forum for getting ideas on what else to explore when there are further issues beyond wheat, barley, and rye. And a big part of that is because of the wide range of digestive experience.
Posted by bigbird16 on 09 July 2012 - 03:37 PM
Take and eat your food. You don't have to go into details with people. It'll be a curiosity at first, but soon they'll just come to accept that you bring your own food. Your health isn't an issue for compromise.
Posted by bigbird16 on 29 November 2011 - 09:01 AM
When I moved to Northern Ireland for grad school, my diet changed. I ate a lotof whole, fresh foods, skipped the bread and pasta in favor of cheaper rice. I refer to that year as the year I awoke from a dream.Everything was so vivid and clear, like a fog was lifted from my head. As soonas I moved back to America, my body seemed to slow down again. It continued toslow down even though I took up dance. I was tired and achy all the time andfelt like sleeping. I gained weight like crazy in spite of a heavy danceschedule and walking everywhere (no car). Doctors said my joints were fine whenI complained of joint pain. They said I was healthy when I said I wasexhausted. They kept brushing me off.
A friend's husband had this horrid bodybuilder diet that consisted of rice, turkey,and fiber tablets and pretty much nothing else--no gluten or dairy. I decidedto try it to lose the weight. I dropped four or five dress sizes and feltphenomenal, so alive and awake. Nothing hurt, and my stomach, which alwayslooked pregnant, was flat for the first time.
Gradually I went back to my old eating habits. And the migraines began. Istarted getting clumsy--bumping into things, dropping things, falling down. Itwas a really slow, gradual process over time, but I started feeling worse andgot to a point where I didn't even remember what it was like to feel goodanymore. I couldn't climb the stairs without getting winded or complete onedance, much less a whole set. I wanted to sleep all the time. I became a shellof a person. My heart would flutter and squeeze; I was afraid I was havinglittle heart attacks. My joints hurt so bad. My whole left side was tingly or numb,and the buzzing in my head finally became a constant companion. D was my"normal." And doctor after doctor said I was fine and in good health.One told me to stop bothering him. Not one made a dietary association. One saidI might have some allergies and gave me some Allegra to help with thebreathing.
Please tell me how amigraine for 20+ days out of the month, numbness on one side of the body,lethargy to the point of needing a nap after cooking breakfast following a fullnight’s sleep, pain in nearly every joint of the body with not many of themhaving a history of injury, D every day, bloating, shortness of breath, anxiety,falling down, etc. is f***ing “normal” and “healthy” in a 35 year old!
ByNovember of 2008, I felt like I was slowly dying with zero energy, constantpain in my joints and head, a thick haze blanketing me, falling asleep at work, nodding off intraffic (finally got a car), and feeling crazy. After a particularly badmigraine, I was talking to my dad and he mentioned the babyhood allergies andhow a friend of his felt better without gluten. I looked at the piece of toast I was eating and put it down. I went gluten-free that day, and within daysfelt amazing changes taking place. I was happy for the first time in ages.
Ihad already been gluten-free for about three weeks when I found out there wastesting for Celiac. I called my doctor’s office; they wouldn’t talk to me abouttesting over the phone and couldn’t get me an appointment for weeks. I couldn’tchange PCPs at that time. I tried to go back on gluten so that I couldeventually be tested. I lasted (or didn’t) through one piece of bread. I gotahold of a BioCard test from Canada. Well, being gluten-free for four or fiveweeks by that time, of course it was negative. But my body had given me theanswer I needed. Migraines reduced significantly, but migraine doctor saidthere was no association between gluten and migraines (i.e., it’s in my head).Whatever, just give me my Imitrex and shut up.
Stillfeeling a little funky with more migraines than I would have liked six monthslater, I did the Enterolab testing for gluten and dairy. I was actually happythat the dairy was through the roof high and that the genes were associatedwith dairy sensitivity. That proved to me that what I thought as a teen was notin my head. Cutting dairy cut more migraines and cleared gut issues. Gluten was positive, too. Soy later proveditself a problem. And I have since founda migraine doctor that at least accepts what I say and is willing to trydifferent treatments for the headaches that remain.
Ifsome doctor had paid attention earlier on….But it is as it is. Am I Celiac orgluten intolerant? Who cares? Body hates gluten. I’m lucky that I have my lifeand that I didn’t alienate all of my friends or lose my job. I’m fortunate tohave you all. I’m in good shape now, and there’s a lot to do in the future. Butyes, I understand the anger. (Sorry so long.)
Posted by bigbird16 on 12 October 2011 - 07:28 AM
Posted by bigbird16 on 12 October 2011 - 05:06 AM
Posted by bigbird16 on 10 October 2011 - 06:01 AM
Posted by bigbird16 on 03 October 2011 - 05:51 AM
And for my birthday this month, screw their cupcakes that I can't eat. I'll bring in the most fabulously decorated cake ever and make my tastebuds happy.
Posted by bigbird16 on 02 August 2011 - 09:13 AM
Posted by bigbird16 on 18 June 2011 - 04:35 PM
Posted by bigbird16 on 18 June 2011 - 04:45 AM
Posted by bigbird16 on 27 May 2011 - 04:36 AM
Sandsurfgirl, Ian's makes awesome onion rings and tatertots (in the shape of letters! fun!). I've found them at Wegman's and Whole Foods. The onion rings do contain corn, for those who are sensitive to that. Usually I make my own with a little Old Bay seasoning in the batter. Mmmmmmm! But for when I don't feel like slicing and mixing and dipping, the Ian's rings are a yummy quick fix.