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Member Since 08 Dec 2008
Offline Last Active May 05 2011 08:46 AM

Posts I've Made

In Topic: Marsh 2 Biopsy After 2 Years gluten-free

05 May 2011 - 08:46 AM

I go to the Celiac Center at Columbia and see Dr. Lewis there. I think highly of her. I had the hydrogen breath test to make sure I did not have bacterial overgrowth in the intestines, which causes other problems, including roseaca, which I also have. I have not had other testing for intolerances but think it is possible I have others. I did visit a nutritionist (not the one at Columbia who is very good) who was not up on gluten free at all (she gave me literature for the Diabetic Asso that was ancient and said that buckwheat was a gluten grain). She gave me a test where I blew into a tube and said, there! you don't have any intolerances. I asked, ' shouldn't I have eaten the suspect food to make the test valid?" YES....
I will lookin into L Glutamine. Is that an amino acid?

My understanding is that the older we are the longer it takes to heal,especially if you had significant damage. I was diagnosed last year and I am still lactose intolerant. Have you had any other tests besides a scope? My concerns are that I have other intolerances that no seems too eager to investigate.

I go to celiac doctor in NYC,do you mind me asking who you see and what tests you have had besides the endoscopy and blood work?

PS I have heard that L Glutamine is supposed to help repair damaged intestinal tissue

In Topic: How Careful Do I Need To Be?

04 May 2011 - 05:54 PM

I see some time has gone by since you posted. I hope things are going well. It is fine to kiss a gluten-eating person a while after they have eaten. I have heard various time periods quoted, and I am not sure if this has been scientifically tested. If your spouse drinks a beer or eats a gluten sandwich, I would give it some time before kissing. Your 2 year old gets different kinds of kisses, I wouldn't worry too much. On this very forum someone said that huggies unscented baby wipes remove gluten. I always keep some in a plastic bag to wipe off gluten when out and about.
Regarding risk of various celiac-related ailments, I have heard that your risk goes down to that of the normal population after 4 years gluten free.

Here is a link to a reputable article. It outlines everything about celiac and includes information about causing cancer.

http://www.celiac.ca...JM Oct 2007.pdf

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