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whistle

Member Since 19 Dec 2008
Offline Last Active Feb 18 2009 10:46 PM
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Topics I've Started

Does This Make Any Sense?

15 January 2009 - 10:27 PM

I have gotten "eczema" all my life. When I lived in a more humid climate I got it all the time, and never knew what triggered it. Now I'm in a dry climate and I only get it from contact with stuff like oil paint, adhesive bandages, etc. I get very dry skin but can avoid outbreaks of the rash. I don't know if it sounds like DH or not. I'd mainly get it inside my elbows and between my fingers, unless it was triggered by contact with something in another area. It's very, very itchy and bumpy and often oozes clear liquid. In my elbows it would become a big, red, bumpy patch.

I have many other symptoms of celiac disease. Where I live I couldn't get the whole blood panel, and tested negative on the one test they do do. The earliest gastrenterologist appointment I can get is July 23rd.

Does my rash sound like DH? If so, would it make sense for me to create an outbreak and get a diagnosis from a dermatologist? :huh:

Thanks
:)

Wait, Or Diet Now?

14 January 2009 - 03:00 PM

The earliest gastroenterologist appointment I can get is July 23rd. If I have a chance at a diagnosis from a biopsy, I don't want to ruin it, but I'm also anxious to find out if a gluten-free diet would help me. I'm disabled by my symptoms. Among many other things, I don't remember what it's like to have energy. I think I want to try the diet right now, so I was wondering if it made sense to go gluten-free for three months, then back on gluten for the next three. If I do react positively to the diet, I would have something convincing to tell the doctor, too.

Part of the reason why I don't want to throw away the chance at a positive biopsy is that I know my father would take that more seriously than the theory of his space-cadet daughter. He had a pre-cancerous polyp removed from his bowel. He also gets diarrhea after some meals - garlic, he figures is one culprit. He has arthritis, and fainted once for no apparent reason. He also has other things which I so far haven't heard related to celiac: labyrinthitis and non-melanoma skin cancer.

I'll bring it up with my family soon, and my sister will likely be willing to investigate it for herself. She has depression, hair loss, tinnitus, occasional diarrhea, occasional dizzy spells, bloating, distended abdomen, and she also fainted once for no apparent reason.

All advice and commentary is appreciated. Thanks.

If I Have Celiac, But Test Negative...

11 January 2009 - 02:09 PM

Hi again. Thanks, for the help regarding testing. And thanks for all the other info and support that everyone shares on this excellent site.

I tested negative on my blood-test, though I could only get one, rather than the whole panel. I'm going to a gastroenterologist (not the bizarre doctor I mentioned before). I'm hoping doctors aren't too out of touch with celiac around here. I'm in a small city on the Canadian prairie. In the summer it's surrounded by wheat, barley and rye so far as the eye can see.

The more I read, the more I'm convinced I have celiac disease. I just keep coming across more indicators. I read an article from 2006 saying there was new evidence that may connect celiac with thyroid papillary carcinoma, which is the type of cancer I had. I saw a picture of a baby's torso and instantly my mothers voice appeared in my head saying, "when you were a baby you had a big barreling chest..." Maybe I'm becoming a fanatic, but I'm so desperate for an answer. I'm also really scared, though, because of how dangerous celiac is, and I already had cancer 23 years ago.

I was wondering, if I actually do have celiac but get negative tests, can that be a good sign, because it means the damage hasn't progressed very far?

Thanks again

What Does Fatty Stool Look Like?

23 December 2008 - 11:47 AM

I want to get a celiac panel done, so I'm writing a list of symptoms for my doctor. Since I don't compare my pooh to that of others, I'm not sure what's normal. Sometimes I have white "clouds" attached to the outside of the stool, and floating in the toilet. I was wondering if that is fatty stool, or if it's normal or something else.

I Hope I Have Celiac Disease

19 December 2008 - 08:26 PM

Hi everybody! I was looking at Celiac sites yesterday, and I hope I have it , because it would explain a lot, and mean I could maybe have a more normal life. I've decided to get tested, but would also be interested in any insights you have to offer.

I'm 40 years old, and had my thyroid gland removed when I was 17 due to cancer (papillary carcinoma). About 8 years ago I started having trouble regulating my replacement hormone levels, and went on a hyperthyroid-hypothyroid roller coaster for about 6 years. My levels have been good for the past 2 years and my health has improved somewhat, but it doesn't seem to be improving anymore, and I feel like a wreck. During my illness, about 4 years ago, I got a bad intestinal infection with blood and great pain. The specialist said it was likely food poisoning though they found nothing like that in stool samples (possibly the critters were already killed by two very nasty antibiotics). The doctor said I might get irritable bowel for "a while" as a result, so my digestive problems have been tagged as that. But it never improves and I think I have some symptoms of Celiac Disease. I've been blaming all my symptoms on either thyroid or irritable bowel. Here they are:

-undigested food in stool (some days I find myself thinking "what a pretty salad that is twirling in the toilet, it looks like the salad I ate yesterday!")
-pale stool (last few months mainly)
-loose stool & diarrhea
-abdominal discomfort, pain, burning, bloating
-heart burn
-headaches
-severe menstrual cramps
-exhaustion, fatigue, weakness
-anxiety & "bad nerves"
-bouts of depression
-occasional bizarre zinging pain in my legs - (must sit down or legs will buckle - goes away quickly)
-sore wrist joint
-very sensitive teeth (past 2 years)
-bone receding in gums to an unusual degree
-occasional itchy rash (much more frequent and severe in my 20's)
-dry, sensitive skin
-allergy to nickel, rashes from glue on bandages, irritation from most toilet paper...
-difficulty paying attention sometimes

...hmmm...am I forgetting anything?

I told my doctor I wasn't digesting my food properly quite a long time ago, and she checked for B12 and it was okay at the time.

After I was born, my mother, who was unable to breast feed, gave me formula but it caused me to poop green. The doctor told her to switch to cow's milk. Now I'm wondering if it was the gluten in the formula that was the problem.

Any comments would be greatly appreciated. Thanks.