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NewNicole

Member Since 23 Dec 2008
Offline Last Active Nov 16 2013 05:53 AM
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Posts I've Made

In Topic: Is There Such A Thing As Autoimmune Flare?

21 October 2013 - 03:38 PM

Your symptoms seem to be exactly mine....severe fatigue, headaches, muscle pain, dizziness and nausea are my main problems. Some days it's hard to breath. Not because of my asthma but because it feels like it's too much work. It feels like a heaviness. It's not gluten and I don't know of any other AI issues. Does anyone know what AI diseases can have these symptoms and what kind of Dr would I see? By the way my TSH levels appear fine.

In Topic: Celiac And Ibs?

19 July 2013 - 06:37 PM

Nate, I know that story all too well. The medical field is a nightmare to try and navigate. I have learned so much over the last few years. As a child you are told a doctor will help you feel better and that is just not the case. I think most of them want to but they don't have the time and they need to just push you off to the next person. I've learned that the ER will not fix it. They can't diagnose you. Their job is make you live long enough to get to the next Dr. And the GP can only tell you which type of Dr. to go to. A few of my friends are doctors and even with friends in the field it's impossible to navigate, I am my own advocate. I learn as much as I can so I can understand exactly what my Dr. is telling me. And even with all that knowledge and help I am still sitting here looking like I'm pregnant with twins and no explanations. What I do know is that if you are losing weight you need to be worried about cancer. That is a very very common symptom. Although Crohns can also mimic those symptoms. If you are anemic and have weight loss you need to get help. That is a sign of bleeding. But I can also tell you I watched my father in law die from stomach cancer and although I had more pain than he did we shared very similar symptoms and I'm not dying. So you never know. I recommend looking on mayo clinic .com and really researching possibilities. It's reliable and easy to understand. Also the Merck Manual has everything but sometimes it's hard to understand. Then do what I've done here..ask others. I talk to everyone. I believe if we talk to each other at some point we will hit someone who has found the answers . Good luck. Hope it gets better for you

In Topic: Celiac And Ibs?

19 July 2013 - 09:51 AM

Nate, that is a terrible existence. Most of my big issues went away when I went gluten-free. The bloating is more annoying than anything else. Although sometimes I do get what feels like back labor. I'm pretty sure it's because of constipation though. The Dr. prescribed a medicine that is suppose to work if its IBS but it was not helpful. And he won't do a colonoscopy. He says its a waste of time. Shadowicewolf, I'm not sure what leaky gut is. Is that something the GI would know or is that an alternative medicine issue?

In Topic: Celiac And Ibs?

19 July 2013 - 05:50 AM

Shadowicewolf, I was thinking thyroid also. I have other symptoms that play into the thyroid, but I can't get the GI to listen. He insists no. My TSH is fluctuating but its not to the point that they will treat it.....Lexi and Nate, in this case misery doesn't love company. I'm sorry you guys seem to be having similar problems. My stomach is flat when I don't eat for a day or so. Once I start eating it bloats. I believe the food isn't moving through. I'm convinced a portion of the intestine is damaged, but I have no way of proving it. Plus I have no idea what test I can ask for to prove my theory. I'm also thinking it could be vitamin D. But again, my Dr. says no. Should I go to a different type of Dr? ....Cyclinglady, I have tried journaling to see if I could find a culprit, but I can't find anything that doesn't do it.how does the four day rotational diet work? That's one thing I could try.

In Topic: Celiac And Ibs?

18 July 2013 - 01:37 PM

I only eat plan chicken...and I mean plain...plain potato and a couple vegetables. I have researched all the possible food issues and have really taken that off the plate. It doesn't matter what I eat. I can drink water and you can see the swelling as I drink. It only takes a few minutes from each sip for it to swell.