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Member Since 10 Sep 2004
Offline Last Active Mar 20 2014 07:18 PM

Topics I've Started

Test Results Normal So Far

08 May 2013 - 07:48 AM

My blood tests results are slowly trickling in and so far they are all normal.  I know 4 tests were being run but am not sure which one I am still waiting for.  I don't think I want to pursue further testing....just would like to go gluten free and get on with my life.  My brother is severely gluten intolerant (never tested) so at least I won't be the only one.


Deaminated Gliadin AB IGG   2      Range 0-19

Deaminated Glaidin AB IGA   3      Range 0-19

Total IGA                              159     Range 68-378









Tingling/numbness In Foot

06 May 2013 - 06:40 AM

The past few days of my gluten trial I have noticed that the top of my right foot and ankle are numb and feel weird.  It is pretty constant....feels like nerve damage after a surgery.  Is it possible that this is from the gluten exposure?  Will it go away when I am gluten free?



How Long Is Testing Process?

04 May 2013 - 08:15 AM

I'm on day 7 of my gluten trial and am going to try to go for at least 2 weeks.....since I was only off gluten for 12 days and I've been eating gluten for 42 years!  I was getting really excited that I only have one more week of this and then I realized I have to keep eating gluten until I get the blood test results and they decide if I need an endoscopy and that could take a LONG time!!!!  I'm not feeling happy right now.


How long did the process of testing and getting results take for you?



Am I The Only One Who Has Doubts?

03 May 2013 - 07:53 AM

Recently my sister-in-law (who is a physical therapist) mentioned that I might try going gluten free to see if it helped me with my joint pain/inflammation.  I was completely gluten free for 12 days and wasn't really sure if it helped with the joint pain but what I did notice was that I had more energy, no headaches, no nausea, no stomach aches and I stopped taking my prescription acid reflux pill for the last half of that time and didn't experience any symptoms.   


History:    My brother probably has celiac disease.  He has been gluten free for over 5 years.  If he ingests the tiniest amount of gluten by accident he gets severe joint pain, heart burn and is extremely sick.  He's mentioned to me many times that I should try going gluten free because of my GERD and migraine headaches.....but I never did.

        Almost every morning I wake up with stomach cramps or nausea.  I call this "my digestive system waking up".  I've always figured it was from an empty stomach or too much stomach acid.  I thought everyone felt this way.  I do experience extreme fatigue some days but I have always attributed that to "being a mom".  My GERD is because I'm overweight and I get migraines because they run in my family.  I have a reason for every single one of my celiac symptoms.....and it is possible that those are the reasons for them.


     When I was off gluten I was pretty sure I had a gluten problem, when I first went back on gluten so I could be accurately tested I was feeling yucky within 24 with heartburn and headache and actually had liquid diarrhea in my pants.  At that point I was sure I had a gluten problem.  Now I'm on day 6 of eating gluten and the symptoms are not as severe (I am taking my acid reflux prescription again) so now I'm starting to doubt there was a problem.  Maybe I'm just imagining that I don't feel good.  I just want to do the test and get it over with.  Anyone else ever doubt how lousy they are actually feeling?


How Long To Wait Before Testing?

29 April 2013 - 11:55 AM

I only went gluten free for 12 days and then started eating gluten again thinking I wasn't noticing that much of a difference.  I was focusing so much on my joint pain that I didn't realize that my headaches, nausea and heartburn had gone away.  Within 12 hours of re-introducing gluten I had heartburn and liquid diarrhea.  My doctor agreed that we could do blood work for celiac disease if I want. 


Do I really need to eat gluten for 6 months before I can get tested even though I was only off for 12 days? 


How long should I wait before having the tests ordered?


What specific tests should be ordered?

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