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Member Since 30 Dec 2008
Offline Last Active Jan 14 2009 11:23 AM

Posts I've Made

In Topic: Celiac And Interstitial Cystitis

13 January 2009 - 11:00 AM

i am going to look into doing them at home, my poor husband - we just got married this past august and it has been nothing but one thing after the next with my health!!! i have noticed that a lot of people with celiac or IC comes with alot of other crap!

that is so funny - a heating pad is amazing -it is crazy how well it works. some nice lady here in the office just gave me the thing you stick right in the microwave....so nice!

i have noticed that muscle relaxers help when there is a bad flare up.

this diet is so hard! i just had a cookie, no will power what so ever! :blink:

In Topic: Celiac And Interstitial Cystitis

12 January 2009 - 11:48 AM

i didn't mention that the instillations did heart like hell.

no one mentioned me doing it at home?

In Topic: Celiac And Interstitial Cystitis

12 January 2009 - 11:45 AM

Hi - i have had two bladder instillations, i don't know the solutions off the top of my head ...but unf. i went to the doctor the other day and with my new insurance, i cannot possibly afford to get this done weekly. they wanted $600 for the preocedure - i said i couldn't do it anymore.

My plan is to stick to this diet, but its so hard. I cheated and had pizza and man i was sick. but i don't know if it was the dough, the red sauce or the cheese. i get my results from my celiac test on wednesday.
i DO KNOW certain foods bother me, i need to learn to just stop eating them. like it isn't like its just gluten or just dairy or acidic foods - it freaking feels like it is everything :(

my major problem know is the pain i am in, it feels like my utereus is being pulled out and there are like puppies or something trying to scratch there way out. i am at my desk about to cry.

currenly i am taking elmiron and prosed for the IC- i am on some others for my trigeminal neuorlgia (which they only think i have)

idk what to do at this point. i feel very stuck.

In Topic: Celiac And Interstitial Cystitis

05 January 2009 - 01:22 PM

Hi - I just started the elimination diet today...so i am crossing my fingers that it works...

i am supposed to start the bladder cocktail this week again - has anyone tried it?

In Topic: Celiac And Interstitial Cystitis

05 January 2009 - 01:20 PM

Hi Judy - thanks for the response.

I started the Elimination Diet today - so lets see what happens.

My pain is so intense lately, over the counter medication doesn't work, do you recommend anything?

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