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EmmyLouWho?

Member Since 31 Dec 2008
Offline Last Active Feb 02 2009 10:25 AM
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Posts I've Made

In Topic: Is It Celiacs? Or Have I Been Gluttend

02 February 2009 - 10:25 AM

I actually contacted Quaker to find out. Quaker does not recommend any of their products due to cross-contamination. This has been a big one for me to learn. So, generally I do look for things that say gluten-free. But if I have a favorite thing or something looks like it might be okay I make sure to contact the maker. Usually I call right there in the store since there's often a number on the label somewhere. Sometimes checking is a pain but it's completely worth it when I know I can enjoy something and not have to worry about the after effects. I've come to the understand that there just is a level of inconvenience that comes with this disease and I end up making a lot of things now from scratch and freeze in portions. It's becoming second-nature to check labels and take extra time in the kitchen.

In Topic: Cold Sores

21 January 2009 - 09:49 AM

I dealt with cold sores for the last 15+ years myself! It's a terrible problem to have. Thankfully, since going gluten-free, I had one small one and that was all. The only thing I found that has ever helped me is a product called "Kanka". It numbs the area (temporarily) so at least I'd be able to get through a meal without so much pain. My cold sore that I'm getting over happened a few days after I got glutened. Coincidence? In my opinion, no way.

Hope you find some relief and that you don't experience any more!

*lee-lee* - I didn't think the strawberry chex were gluten-free. I might be wrong but as far as I knew only the plain rice chex are gluten-free. I hope I'm wrong for your sake!

ETA: My cold sores are always inside the mouth, never on my lips so Kanka may not work for coldsores on the actual lip

In Topic: Yay!

15 January 2009 - 10:04 AM

Congratulations!! It must feel sooo good to see your baby growing again! My son was just diagnosed in Dec. so we have a ways to go still but I remember how happy I was about 2 weeks ago when he had to go in to the dr. and when they weighed him he was already up 3lbs from his normal weight before being diagnosed (was 26lbs at 2 years old, so tiny, lost about 5lbs being sick, so up 8lbs from that his sick weight!). I think its just a relief to see that your child is finally thriving. I cant wait to see what my son does when hes been on the diet 3 months, 4 months, a year!

In Topic: Anyone Turn Down A Biopsy For Their Child?

13 January 2009 - 11:36 AM

Just wanted to follow up and let everyone know that I took my daughter to another Ped GI DR and he said that her bloodwork was enough to determine celiacs disease- he did not recommend the endo at this time. My husband and I are going to be tested- to see if we have it. I am relieved that he did not insist on the biopsy. My gut feeling told me to go to another Dr. This is my youngest child 7 years old. I have two older children that are 25 and 21 years old now, and I have always followed my gut with their medical care as well.


That's great news!! It must feel great to have a doctor who is understanding and ready to make a diagnosis without the additional procedures. Good thing you went with your gut! I dont think people give mothers instinct enough credit sometimes. And gut instinct doesnt always mean avoiding medical care. I mean, Im the first person to call the dr. when one of the kids has sniffles that last too long .

Congrats on getting the diagnosis though now shell be able to get better!

In Topic: Blood Results

13 January 2009 - 07:53 AM

If youre really having symptoms than youre not the slightest bit crazy. Maybe theres something else.but regardless if you feel like you want to try the gluten-free diet, its always a possibility. If you feel better it cant hurt and if you dont, then you know you need to explore other options. Im sure the frustration is difficult though. While I was waiting for my test results I kept wondering what Id do if they were negative (and I was fairly asymptomatic but knew a lot of things would be explained if it came up positive).

Good luck in being diagnosed (whatever it may be) or to just simply feeling better!