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Member Since 11 Jan 2009
Offline Last Active Nov 22 2009 05:14 PM

Posts I've Made

In Topic: Do I See A Doctor

22 November 2009 - 05:14 PM

Thanks again everyone for your support!
I thought I would update where I at with this....

I've had blood tests and I haven't my results as yet...
Has ultra sound and ct scans...

the ultra sound fount 2.01 lymph node and three other non vascular lymph nodes in right groin
and three non vascular lymph nodes in left groin...
I have the biopsies on these tomorrow.

They found 5 cysts in the liver and cyst on right anexa
bulky uterus with endetrial fluid


So things now really hang on them lymph nodes being begnin ....
but there are no masses of lymphademopathy, which is great news!
if the nodes are malignant, at least we are on top of things , before they could have been far worst!

but Im truly hoping they aren't malignant

In Topic: Do I See A Doctor

16 November 2009 - 08:17 PM

Thank you for your kind words...
They were very much appreciated...
Well I phoned the medical center that I use to visit, and just asked for an appointment with any doctor...
I was given a lovely indian woman. and she listened to me...
Then went sort of mad at me... she said why have you let this go on so long...
I said well the last time I complained about these things, I was told there was nothing wrong...
She looked on her computer to see who I had seen, and there was no notes about anything except a sore wrist that I also had....
I said my husband begged the doctor to look into what is wrong with... that Im deterioting before his eyes,,,and this nice doctor said, I'm so sorry, sometimes us doctors need to do more than just listen, we need to act!...
She confirmed my suspecions, she said that she believes I well could have lymphomia...
She examined me...and also got the opinion of three other doctors, as to what was the quickest roads to take to get on top of everything...
She got me in quick smart to an oncologist , she didn't want to muck around..and asked them to see me fast, because there is normaly a long wait...she is sending me for cat scans and biospys..
All she kept saying to me, is.. Im so worried for you this is very serious . And she kept saying WHY???WHY??? have you let this go on for so long?... I told her the truth, I was scared of being called a hypercondriac.

Now I am glad that I wrote my thoughts and feeling here, because that gave me the power to make myself go to the doctors. I'm not really scared now of any results, all I wanted was to know....if what I suspected was true...or least to just have those things checked so that I wasn't left feeling I knew all along, and noone would help.
So I will cross the next bridges as they come, but I at least feel better that I was listened too.

In Topic: Why Do Some People With Celiac Disease Look So Healthy And Other's Don't

08 May 2009 - 08:31 AM

I got a real indication last week at how bad I must look...
I was at work, I work at a cinema, and I served a lady, I had never seen or known her and she said to me....
Are you alright?..... I smiled at her and said "yeah I'm alright"
she then again said.... Are your sure your okay?... I laughed and said "yeah I'm fine "
She then said "Health wise, I mean?....is your health alright?"

I found this odd to be asked this, and I said, ohhh I have celiac, guess that's a health problem

She said you truly do not look well....

Then the other day my mother in law rang me, and said you need to get more help,
You shocking people with the way you look... she said that my sister-in-law who hadn't seen me in approx 3 months, said I was unrecognizable, she would never of believed that the person she saw standing before her was me...

besides the drastic weight loss, my mother in law went onto say....

you seem like a shell, you no longer have the glimmer in your eyes, you look like noone is inside your body... well not the person we know as always spirited and enthusiastic, that spread infectious laughter into other people... it's so hard seeing you like this, is there anything we can do to help you..
clean your house?... anything..... we want you better, your so distant ,we want YOU back.

If only they knew, I want " ME "back also...................
All my friends make comments, and continually ask me am I alright?..... people have even asked my husband am I dying of something?

So in answer to your question.... I'm so looking forward to looking healthy again!!!...............because with all these types of comments, I must look dreadful!

In Topic: Elisabeth Hasselbeck

07 May 2009 - 08:07 AM

A friend in the US sent me the transcript of the Larry King interview...
I hope I am allowed to post it here?

I am thrilled she is bringing awareness of celiac...But I do hope that she makes it loud and clear
that it isn't a lifestyle choice. From what I read in this interview she really did seem to try her best to tell the importance and the sicknesses that come from being Celiac.

No matter what... she is making people take notice, and trying to educate people, and we need all the GOOD help we can get in getting the message out...


KING: Back with Elisabeth Hasselbeck. Her new book, "The gluten-free Diet." And it says: "A Gluten-Free Survival Guide."

Now, we think of gluten, we think of wheat, right?

HASSELBECK: Sure. Well, it's actually more than that. Gluten encompasses -- it's a protein found in barley, oats, wheat and rye. So it's more broad than most people actually think. So that is definitely a misconception out there.

And I -- I truly -- this has been a decade-long process for me. I have Celiac Disease. And I say out of diabetes came that low glycemic index diet and out of my Celiac Disease, I found this all star diet. I call it my diet in the rough because it is something that, even if I didn't have Celiac Disease, like many others, I would follow this diet.

KING: So you have to avoid what?

HASSELBECK: I actually don't even think of it as avoiding. But for me with Celiacs -- and many do with Celiac Disease -- we, our bodies, it's an autoimmune disease where if our bodies encounter gluten -- that protein found in barley, oats, wheat and rye -- we, our bodies pretty much shut down and fight themselves. What happens is if undiagnosed -- and one out of 133 million people have Celiac Disease. The scary thing, Larry, is that only 3 percent of them know it. Ninety-seven percent of the people with Celiac Disease are not aware of it because of misdiagnosis. They get diagnosed with something else, like I did.

You know, over 10 years ago, I was diagnosed with IBS, thyroid issues. I was having infertility problems. People suffer miscarriage after miscarriage, stillbirth. It eventually leads to intestinal cancer.

KING: All right...

HASSELBECK: So this is something that needs to be treated. But the diet is actually, yes, for people with Celiac Disease. For millions with food intolerance -- and that is up like 25 percent in the past five years. But for people who just want a healthy lifestyle. I mean I'm on this diet before I'm pregnant, during pregnancy and when I'm trying to get back in my bikini to, you know, strut around in the summer.

KING: What -- what happens when you're a kind of -- for want of a better word -- victim of it, at its worst...

HASSELBECK: If they're undiagnosed or do come across gluten and they are Celiacs, their bodies literally are so -- I mean I was in such pain. And doctors were ready to do surgery. They kept telling me I had IBS. I always say emphasis on the B.S. because that wasn't the answer.

It's the -- the equivalent of going into your physician and saying my head hurts and them telling you have a headache. Well, thanks for the information.

I was looking for a clear diagnosis. Thankfully, Dr. Peter Green was able to do that for me and run the proper tests. But it took me way too long to get that when it -- the saddest situation, I think, is when you have children who are encountering gluten when they have Celiac Disease and their bodies aren't growing.

Your intestines aren't able to absorb any nutrients. So you are then predisposed to all of this, you know, intestinal cancer, etc.

KING: Is it...

HASSELBECK: But they're in such pain and deprived of nutrients and they don't grow.

KING: You call it an allergy, but some say it's an autoimmune disease.

HASSELBECK: It is an autoimmune disease. It is absolutely a disease...

KING: It is? HASSELBECK: And it needs to -- we need to get that diagnosis percentage up drastically, because this is actually -- it's so preventative. I mean you have people who aren't celiacs on this diet because it improves everything from ADHD to ADD, depression, energy levels, metabolism.

This is a phenomenal way to eat. I was so thankful to find it.

But when people do encounter gluten who are celiacs, with it leading to diabetes, thyroid disease, intestinal cancer, it ends up costing their body so much more, but also our medical system so much more down the road.

It's a preventative diet. It works incredibly well. I have never felt better in my life. And certainly when I proposed the book, it wasn't the one that people thought I would write, but it is one that comes -- literally comes from the gut and the heart. And I interweave throughout the book easy tips.

KING: Can we test children as to whether they have it?

HASSELBECK: Absolutely. And if you -- if your children are exhibiting symptoms such as either listlessness or irritability, if they have a bloated belly, if they say my -- my tummy hurts, it's most diagnosed in that first year, when parents are introducing food and you're -- you're still vigilant about everything they put in their bodies.

It's in the years thereafter, that two to, you know, the teenage years where you're not really sure what's going on.

If they're not meeting their growth benchmarks, demand a celiac test from your doctors. And if they have it, if your child has it, or a sibling, your chances of having Celiac Disease is one in 22. So you should get tested, as well.

KING: Is it...

HASSELBECK: It's something that, really, we need to improve upon.

KING: Is it inherited?

HASSELBECK: It is inherited. It's a genetic disease. You can get tested both for the gene. You can have an endoscopy. I have the gene. You know, I will have my family tested and my kids tested down the road. It's great information to have.

We are in a new era of preventative testing, so you know what your gene code says, but also preventative eating. I mean I don't think of it as replacing anything and I -- I interview people throughout the book and give social tips. But I -- there are so many that are on it who don't have celiac, like I said, that do it just because of the health benefits alone.

So it's not about removing, it's about replacing with something much more powerful.

KING: One cannot deny an important, important book.

Thanks, Elisabeth.

HASSELBECK: Thank you, Larry.

KING: See you soon.


KING: Elisabeth Hasselbeck, co-host of "The View" and author of "The gluten-free Diet: A Gluten-Free Survival Guide," with a forward by Dr. Peter Green.

HASSELBECK: Thank you.

KING: Thank you, dear.

In Topic: I Cant Deal With This Anymore, Please Help..

05 May 2009 - 03:39 PM

a snicker bar,
a 200g bar of galaxy,
300g of crisps (gluten free ones)
Prawn crackers..
big bag of skittles (200g)
big bottle of pepsi and i was craving bread so much i ate 3 slices :S i feel so ashamed! oh and i had a whole tube of ice-cream in which was gluten free.
Plus the bbq! 3 burgers?

Many here also have problems with soy and dairy and even Tapioca, especially in the begining of going gluten-free

I was also lead to believe that you can drink coke, but can't drink Pepsi, due to ingredients
I know Prawn Crackers has tapioca flour,Skittles has soy , then the ice cream which has milk in it.
As for the burgers, I personnally know I can't eat anything that has been sprayed or the cooking area has been sprayed with canola spray...and can't eat off grills or Bar B Q's where other things have been cooked on it...

It truly is a matter of examining everything.... and eliminating a lot...seems I am eliminating everything , except for fresh veges, fruit, and meat...Because I have learnt that there isn't a whole lot of other items out there I can trust!
I could so relate to what you said about the fact that it gets to the point where you just couldn't be bothered to eat any more...it does become all too hard...I am down to 36kg

I continue to loose 2kg per two weeks , and I have been gluten-free for 6 months now, but really what is the alternative?

To eat gluten and suffer pain and sickness and mind altering depression, tiredness anger , etc etc...

or just depression because you are bloating and depressed about what you can eat...?

I thought the idea of seeing a counsellor at school was a great idea, they may have ways to help you cope at college. But please don't drop out... don't let having Celiac have that kind of power over your future..

A trick that I use, when I get down about things, is tell myself, it's only food... don't let it control your life, do as you should.... you have many other important things in life to be grateful for... people that love and care about you... you have all your limbs, so you can function....and get around .

I know that sometimes it's easier for us to dwell on what we can and can't do, all because of food....and the way it effects us. And we are in that mind set, because of the way it effects our brains and body. But sometimes we need to look outside the square and try and appreciate the things that are important . Like the little things that do make us smile when we are low and depressed and angry and in pain.

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