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Member Since 23 Jan 2009
Offline Last Active Jul 17 2013 12:08 PM

Posts I've Made

In Topic: Panic Time After A Long Time Of Not Hanging Around Here.

17 July 2013 - 06:28 AM

Saw my gastro on Monday. He discounted the probability of food poisoning and is convinced it was a reaction to gluten exposure. He said what I was describing to him was this immune cascade and that I am just extremely sensitive to gluten. That I have had so few exposures in the last five years is a tribute to the support I have gotten from my family (who is not gluten free.. rather.. "gluten lite") and the fact that I have been very cautious  Thing is, right now, I just feel like withdrawing from the world. It took me several years to venture out into social settings at first and, in a way, I feel like I am mentally back to square one with that. I suppose it could be my body's proctective mechanism saying that it's too early to risk re-exposure in light of the most recent episode. Things are not back to normal but are also not near as bad as they were several days ago. Small steps.

In Topic: Panic Time After A Long Time Of Not Hanging Around Here.

13 July 2013 - 08:28 AM

well, for the first time in the last five days I actually slept for more than 45 minutes last night. Made it a little over four. The rash is something I have had in relation to Epstein Barr virus that has plagued me for more than twenty five years. When something pushes me over the edge I will end up with this bloom. I am wondering if something shut down at the cellular level with my energy metabolism. I have been exceedingly weak to the point where I suspect intestinal transit time was a result of things just sliding right on through. I know most would say you need peristaltic action in order for there to be transit time, fast or slow, but to me it felt as if there was no muscular activity save for an occasional severe cramp. I am weak and tired but am now tolerating drinking water without it going straight through and am on my second mini meal of the day. It takes me forever to eat, though as it is tiring me out. To go from having to run to the bathroom every half hour to forty five minutes to now going on six hours is a major relief. Energy has always been a problem for me. I still have a mouthful of mercury amalgams. I know some people tolerate them with no problem but a key to my initial healing a few years ago was when I included a heavy metal detox on a daily basis. I have not been able to do any of this in the last week so I wonder if that is contributing to things. I had five of my largest amalgams removed when I had my root canal teeth taken out a few years ago and the results were pretty startling. My hearing immediately improved and my tinnitus all but disappeared. But, I still have 11 substantial fillings remaining in addition to two porcelain over nickle crowns that are not a good combination. I could run a small radio off my teeth if I were stuck on Gilligan's Island. Anyway, it appears that the worst is over and I will be seeing my Gastro on Monday for whatever followup he deems necessary. Until then it will be lots of napping. Thanks for theconcern and suggestions. The avoiding Anti-diahrreals was, I think, a good suggestion. I was contemplating going that route and am not sure it would have been wise since I am not 100% sure as to the source of this.

In Topic: The New Celiac Drug Is Out There

12 July 2013 - 01:38 PM

"Raise the villi, opening the receptors and allowing gluten to once again be

absorbed by the body."


Is it just me or is there SO MUCH wrong with this statement, scientifically?

Uh, tons wrong with it! We get into so much trouble when we try to outsmart the innate intelligent our bodies possess. Lack of clear thinking gives the (P)harmaceutical industry the opening to exploit our lack of total understanding. If you parse the numbers in almost any safety study you will find the risk numbers being calculated on one scale and the benefit numbers on another to make it appear so much better than it actually is. The simple answer. Gluten free. Simpler answer, real food, even simpler, grow your own or get to know a local farmer. Create micro economic climates that don't support the industrial food complex that is ruining the health of a world.

In Topic: Sun Sensitivity

12 July 2013 - 01:32 PM

In the early days of my recovery (and leading up to it for many years) I seemed to have lost the ability to handle any sun exposure. I would burn easily and had to be very cautious. Have they been monitoring your vitamin D levels as you recover? I was put on megadoses of D3 and still my D levels were not adequately recovering. When I added a lot of healthy fats and cholesterol from trusted sources, pastured butter, coconut oil and lots of pastured eggs and stayed away from vegetable fats like crisco, corn oil, canola oil, soy oil, cottonseed oil, my D levels began to rise and I was able to begin tolerating sun exposure once again. I went from being pale and pasty to having a more natural color year round. I don't overdo exposure but certainly tolerate it much better now. The paradox of sunscreen is that you are spreading a toxic substance on the body's largest organ that blocks the body's ability to synthesize vitamin D naturally. The mechanism of producing it requires ample supplies of cholesterol, so if you are trying to eat low fat/low cholesterol it seems you would be setting up the mechanism where you remove the very things that the skin needs sun exposure to make for good vitamin D levels. Vitamin D which is now being understood to be crucial in the prevention of all sorts of disease mechanisms.

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