This is interesting and I'd like to hear what your GI says. I have a 17 month old who was diagnosed last month with Celiacs. Shortly after we took her off gluten, she started to have these "spams" where she grits her teeth, shakes and turns red in the face. She'll have anywhere from 0-10 spasms a day and they only thing we see in common is a level of frustration before they occur. We videotaped her and showed our GI, our ped and a neuro and no one is sure what it is, and no one thinks it looks like a seizure. We're seeing the neuro this Tuesday for a consult.
Even though your daughter's symptoms are somewhat different, I do wonder if there is something causing these (possible) neurological episodes. Keep me posted and I'll let you know how things go with our appt. too.
Hope you can find some answers.
Thanks! I hope so too. My daughters main symptoms were neurological, she had very bad neoropathy and ataxia both of which have improved greatly. She always had a tremor though and thats not gone. She's been tested for everything, which her GI is redoing now. He suggested that it could be brain calcification which is what happened to my mother with her lupus, so I'll be requesting a neuro referral and then I guess wait and see. Good luck at your appt. Feel free to email me if you'd like to talk more about this