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Member Since 27 Jan 2009
Offline Last Active Jun 25 2009 04:38 AM

Posts I've Made

In Topic: Neuro Symptoms

14 June 2009 - 03:56 PM

Hi Valerie,

This is interesting and I'd like to hear what your GI says. I have a 17 month old who was diagnosed last month with Celiacs. Shortly after we took her off gluten, she started to have these "spams" where she grits her teeth, shakes and turns red in the face. She'll have anywhere from 0-10 spasms a day and they only thing we see in common is a level of frustration before they occur. We videotaped her and showed our GI, our ped and a neuro and no one is sure what it is, and no one thinks it looks like a seizure. We're seeing the neuro this Tuesday for a consult.

Even though your daughter's symptoms are somewhat different, I do wonder if there is something causing these (possible) neurological episodes. Keep me posted and I'll let you know how things go with our appt. too.

Hope you can find some answers.

Thanks! I hope so too. My daughters main symptoms were neurological, she had very bad neoropathy and ataxia both of which have improved greatly. She always had a tremor though and thats not gone. She's been tested for everything, which her GI is redoing now. He suggested that it could be brain calcification which is what happened to my mother with her lupus, so I'll be requesting a neuro referral and then I guess wait and see. Good luck at your appt. Feel free to email me if you'd like to talk more about this

In Topic: Neuro Symptoms

14 June 2009 - 03:51 PM

Could it be milk?

My grandson had a seizure from gluten and has autistic symptoms from milk. Soy and corn both cause almost immediate meltdowns.

I don't believe that it's milk. It could be, but she did a lactose test and was free and clear so I don't think milk is an issue. But I am nervous that it could be seizures, the GI said that it's possible she has calcification in her brain. When I thought about it my Mom had very severe lupus and she had calcification and seizures that started out similar. So I'll be requesting a neuro referral and then I guess we'll go from there.

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