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Member Since 31 Jan 2009
Offline Last Active Mar 05 2009 05:36 AM

Posts I've Made

In Topic: Well Meaning Stores, Restaurants And Friends - What Do You Do?

25 February 2009 - 07:04 PM

THANKS EVERYONE! I still have pain today, but I am hoping it will improve tomorrow, last week it took 2-3 days to get better> I will have to get comfortable with a firm NO.

How do you all deal with vacations? I am so lucky to be able to go on one! My husband has a business trip to Puerto Rico and I get to go - BUT HOW ON EARTH AM I GOING TO EAT?

In Topic: Residual Symptoms Or Slip Ups?

24 February 2009 - 07:19 PM

The way your post was worded, it wasn't 100% clear that a cake was served for your birthday that you couldn't have - I agree that's awful! The pizza isn't nice, but its not horrible because everyone shouldn't miss out because you can't have it - but why not ask whether there is something that could be ordered for you. Otherwise bring something! Good luck!

In Topic: Help How Common Is Abdominal/digestion Pain - Sometimes Severe?

09 February 2009 - 07:03 PM

Great fast responses - THANKS SO MUCH! Actually the pain was very very severe from the time I gave birth 8 1/2 weeks ago (and has surgery, two likely triggers, not to mention the stress of child number FOUR) until I went to the ER (3 1/2 weeks ago) and I was given "bowel rest" - basically I was starved and that helped the pain, but in hindsight it accelerated the malnutrition, I suppose. Anyway, the pain has been less severe in the last 3 weeks and I am slightly stronger since starting the diet but it is going VERY slow!.

QUESTION - just to clarify, you all had severe pain and it was pain to the touch as well as digestion pain? I am going to keep working on whether there is something else going on, but I am relieved to hear that what I have had could be attributable to Celiac and there doesn't have to be something else wrong.


In Topic: I Get Neurotic Every Time I Eat

08 February 2009 - 02:50 PM

I am so with you! I was just diagnosed 2 weeks ago and I am freaked out by eating out and JUST NOW I am sick. I think it is this: I was being smart and brought my own lactose free milk to a coffee shop in a thermos and paid them to just steam it for me. This is probably the stupidest thing this group has ever heard of, but it seemed like a good plan to me. Now an hour later I am in pain. I think the coffee shop must have steamed my milk and contaminated it while doing so. Rookie mistake I guess. I guess I can never get anything from the barista at a coffee shop again. I have been a Starbuck addict, but I guess you cannot trust anything they make behind the counter, huh?

Anyway, I agree with you this is so scary. And I am wondering whether every time I make a mistake I am setting myself WAY back and have damaged my intestines again and caused inflamation and am back to square one?

Do you go back to square one each time you make a mistake???

In Topic: Celiac's And Vitamins

03 February 2009 - 05:55 PM

I got a fever, sinus congestion, body aches, and sore scratchy throat.

Sorry you are having those problems! Since you are not having digestive symptoms, it does sound strange! I am a total rookie, just diagnosed a week ago, but no harm in offering an idea. I have been taking gluten-free gummy vitamins that I bought for my kids. They taste okay, are soft going down (which has been important for me because I have major belly pain) and since you have to take several to get a full dose, you could start with just one and see whether it has any adverse effect before going to the full dosage. Maybe the very gentle version would agree with you better.

Good Luck!

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