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Member Since 31 Jan 2009
Offline Last Active Mar 05 2009 05:36 AM

Topics I've Started

Quick Question - Gluten-free Beer And Food

01 March 2009 - 02:52 PM

I had some Redbridge and had a reaction. The beer is made with yeast, could that be causing a reaction? I understand yeast isn't always gluten-free? Are there some gluten-free beers that are better than others for Celiacs?

Also, I bought some Amy's brand items that say GLUTEN FREE in bold on the container and then have a disclaimer saying that it was processed where they also process wheat - don't these things contradict each other??? I sent them an email, but I am afraid to eat any of their food.

Any thoughts or ideas would be GREATLY appreciated!

Thanks so much for your thoughts/feedback!

Diagnosed 5 weeks ago after birth of 4th child, anemia, low pregnancy weight gain and rapid weight loss after delivery (15 lbs below normal weight). Slowly recovering now.... saw 10+ doctors before diagnosis, was told I had post-partum depression for months...

Well Meaning Stores, Restaurants And Friends - What Do You Do?

24 February 2009 - 07:44 PM

This past Friday a friend took me to an earth center store/restaurant that was supposed to be "great" and caters to vegans and those on special diets. I was very careful with my selections and was ASSURED what I ate was gluten-free - well I was sick all weekend. Obviously it wasn't. Now that I am feeling better, I had a friend over for lunch (I now have everyone over instead of going out to avoid being glutened) and she brought me a tiny cake from a bakery in New York City that they told her was gluten free - I even called them myself to confirm it was gluten free. I still was reluctant to eat it, but the friend pressured me telling me she bought it especially for me and checked it out and it was made with amond flour... now I sick AGAIN, and literally crying, WHY did I take the chance? I was finally starting to feel better. I am just a month into this and beginning to put some weight back on and starting to sleep at night and having fewer anxiety attacks/panic and each of these episodes sets me back so much. Does this happen to others - it's so frustrating!

Who do you trust, how do you know if your safe when told something is gluten-free. How do you deal with friends who want to "help" you? I feel bad for other people who mean well and urge me on, saying "here, you need to add things to my diet." Why would I take a chance to appease them? When I say no, even with an explanation, they look dejected because they were working hard to help me and find things that are safe for me. I thought my friend was going to cry when I wouldn't eat the cake so I just had a small slice and it has cost me dearly - how stupid!

Remedies For Gas/bloating/pain? Butter/oils To Use?

11 February 2009 - 08:14 PM

Do we have to suffer while we heal or if we mistakenly eat something that triggers painful gas and bloating. Are there any remedies for that pain or symptoms that are gluten-free and worth trying? Would Tylenol help with pain? Is there a gas remedy that is gluten free and doesn't have sweeteners that are hard to digest? Does Pepto help? Digestive enzymes? Herbal/Digestion teas, Digestion gum?

I am finding that the butter alternatives I have always used are not agreeing with my now fussy system - is real butter the best or are there any other good options?


Help How Common Is Abdominal/digestion Pain - Sometimes Severe?

09 February 2009 - 02:41 PM

I had SEVERE abdominal pain for weeks and eventually noted that it seemed associated with eating and stooling. The pain has subsided to some extent, but I did have an attack yesterday. The pain is inside AND to the touch, its so bad I cannot wear any pants because the waist hits me where it hurts. The doctors have said they find this odd and they don't see Celiac patients with severe abdominal pain like this.

PLEASE let me know what you think. I am struggling with anxiety and even though I have a firm Celiac diagnosis, after 2 weeks and 2 days gluten free, I am still VERY weak and tender above the navel, cannot wear any pants and have gained little weight. My appetite has come back a bit, but I wouldn't say its good. I know everyone is different, but has ANYONE here had this kind of experience? I worry that there is something else the matter??!!

Thanks for your help!

Peter - Quick Note On Endoscopy Pathology

04 February 2009 - 07:25 PM

Thanks so much for your help! I hope you are doing well - you are dealing with a lot and you seem so on top of it - an inspiration!

As a follow-up to your post to me on healing - I posted to you that my GI said that the pathology report doesn't tell you how "bad' your disease is, it just confirms your blood work - which in my case was pretty conclusive without the endoscopy. You responded that your GI was able to tell you that you had a particularly severe case. Well, of course, YOU were right and my (former) doctor was not. I have now read my own pathology report which specifically states that I have "severe villius blunting" if all cases were the same, why would the pathology say severe? In addition the GI doctor has been truly nasty and unsympathetic all along; I am not going back to him! Every day I am learning how much more Celiac patients know than the doctors who are treating them!

Now that I am "listening" to my body more, I think I am having problems with uncooked veggies and lactose. I am hoping I am able to deal with these foods after some healing!

I am grateful!


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