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Bookie53463

Member Since 01 Feb 2009
Offline Last Active Sep 12 2010 08:01 PM
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Topics I've Started

Celiac Belly Or Just Fat?

07 September 2010 - 05:13 PM

Hi Everyone,

I'm just curious as to your opinion as to the nature of my abdominal discomfort/bloat/visible distension.

Basis stats
Age: 29 years old
Height: 6'2''
Weight: 173 lbs

Celiac History
1) Experienced abdominal discomfort/bloat/visible distension & constipation for years until via high antibodies and biopsy confirmed celiac disease at age 25
2) Went on a strict gluten free diet for 2 years. Only my constipation moderately decreased which never really bothered me. I ultimately completely lost my appetite from being gluten-free and went off the gluten free diet a few months later after losing lots of weight (I understand there's an increased risk of cancer, etc. when going back to gluten, but that doesn't really concern me actually).
3) I take miralax everyday which largely treats the constipation but doesn't really affect the abdominal discomfort/bloat/visible distension which bothers me very much. As a result of this distension, even though everyone thinks I'm very thin, I can't really wear a belt tight at all and need to wear loose clothing all the time or I would indeed get much more constipated and uncomfortable.
4) I also have some degree of urinary incontinence which I think is related to some element of muscle weakness from this bloating/distension as it's difficult to really empty my bladder


My questions
1) Do other celiacs out there have a symptom pattern like this?
2) Do others think this is just fat?
3) If it were just fat, would it really be that uncomfortable to wear even a slightly tight belt? (I can't imagine fat people are in extreme discomfort most of their waking hours when wearing a belt)


I know many will likely respond with "you really should be gluten free" and/or "you weren't gluten free enough". All I know is that being gluten free made me feel worse and that I researched the contents of everything I put in my mouth for 2 years which largely meant I didn't out at restaurants except those which specifically catered to celiacs. If I would need to be stricter than that, I'd just as soon need to wear a respirator outside for fear of inhaling a tiny gluten particle when walking near a bakery. That's not a life, it's a recipe for depression.

thanks guys



I've put a few links to pictures of my gut and a little video if you care to look.

Pics:
imgur.com/2WC1k.jpg
imgur.com/ccj87.jpg
imgur.com/k8FrA.jpg
imgur.com/ulZJr.jpg

Video:
vimeo.com/11252511