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bunzilla

Member Since 01 Feb 2009
Offline Last Active Apr 30 2009 05:54 PM
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Topics I've Started

Endoscopy Results

10 April 2009 - 06:46 PM

I had an endoscopy six weeks ago. Before I had it done I talked to the surgeon about the fact that I was already diagnosed with DH through blood work and skin biopsy from a dermatologist. I specifically told him I already knew I have celiac and needed to have biopsy done to rule out things like cancer. After surgery GI said I should get results in a couple of weeks.
Six weeks later his nurse calls to tell me they had no results due to insufficient sample material.
She wanted to know if I wanted to schdule an appt. with GI, I asked for what reason, she replied good question, but she thought to discuss doing it again. I didn't know what to think, my head was kind of swimming a the time. The thought of going through all that crap again, the expense, the day off work, needing a ride home from hospital. Not that it was painful or anything, just the hassle,you know? I told her to have the GI call me. she said she will but he's on vacation till next week.
So, my question, do I need to redo this procedure? My work just changed ins. with a much higher deductable so there will be significant expense. I know money shouldn't be a factor, but it does play a part. Especially if it's not really needed.
I haven't discussed this with my dermatologist yet, I have an appt. in a couple weeks. I will seek his opinion on the matter and also my pcp's opinion. I just thought I would poll you fine people for some insight in the meantime.
Ths forum is a great tool and a wealth of knowledge that I have used often.
thanks for any input.
E.

Dapsone

01 February 2009 - 01:37 PM

I'm new to this so any help is much appreciated. I was diagnosed with DH about ten days ago by having a biopsy on my arm and bloodwork. I did begin eating gluten free even prior to test results. I was given a perscription for dapsone with instructions to start with 3 a day and work my way up each week to a total of 6 a day (25mg. each). Even before I started the dapsone I noticed improvement in my rash. I have had no new blisters since. No itching, redness or anything. OMG what a relief after 8 Mo. of suffering
So, i'm due to increase the dapsone to 4 a day and I'm wondering if it's nessesary. I don't like to take any more than I have to but was wondering if I need to build up my immunity with increased doses, or, since I have no new symptoms, I could level off the dosage or maybe even decrease it?
thanks,