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Member Since 14 Feb 2009
Offline Last Active Jan 07 2010 06:32 AM

Posts I've Made

In Topic: Anyone Unemployed Or Divorced Because Of Celiac?

19 February 2009 - 07:45 AM

I probably went almost 40 years undiagnosed. I am 41 and we think I got it when I was 3. It has had an enormous, incalculable impact on my life. I have managed to cobble together a family and a reasonable-looking career but I've spent days on end in an exhausted depressed dyspeptic fog telling *myself* I was being lazy. I have never actually been divorced or unemployed but I've had relationships fail and haven't done as well in my professional life as my skills would seem to suggest. By way of example: I got into one of the top universities in America based on intellect and academic potential... and then stressed myself into an Addisonian crisis halfway through and graduated by the barest skin of my teeth, with a couple of eminent professors shaking their heads at me and mumbling about "such wasted potential".

It would be easy to carry a lot of anger and resentment around this as I work through the diagnostic and gut-healing process, but I'm not going to go there. I am looking forward to spending the rest of my life making up for lost time and determined to be grateful to have discovered it while my sons are still young -- not only so that I can enjoy my time with them, but so that if they have it (I have 3 sons, we suspect it in 2, testing is forthcoming) I can spare them from the worst of what I went through.

In Topic: The More I Research, The More It Seems Candida Is Always The Culprit

19 February 2009 - 07:24 AM

My sense, and this is possibly unkind and unfair, is that "candida" sells an awful lot of supplements and books, and provides a lot of possibly-false hope to people who have clusters of symptoms that regular docs can't seem to deal with. I am highly highly skeptical of the whole thing. I am especially highly skeptical of it because if it panned out scientifically (and were really as pervasive as its proponents say it is) it seems like it'd be a golden area for someone like Pfizer or Merck to tool up a superdrug to attack it, and yet no serious research is known to be underway on that front.

In Topic: Addison's - Banana Sickness Question?

15 February 2009 - 03:09 PM

Anyway, Addison's is just one of many diseases which is linked to Celiac. It wouldn't surprise me if everyone with Addison's actually has Celiac. After all, a misdiagnosis is typical.

I've had Addison's since 1987 and am currently awaiting test results to see if I have Celiac.

I am wondering if you mean that you believe that everyone with Addison's ALSO has Celiac or that they are misdiagnosed and do not actually have Addison's?

The former is an interesting question. I suspect the answer is that lots of people with an "autoimmune" diagnosis for primary Addison's -- and who don't have it as part of a larger polyendocrine disaster -- probably have the flavor of Celiac that clobbers pantothenic acid levels. Current research says that about 1 in 10 of us have Celiac, but most Addisonians who follow the research (which is most of us, because our endocrinologists don't know squat about us) think it's probably more like 30-40%. I DON'T think it's 100%.

The latter question seems... well, you know how various medical authorities tell you that Celiac can cause "permanent organ damage"? Primary adrenal insufficiency aka Addison's IS what happens when the organs in question are your adrenals. Tossing the white bread ain't gonna restart my adrenal glands, y'know?

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