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Pegleg84

Member Since 18 Feb 2009
Offline Last Active Jun 17 2015 12:24 PM
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Posts I've Made

In Topic: Gluten-Free Barley? What The Whaaat?

17 June 2015 - 11:40 AM

The very idea that you can "breed" the gluten out of barley is pretty incredible. Indeed, if the testing is correct, 5ppm is ok for most Celiacs (though not me). Good on em! As long as it's marketed as still containing trace amounts.

 

I, however, am one of those people who can't handle the mysterious "gluten removed" beers, and though a beer brewed with this low-gluten barley would probably have less PPM, I probably still wouldn't touch it. There are quite a few good completely gluten-free beers out there now.

 

Still, Science! It's great there are people out there working on these problems.


In Topic: Advice Please

05 June 2015 - 07:27 AM

Bartful is right, you have to take charge of your own decisions and your own health. However, if you and your man are going to be able to coexist in the long term, he has to support your need to have a safe home.

 

so: take over the kitchen. Clean it from top to bottom (make your man help out too), make a separate area for gluteny foods where they won't get in your way. Buy a new toaster, get separate pans and things, or switch to stainless steel. Make sure to label jars of stuff that could be cross-contaminated. Try to get him to eat gluten-free stuff rather than the other way around. Make gluten the "special" food, and yours just normal food. Eat more whole foods (veg, meat, etc) that don't have any flour anyway. Find a gluten-free treat you both like. Oh, and don't forget teeth-brushing before kisses.

If he can't handle that, then it ain't going to work out. Your health is more important!


In Topic: Gluten Ataxia

05 June 2015 - 06:21 AM

I know exactly what you're going through.

 

the dizziness might be slight gluten ataxia (I get it mildly too), but anxiety and panic can definitely be a symptom. For me it hits a few days later: anxious, panicky, and depressed, and then more anxious and depressed because you feel like crud because of the anxiety and on it goes in a horrible spiral.... It sucks!

 

first thing's first: be as strict with your diet as you can possibly be. there's no reason you can't pursue your career dreams, but it will require a lot of planning, making sure you are able to make or access safe food, etc.

 

Getting gluten out of my life (and soy, which also sets off my anxiety) made my anxiety 85% better... I say that because it is possible that it's not just the gluten causing the anxiety and if it's really bad, you should talk to a professional psychologist/psychiatrist about it. Even if it's only gluten that sets it off, learning some skills to cope with the anxiety could be a huge help. (I'm going through cognitive behavioural therapy treatment right now, to help with this very problem. It's supposed to help retrain your brain and body not to freak out about the syptoms of panic. So far so good, even just breathing properly helps)

 

Anyway, breathe! The anxiety will pass. Celiac sucks. Getting glutened sucks, but it always feels worse and more insurmountable when you're in the thick of it. We're here for all your venting and advice-seeking needs


In Topic: I Feel Different When I Cut Out Gluten But I Still Feel Bad

19 May 2015 - 08:53 AM

I also have trouble with anxiety, which was much worse before I went gluten free, but is still something I have to deal with 6 years on.

 

A few possibilities:

- as others said, you might need to be much more strict with your diet. Go through your kitchen and throw-out/replace anything that could be contaminated. Try cooking for yourself for a month to see if that makes a difference. cross-contamination might not do much once, but if you're eating out frequently then you could be getting hit more than your gut can handle. It's hard, but a full cleaning out can really make a difference.

- you could have another intolerance. I've had to cut out dairy and soy. Soy especially gets my anxiety symptoms going. You could try cutting one or both out for a few weeks and see if that makes a difference. Maybe it's something else? Try keeping a food diary and seeing if anything sets your anxiety off.

- the third, and maybe more difficult to face, is that you might have an anxiety disorder that might be affected by gluten, but isn't going to get better with diet alone. Talk to your doctor, or see a psychiatist about whether therapy and/or medication might be right for you. Honestly, it took me a long time to accept that my anxiety was more than just my gut being unhappy. There's help out there.

 

Anyway, it can be a lot of work to get it all figured out, but it's worth it in the long run.

Good luck!


In Topic: New Here..and Already Messing Up?

24 March 2015 - 10:16 AM

Welcome to the club!

Orange juice, if straight from a sealed bottle, is highly unlikely to have gluten or soy, but it can irritate your stomach because of the acidity. 6 years in I still have trouble drinking too much orange juice because of the acidity (I get gastritis on occassion and acidic things are no help).

Great to hear your feeling a difference on such a short time gluten-free (I was the same), but be aure to treat your stomach very gently for the first while. It's going to take some time to heal, but if you know what to do from the beginning, it will be much easier.

 

Good luck!


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