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Pegleg84

Member Since 18 Feb 2009
Offline Last Active Apr 08 2014 09:27 AM
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#873922 Celiac Vaccine? Not For Me

Posted by Pegleg84 on 11 June 2013 - 09:02 AM

Really, calling whatever drug therapy they're trying to develop a "vaccine" is a misnomer. If I'm not mistaken, a vaccine protects you from contracting a disease in the first place, usually a contagious one (flu, measels, malaria, etc etc). In order to prevent someone from getting Celiac disease, you'd have to change their genetics!!

 

Just a point.

 

And yeah, wherever this "90%" business is coming from, I'd like to know. Eating entirely gluten free is NOT impossible. A lot of work, but we do it.


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#873655 Okay Curious Anyone Feel Sicker In The Summer

Posted by Pegleg84 on 10 June 2013 - 08:53 AM

No problem. Glad you're feeling better


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#873195 Okay Curious Anyone Feel Sicker In The Summer

Posted by Pegleg84 on 07 June 2013 - 09:26 AM

It could be that you did get into something you shouldn't have during your vacation, and it didn't hit you until you got back. Could be the acumulation of possible CC, bad PMDD/period, the weather, stress, etc etc. Now, if you broke your toe I hope you got that checked out. But like Brandiwine said, don't run to the doctor just yet. Take care of yourself for a couple weeks, or even a month, and see how you're doing then.

 

I had a horrible time right after the xmas holiday this year, after at least one known glutening. I was so sick! It took me over a month of not eating anything that didn't come from my own kitchen to really feel back to "normal", and I also get bad anxiety with CC.

 

So, take a breath, get your toe looked at, make some ginger tea, and chill. You'll hopefully be ok.

 

hugs


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#872320 Okay Curious Anyone Feel Sicker In The Summer

Posted by Pegleg84 on 03 June 2013 - 09:27 AM

I definitely have trouble with humidity. It's a bit better since going off dairy and soy, but it can mean sinus headaches, balance problems, nausea, not fun. I'm not looking forward to the summer, when it gets so stuffy that I basically haul myself between home-subway-work and try not to pass out.

 

I'd recommend drinking lots and lots of water, keeping your vitamin levels up, etc. It could partially be dehydration. Ginger might help your stomach.

Hope you make it through the day!


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#871407 My Only Celiac Friend Started Eating Gluten Again, And I Feel Alone.

Posted by Pegleg84 on 29 May 2013 - 08:29 AM

I have a few friends who are Celiac, and several of my family are as well. Mostly I worry about my sister who isn't as strict with the diet as she should be. It's her choice, and her health, but I'm afraid of the long term impact. I think she's trying harder right now, but she definitely cheats.

 

You can't make your friend's decisions for her, but you can be a good example and show her that you're sticking to it and doing good. Hopefully she'll come around before too much damage is done.


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#870479 The New Celiac Drug Is Out There

Posted by Pegleg84 on 24 May 2013 - 08:36 AM

Any product claiming to be a "cure" "vaccine" or "solution" to Celiac disease I look at with a great amount of scepticism, If someday a drug is developed and tried, tested and shown to actually work, then I'd be willing to give it a shot. But I would not put myself through a trial and take the risk of ruining my health. Also, I won't take drugs of any sort unless I actually need them (side effects, evil pharmaceuticals, costs, etc etc...). I hope the woman in the original article doesn't run into problems down the road with her "trial"

 

As for enzymes, allegedly there are some out there that help prevent or lessen the effects of cc. I have not tried these, so have no idea if they have any effect. I take digestive enzymes to help digest my usual meals, and it definitely helps keep things moving properly. It may help somewhat if I accidentally get glutened or soyed, or eat a small amount of dairy, but I still feel it.


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#868638 Favorite Emergency Food

Posted by Pegleg84 on 14 May 2013 - 09:34 AM

I'm kind of bad at remembering to replentish my emergency food supply.

 

Larabars. They have saved me many a time.

Chocolate. as in a piece or two off a good dark chocolate

 

Avocado. All I need is a knife and a spoon, really.

Nuts

Corn chips, or any gluten-free chips really

Banana

Hummus

 

Sometimes I make popcorn (on the stove. I got a whirley pop. I love it) and save extra in baggies.

 

Nothing's wrong with a quick bowl of cereal or piece of toast with peanut butter.


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#868635 Battling No Food

Posted by Pegleg84 on 14 May 2013 - 09:21 AM

(is it odd that the OP hasn't replied at all? Probably scared them off)

 

Well, obviously and unfortunately this does not seem to have been a hypothetical. And yup, if you've put yourself in a situation where there's absolutely nothing in your house, or even someone else's house, that you can eat, you're just going to have to suck it up and hold out until you can get to the store the next day. I hate being hungry, get all foggy headed and weak and awful, but I'd rather be that temporarily than eat gluten and suffer for several days.

 

Tough love is tough, but if you don't have your act together by now, well... that's pretty unfortunate and you really should look at why it keeps happening.


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#866626 Multiple Intolerances And Restaurants?

Posted by Pegleg84 on 03 May 2013 - 10:08 AM

You're in Chicago! which is about the best place to be. I was there for the first time a few weeks ago and ate out all weekends with no problems at all! Then again, I can eat corn...

However, it seems a lot of restaurants there are more knowledgeable and accomodating to food intolerances. I might even have seen "corn free' options at The Chicago Diner, but don't quote me on that. If you're wondering if a restaurant can cater to you, give them a call, talk to the cooks, find out your options and if they can do something special for you.

Eating out for you will be a very occasional thing, which means you should take the time to get something really good.

 

Oh, there's an italian retaurant called RPM that supposedly does their own housemade gluten-free pasta. Might be worth checking out (I know I will next time!)

 

Good luck!


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#859310 My Trendy Friend

Posted by Pegleg84 on 19 March 2013 - 09:13 AM

Holy shite this chick is going to turn into a waif and blow away in the wind if she looses any more weight. I'm about 115(ish. Haven't weighed myself in forever) but I'm 5'1"! and if I lost any more I'd start worrying that gluten was sneaking into my diet (I lost a lot of weight dangerously fast before going gluten-free)

 

I'm also of the idea that if you're going to go gluten-free, whether to see if it will help your health or what have you, then you'd better go full-out. If you're just going to cut back on bread/pasta/etc (which people should do anyway to have a healthy diet), then don't claim to be eating gluten-free. I tell people thinking of trying gluten-free to only do so if they think their health might benefit. Otherwise, a balanced approach is best.

 

Kareng, I hope your friend comes to her senses, not just about the gluten-free thing, but that she's endangering her health by eating so little!


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#854030 Living Normally While Battling Celiac Is Like:

Posted by Pegleg84 on 15 February 2013 - 10:02 AM

There's really no such thing as "normal" in my mind, but there's feeling good and in control, and that was definitely not the situation when I first went gluten-free.
Before going on the diet, it was like drowning in a really stagnant pond, occasionally getting to come up for air. After going gluten-free, it was like I could swim again. It;s still tough, takes concentration, new obstacles pop up (dairy, then soy, then...) but you get used to it and grateful that you feel better! Things aren't perfect, and you might not be considered "normal", but it's 10 times better than before, and that's all we can ask.
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#853466 What's Soy Doing In My F*ing Tea!?

Posted by Pegleg84 on 12 February 2013 - 07:34 AM

So, I'm chilly, and went to make a cup of some nice blackcurrant Stash tea I got a while ago, and took a glance at the ingredients, and low and behold! Contains: soy.
WHAAAT?? Why the hell is there soy in f*ing tea?!
Well, now that it's donated to the communal office tea, who else has noticed soy as an ingredient in teas (or other unusual things), and what brands/kinds should we soy-intolerants avoid?
I know barley can occasionally be an ingredient, but soy? really? it's probably in the flavouring.
No wonder I felt a bit iffy the first couple times I had some.
i guess I'll be staying away from Stash, and scrutinizing tea labels.

Damn you soy!! *shakes fist at evil nemesis*
Now i'm still cold... ergh

Venting
Peg
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#852139 Let's Be Trendy!

Posted by Pegleg84 on 04 February 2013 - 10:15 AM

It's definitely a double-sided issue. I also have problems with those who eat gluten free, but don't take it seriously. If they are doing it to help their health, then it should be all or nothing.
At the same time, the level of awareness is so much better than it was even couple years ago. I can usually say "gluten-free" and they have some idea what I'm talking about, though even then at restaurants I have to be very diligent to make sure they follow through with requests (I said no bread, not bread on the side, or stuck in my curry, thank you. And no, couscous is NOT gluten-free...)
However, Wheat Belly's popularity might be getting out of control. As much as not eating wheat or gluten might help all kinds of non-celiacs, throwing yourself into a limited diet, or changing so much without a good reason can also be dangerous. Your gut might go, hey, that bread was treating me just fine. What are you doing throwing all this new stuff at me all of a sudden.
Trying out the gluten-free diet is always worth a shot, but if people don't feel any difference in a couple weeks, then likely the best thing is to just keep eating healthy, whole foods and grains.
For us, this is not a fad. It's a life-long prescription.
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#851641 Back On Track (And What Next?)

Posted by Pegleg84 on 01 February 2013 - 10:08 AM

Hi All

Just wanted to check in with an "experiment" of mine. I wreacked havoc on my gut over the holidays (ccd, butter, horrible NYE sickness, ergh), and decided that in order to heal, I had to not take any risks.
So, I have cooked every last one of my meals at home for over 3 weeks, and only one meal out in the past 4 weeks at least (which my gut didn't like very much, but didn't seem to result in a glutening/soying, so that's good)

That means I know for (almost) certain that I haven't consumed any gluten, dairy, or soy in that time.
Verdict: Better. No horrid pains or bad brain fog after meals (still some mild sleepiness depending on how much I ate). I've had some constapation, but everything seems to be digesting.
I'm not 100% by any means (but it's the middle of the winter. Who isn't a little sluggish), and my stomach is still irritated by random things sometimes (bananas? whaa? and too much spice), and I've noticed that chocolate give me a bit of a headache (hopefully not a precursor to inheriting my dad's migraines), but mostly better.

So, what next?
I can't realistically never eat out again (I could. I know a lot of people here have to, but it's not worth it for me), but I can be extra careful of the places I choose and what I decide to have. Save it for date nights and travelling.

At this point, I don't think there's any other foods I need to cut out, though I aparently need to go easy on spice and acidic things, can't have more than a couple drinks at once, which tells me the gastritis that showed up on my endoscopy in the fall may not have completely healed? Since my first gastroentrolonogist visit was kind of a flop, should I try to see someone who will actually check things out again to see if it's healing or not?

Another question is now that I've gotten things straightened out again, would it be worth trying to reintroduce some things I've been avoiding, like quinoa (after last summer's horrific quinoa incident) and brown rice. I don't know if I'm intolerant to these, or just that my stomach wasn't in a state to handle them at the time?

Anyway, and advice or encouragement or whatever would be helpful.
If nothing else, I've saved lots of $ on food this month!

Thanks guys
Cheers
Peg
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#851244 How To Navigate Living In Asia - Gluten Free

Posted by Pegleg84 on 30 January 2013 - 10:14 AM

I lived in Japan for a year pre-diagnosis, and I've always wanted to go back. Being able to manage the diet is the one thing that's keeping me away (I'm soy intolerand now too!)
However, if you've lived there a while and have a decent grasp of the language, it should be easier to at least navigate the supermarket (I can just imagine myself spending 2 hours trying to decipher kanji...)
Remeber: not all tamari is wheat-free, but there are more wheat-free varieties out there than there used to be (at least I've seen some in import shops here.) I believe Kikkoman has one now, but I could be mixing up brands.
Be careful of sauces in general. I'd say buy ingredients as raw as possible and make your own. Also, no seasoned nori (usually has soy sauce= wheat)
Oh, and aparently someone there is making gluten-free ramen/soba/etc noodles. They have some at the Japanese food store here in Toronto. I can't remember the name, and I haven't tried it yet, but you might be able to ask around.
You can do tempura with corn starch and/or rice flour.

Anyway, as Shadow said, don't go off the gluten until your testing is done (which means time to go out and enjoy whatever you can.)

Good luck!
Peg
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