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Member Since 18 Feb 2009
Offline Last Active Aug 13 2014 09:55 AM

Topics I've Started

Helping A Fellow gluten-free Person Out

25 June 2014 - 08:39 AM

Hey guys,

Just wanted to post a "good news" story.

I was in Chicago this past weekend, which is just about one of the best places for Celiacs. I was at a festival all weekend, and brought my own gluten-free beer stash (which I got at the slightly sketchy liquor store down the street. they had a better selection last year, but it did the trick). By Sunday, I had caught the "BBQ flu" as we're calling it and could definitely not handle a beer.


Anyway, I was introduced to a friend's wife, who was mentioning that she had trouble finding things to eat sometimes and turned out she also had Celiac! After us chatting about that for a bit, I remembered: "Do you want a beer?" I asked. The look of pure joy on her face was priceless. Made me feel better just to make her happy.


Has anyone else had one of those moments, when you find out there's a fellow gluten sufferer and have something to share with them, or vice versa.


In any case, I thought I'd mention it, cause it was a very nice moment. Next year at this thing we'll be gluten-free beer-ing it up together!



New Research On Ncgs

16 May 2014 - 07:57 AM

Hi Guys,


So there's a lively debate going on with some friends over on the Facebooks regarding a recent study that claims to to have shown that Non-Celiac Gluten Sensitivity doesn't actually exist. I see a lot of flaws in this study, and we've been bouncing back and forth the debate between scientific proof and "feeling" better.


Anyway, here are links to a few articles on the study. We all know a million-times more about Celiac and Gluten sensitivity than most people. I want to see what we think about it:

(If anyone can get access to the actual study data, that would be very useful)


--http://www.realclear..._not_exist.html (this one got the ball rolling)


"Analyzing the data, Gibson found that each treatment diet, whether it included gluten or not, prompted subjects to report a worsening of gastrointestinal symptoms to similar degrees. Reported pain, bloating, nausea, and gas all increased over the baseline low-FODMAP diet. Even in the second experiment, when the placebo diet was identical to the baseline diet, subjects reported a worsening of symptoms! The data clearly indicated that a nocebo effect, the same reaction that prompts some people to get sick from wind turbines and wireless internet, was at work here. Patients reported gastrointestinal distress without any apparent physical cause. Gluten wasn't the culprit; the cause was likely psychological. Participants expected the diets to make them sick, and so they did."





"It is still not clear, in other words, that there is an actual association between consuming gluten and GI symptoms. Individuals may firmly believe that they have such an association, but we know from countless historical examples and experiments that such firm beliefs can form in the absence of a true association.


The second possibility that needs to be seriously considered is that in some people who are self-diagnosed with NCGS, they are reacting to something else that is common in gluten-containing foods. If this is the case, then gluten is an innocent bystander. This would be very important to discover, for obvious practical reasons."




"Now several studies hint that so-called gluten sensitivity might not always be caused by gluten. In some cases, the problem may be entirely different proteins—or even some carbohydrates. “We’re so used to dealing with gluten as the enemy, but it might actually be something else,” says David Sanders, who teaches gastroenterology at the University of Sheffield in England. Joseph Murray, a gastroenterologist at the Mayo Clinic in Rochester, Minn., agrees: “I’m starting to feel more uncomfortable calling it nonceliac gluten sensitivity. I think it might be better to call it nonceliac wheat sensitivity.” "



So, go at it. I think we can probably tear this study apart. While it might have some truth to it, it seems a little dangerous to suddenly declare that NCGS doesn't exist. Some people might drop the diet completely and cause themselves a lot of unccessary pain. We all know that Celiac/Gluten intolerance  is much more complcated than "eat gluten: feel bad; Stop gluten, feel good." it takes weeks and months and symptoms are different for everyone.


Looking forward to a lively debate (or am I preaching to the choir here)




Dh Or Tinea?

05 April 2014 - 10:30 PM

Hi all


Well, this is the first time I'm posting in the DH forum. I've always been very glad to have avoided DH as a symptom. I remember when my mom first got it when she did her gluten challenge before getting biopsied (she told me, "It's not worth it!)


Anyway, long story short, I got glutened a couple weeks ago. Not just cross-contamination but actually eating some barley in soup. Cause I'm an idiot. Don't need to go into details. In any case, I've been relatively ok symptom-wise, but it's definitely been a long haul in healing.


Earlier this week I started to get a rash on my elbows, which I figured was just dry skin. Then it got itchy, and yesterday and today it's broken out in what looks to me like tinea (ring worm), which I have had on other parts of my body before. It's round, bumpy on the outside, but unlinke anything else I've had before, it's mirrored on both of my elbows. It's gotten extremely itchy (I'm doing my best not to scratch). My right elbow has turned into a big round itchy bumpy patch. I will try to post some photos tomorrow.


In any case, I'm treating it like tinea right now, with antifungal cream.


However, I have a few questions:


- how long does it usually take for DH to break out after getting glutenered (or does it depend on the person, like with any other symptom?)

- does anyone think it could be DH?

- if it is/could be, should I get it biopsied before it dissapears?


Because that's the big question. I've never been officially diagnosed, and IF this is actually DH, then that could give me an official stamp of approval (not that it makes any difference to me). I doubt it's going to spread/get much worse, since I haven't eaten a thing not made in my own kitchen for the past two weeks and won't for a while. I haven't been actually glutened for over a year.


Anyway, I'll try to give more details and photos tomorrow, but any opinions would be helpful. If it wasn't on my elbows and basically the same on both sides, I'd just treat it like tinea and be done with it, but the circumstances make me suspicious.


thanks a bunch. I'll try not to stratch in the night!



5 Years!

10 March 2014 - 09:17 AM

Just wanted to say that it has now been 5 years since I decided to go gluten free. After months of bloating, weight loss, irritability, anxiety, feeling like crud after anything I ate, I decided that despite the negative blood tests I was sick of it! I told myself I'd try eating gluten-free for a few weeks and see what happened. By the end of week 1 I was already feeling better! I have never had an official diagnosis, but given its prevalence in my family, I have always concidered myself to have Celiac Disease.


Fast-foward 5 years, I'm doing 90% better. I picked up some addtional intolerances along the way, but the sacrifice is more than worth it if it keeps me healthy and happy.


Thank you all so much for your advice and support over the years, I don't think I'd be in nearly as good a shape without this forum. I've learned so much, and appreciate having a place to vent when things go bad. This is a lifetime commitment, and it can only get better.


Hugs to all



Gastritis Flare Up? Time To Find A Gi?

06 March 2014 - 11:08 AM

Hi all,


I was going to revive an old thread from the dead, but those often get overlooked, so if you want the background story, take a look here



I had an endoscopy fall 2012 and they did see some mild gastritis. I saw a GI once last January, but it was kind of useless as he didn't address the gastritis at all.


One year later, Doing relatively better. No (discernable) glutenings recently. I was even a good girl and did almost all my own cooking on vacation a couple weeks ago (packed pans and cutting board in my luggage and the whole bit!). But no matter how safe/careful I've been, I've been having more and more issues with random nausea after eating, aches, tired, slight heartburn, anxiety is up, etc etc. It is possible that I did suffer a mild glutening (no real, um, bathroom issues) that's just worn me down, and/or my gastritis might be flaring up again.


I have no clue if the gastritis ever healed, or got worse, or what. The pain/nausea I've been having does fit the description. It's all up along my left side, and the lower part of my chest. I haven't been physically sick because of it, but often feel like I could. Afternoons at work have been rough cause I've been nauseous after eating. I haven't been cooking anything unusual or that anything that should bother me. (It could be a new intolerance, but even then it seems to be pretty random)


In any case, I'm thinking it might be time to see another gastroenterologist and get things checked out properly, see if that gastritis is still kicking around and find out what I should do about it. Any advice/opinions on that? (If anyone knows a good GI in Toronto, that would be a big help). I'm not looking forward to another round of appointments and waiting and tests and possible dead ends, but I think I might have to. I'm going to do some research and take a few names to my doctor this time.


I'm so sick of being sick! Blaargh!


Thanks guys