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Member Since 18 Feb 2009
Offline Last Active Jun 17 2015 12:24 PM

Topics I've Started

Gluten-Free Barley? What The Whaaat?

15 June 2015 - 06:11 AM

Hey guys,


so, if you get the "updates" from Celiac.com, you'll have seen some thing about a german beer being brewed with gluten-free barley. At first I figured it was just another "gluten removed" scheme, but:

WHAT? Gluten-free barley?? Isn't that impossible? Barley contains gluten, right? Is there some kind of genetically modified barley out there? Has it actually been tested? Does anyone know anything about this? I want to see some science. If it's true, and it's safe (for celiacs. I'm not going to get into a GMO safety debate), then that's fantastic. But i'm highly skeptical.


Any insight on this? Would be good to get the whole picture before anyone starts thinking barley is safe or some such craziness.




Earth Balance Pb Pops

19 May 2015 - 11:41 AM

oh man, I'm excited about this one.




I saw these at the store today. Peanut butter and oat cluster things. But there was no indicating whether the oats were certified gluten-free or not, so I did my due diligence and contacted the company. Heard back super quick, and:


"The only Earth Balance product that contains oats is our PB Popps and the whole grain oats in this product are gluten free certified."



Has anyone tried these yet? I will report back. It's tricky to find tasty gluten-free/SF/DF snacks, so these things could be dangerous (as in I will eat way too many of them).
Earth Balance soy-free spread is my butter substitute, and their PB is pretty good too.




Tell Me About Kidney Stones

07 March 2015 - 01:10 PM

Hi guys!


It's been a while, mostly because I've been doing very good in the gluten department. Aside from catching more than a couple cold bugs this year, I've been a-o-kay in the food department.


Or at least (possibly) up until this Thursday. I ate some oatmeal for breakfast, and we had an extra long meeting at work and I was getting really hungry (weak and nauseous) by the end of it, so I wolfed down a Macro bar when I got to my office. I was feeling some discomfort before that, but the nausea didn't stop, and I got this HORRIBLE pain in my side. right down in the left side above my hip, too far over to be in my stomach. It was not the usual pain I get from indigestion or anything like that. This was different. I toughed it out for a while, decided to try to eat my lunch (thinking I might still be hungry) and ooooh man, it just kept getting worse. It hurt when I pressed on my side, and I could hardly see straight. Something told me very strongly that this was not normal. So I abandoned my half eaten lunch, told my boss what was going on, and was off to the clinic. It didn't get any worse but not much better while I wated. Doctor thinks its either a stomach bug or food poisoning (unlikely, no fever or vomiting), kidney stones (most likely), or an ovarian cyst.

So, we're treating it like a kindney stone at this point. I did a urine test, have an ultrasound scheduled for Monday, and she gave me a prescription for pain killers. Drinking lots of water. Eating mostly soup.


The pain was bad but not horrible the rest of Thursday, was ok Friday morning but came back in the afternoon (right after lunch, oddly enough), so I went home and doped myself up (percocet works! but man does it make you loopy). Today is so far so good. I'm still hoping it's nothing, or just my stomach being a pain and doing weird things, cause if it is a stone it's not going to be fun getting rid of it. There's still a mild ache in my side, a bit tender.


Anyway, since this is my first experience with these (possible) suckers, anyone want to share their experiences? Or posit alternatire possibilities? I know the pain is intermittent, but can you tell if the thing has passed or not (ie: is the pain actually gone, or will it be back with a vengence?).

I know this might not be directly related to Celiac, but I have read (very old) threads about stones being common in Celiac sufferers.


Anything you can offer would be great!





Celiac And Anxiety (Related And Not)

17 November 2014 - 08:25 AM

Hi guys,


Putting this in here since the "behaviour" forum doesn't get much traffic.


Lately (past month or so) I've been having some bad axiety, panic attacks, depression, etc. All the fun stuff. This was a big symptom for me before I wen't gluten free, and got much much better once I did. Over the past few years, when I did get an attack I could usually link it back to something I ate, or an actual stressful event.


However, lately there's nothing I can point to and know, yes, that's what it was. I do have a few gluten-related possibilities: My boyfriend and I recently moved in together, and while my BF still brings gluten into the house, it's mostly frozen things that go straight into the oven, and he's super careful cleaning up, washing hands, no kissing, etc etc. It is possible that I'm getting low-level cc from something, but it would be pretty minor.


Also, I often feel low-energy, slightly depressed, a bit gittery and get worked up easily after a glutening, but it's usually a single incident and is done, and there's always some kind of stomach thing to go with it. The past while has not felt like that. I've also considered that something could be up with my thyroid, though my doctor (who I saw last week) thinks everything looks fine.


So, I am facing facts: this is a serious mental health issue, and I've asked to see a psychiatrist. This is a huge step for me, since I've dealt with depression/anxiety in some respect for most of my life. I've just blamed it on gluten for the past few years. The problem is our guts and our brains are so connected: If I eat something bad, it makes me depressed, which in turn makes me feel bad (a lot of nausea lately).  It sucks. It's interfering with my work and my life, and as much as I will do my best to eat right, sleep, meditate, exercise, socialise, and all the good things, I'm going to need some help.


Anyway, has anyone else gone through this? Celiac affects our mental health, but maybe it's not the sole reason for it? Any advice for coping? I'm taking this all one day at a time.


Thanks a bunch!



Doctors Selling Info On Celiac?

17 September 2014 - 10:22 AM

Hi all,


So... not quite sure where to put this but thought I'd bring it up. A gluten-free advocate (she runs a bi-annual gluten-free food/info fair and posts a lot of info and recipes) I follow just posted the debunked "19 cross-reactive foods" list, which we all know has no scientific basis whatsoever. I called her on it, and she said she was surprised since it came from a source she trusted. The source was a Dr Amy Myers' website. Now, I did some googlind and Dr Myers seems to be pretty prominent in the gluten-free info scene, lots of articles in HuffPo, etc etc. However, looking at her website I saw that she is not only posting non-scientific information (with links to 'cross-reactivity testing'), but she is selling online courses on Celiac/gluten-free diet for $100!! (oh, right now its only $49. what a deal). I imagine these "worksheets" have no more information that you can get here, or many other reliable places on the internets, FOR FREE!


Anyway, take a look for yourself and tell me this doesn't look sketchy:



Yeah, I'm sure there's lots of good info here, and maybe she figures since she can't see everyone, selling her services as an online course is better than leaving people out? ?? It seems like a big cash-grab to me. People are gullible. Also, since she's posted misinformation, WHO KNOWS what kind of info is actually in these courses.

Anyway, does anyone know anything about this lady, aside from her writing collumns all over the place? Are there other doctors out there selling their services (and supplements, and god knows what else) like this? Has anyone actually taken any of these courses?


I am thoroughly creeped out and a little ticked off at this. Aargh!!!

Opinions and imput encouraged.



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