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orchid1

Member Since 21 Feb 2009
Offline Last Active Apr 24 2010 06:21 PM
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Posts I've Made

In Topic: Whole Wheat / Whole Grains

12 February 2010 - 11:09 AM

I am very confused by something... how come we can eat gluten free whole grain products? wheat, barley, spelt.. etc are all grains.. so I am confused by what grains we CAN eat?? if something is gluten free whole grain whatever, than it's fine right???? :blink:

Whole means unprocessed( ie it does not come packaged). Grains are grass seeds, all grass seeds have gluten(wheat, barley, rye, oates, corn, rice, millet, sorghum have gluten which is a mixture of proteins (prolamines). This site will explain things further. http://towncenterwel...celiac-disease/

In Topic: Maze Starch

09 February 2010 - 05:02 PM

[quote name='Maddiemo' date='08 February 2010 - 09:13 AM' timestamp='1265649194' post='591233']
[quote name='orchid1' date='07 February 2010 - 01:48 PM' timestamp='1265579301' post='591088']
Joint pain and tiredness are 2 of nearly 300 symptoms of celiac disease. http://www.celiaccen...sease-symptoms/ Because my celiac disease went undiagnosed for over 10 years there was a lot of damage done to the small intestine thus reducing its absorption ability. At present i am intolerant of (besides wheat, barley, rye, oates and their product) CORN, rice, potatoes (except new potatoes),sucrose, dairy of any kind, legumes, red meats, nuts and nut oils and most other oils(except coconut oil, grape seed oil, hemp oil and virgin olive oil). These dietary exemptions may seem a bit extreme, but i follow a well planned SCD and have been on it for close to 2 years without any problems. Take heart though for i know that eventually i will be able to tolerate everything i have mentioned i had to eliminate, except -of course- wheat, barley, rye, oates and their products. These i can never eat- i do not miss them, they were slowly killing me.
[/quote

Hello. Thanks for the info. Can you tell me what SCD means please.
[/quote]
SCD means Specific Carbohydrate Diet. There are several posted. The one i follow is located at http://www.breakingt...iouscycle.info/ . There is also a support website for those who follow the diet. It can be found at http://health.groups...roup/BTVC-SCD/. With the help of both websites i have been able to compile a menu of over 600 recipes that are tailored to my specific dietary needs. If i can't make it, i don't eat it. There is very little i can't make. Eating "SCD" is a 180 degree change in lifestyle and diet. I feel very fortunate to have found this life saving dietary change.

In Topic: Maze Starch

07 February 2010 - 01:48 PM

Hello. I am new to this forum. I am wheat intolerent I know that for sure but have never had any test. I live in the UK and its so hard to get tested for these things. Now I find I am lactose intolerence so I don't eat wheat gluten or dairy pretty boring. I found some really nice bread call "GENIUS" it tasted just like nice white bread you can hardly tell the differance but after eating it felt so ill, pains in my joints could hardly walk, looked in the ingrediance and the only thing I can find that might do it is maze starch. Is there anyone else on here that is intolerent to maze starch? and is it gluten free?

Is one off the symptoms of celiac pains in the joints as well as tiredness? I would also like to know if there is anyone who is intolerence to corn?

Joint pain and tiredness are 2 of nearly 300 symptoms of celiac disease. http://www.celiaccen...sease-symptoms/ Because my celiac disease went undiagnosed for over 10 years there was a lot of damage done to the small intestine thus reducing its absorption ability. At present i am intolerant of (besides wheat, barley, rye, oates and their product) CORN, rice, potatoes (except new potatoes),sucrose, dairy of any kind, legumes, red meats, nuts and nut oils and most other oils(except coconut oil, grape seed oil, hemp oil and virgin olive oil). These dietary exemptions may seem a bit extreme, but i follow a well planned SCD and have been on it for close to 2 years without any problems. Take heart though for i know that eventually i will be able to tolerate everything i have mentioned i had to eliminate, except -of course- wheat, barley, rye, oates and their products. These i can never eat- i do not miss them, they were slowly killing me.

In Topic: Your Opinion On My Symptoms?

06 February 2010 - 04:53 PM

When I was a kid I remember having horrible stomach pains often and an ultrasound for it even, then for a very long time they went away.

About a year and a half ago I started randomly having symptoms that included diarrhea and stomach pain but only when I was really really really nervous or stressed. This past July I went through a stressful situation and that week I started having continuous stomach pains, then diarrhea/constipation that alternate although leans more toward constipation. To be kind of forward (sorry), I also have a lot more gas although I remember as a kid I was that way a lot too.

When all this started I had gained a lot of weight, became unhappy with myself and my life and have been very depressed. I worry so much about my 'condition' that it almost seems to make it worse.

So.....
I did go to the doctor's in October and they said it was IBS. My thoughts all along was that it was IBS too because it was pretty random and my stress/anxiety seemed to bring on the symptoms. After reading into lots of things about Celiac and Gluten Intolerance I felt like maybe it could be something I should consider too. Unfortunately I am uninsured and work only part time and cannot afford blood testing or biopsies. Knowing that Celiac can do major damage I decided about a week ago to do a trial of gluten-free diet to see if it helped make me feel better.

It's been 4 days, and I feel worse than ever. Being strict about gluten-free, I have had more diarrhea than ever, more fatigue, and my stomach is 'gurgling' far more often and more painful than it has in my entire life. Is this a normal progression, or could this indicate that gluten-free is not only not necessary for me but potentially harmful if it's something else?
I more than understand these things take time, but I find it weird that these drastic changes have occurred since I started this little trial.

this is not uncommon. please go to http://www.celiac.co...showtopic=53093

In Topic: Progresso Creamy Mushroom Soup

04 February 2010 - 02:56 PM

Noticed recently that Progresso is actually labeling their soups Gluten Free. Creamy Mushroom is one of them. However, today I received an email from Ceceliasmarketplace saying that this soup is NOT gluten free. Does anyone know if it truly is? Sure is good for those green been casseroles.

Looking at the ingredients of creamy mushroom, see this website http://www.progresso...etable-classics, i see it has modified food starch as an ingredient see http://en.wikipedia....Modified_starch . Look at http://en.wikipedia.org/wiki/Starch and you will see wheat listed. I stay away from anything that lists modified food starch as an ingredient. My motto is: IF I CAN'T MAKE IT; I DON'T EAT IT!