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Member Since 12 Mar 2009
Offline Last Active Nov 09 2013 08:24 AM

#783644 Confused...

Posted by on 28 March 2012 - 12:42 PM

Hello Shan,

Boy, I haven't been here in a long time! I lived here when I was first diagnosed. So here's the thing...... it seems really sudden but as you get well things will go away that you had gotten used to or had attributed to other things. You attribute much to your weight that could be celiacs. Your weight itself could be celiacs. Those allergy headaches, those sore feet, the pain in your lower back.......

I was over eating because I wasn't absorbing nutrition. I was always hungry.
I had allergy headaches because I was eating things I was allergic to and because I was low on vitamin D.
I had pains in my feet because I was low in magnesium and had started developing neuropathy.
I was having pains in my lower back (mild cramping) because I was eating dairy which I found I am also allergic to.

There's more but the reason I stopped coming here was because I got tired of hearing myself whine LOL and needed to get on with feeling better.

So soak up all the knowledge, start feeling better! :)
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#660435 Food Stamps

Posted by on 14 December 2010 - 07:25 AM

website TACA- Talk about curing autism
There is a page on a Glutenfree CF Diet on Food Stamps

They have some good ideas. I liked "make a menu" and "cook like grandma". Grandma has been making gluten free potato soup for the kids. That sounds wonderful right now. Think I'll call and ask for her recipe.

Thanks RA
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#621743 Do You Feel More Mentally Healthy After Going gluten-free?

Posted by on 05 July 2010 - 09:53 AM

I have a question for all of you who posted in this forum. Are any of you celiacs or did you do this on your own.. or was it suggested?

Our journey started with a fellow celiac noticing the itchy bumps on my elbows.

I was diagnosed by my immunologist. He said the reactions were so obvious he didn't need to test me.

My son's blood work came back negative, three times, because we didn't know his meds have an antihistamine property. Now we know. He was diagnosed by two doctors even with the negative blood test and no biopsy because the rest of his symptoms were so obvious.

My daughter has not been tested and is not interested in testing or getting the migrains that come with eating gluten.

My younger son's girlfriend was diagnosed by a specialist her Mom took her to for repeated urinary tract and bladder inflammation.

The girls are not having mental health issues beyond normal teenage PMS. ;)
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#621697 Do You Feel More Mentally Healthy After Going gluten-free?

Posted by on 05 July 2010 - 07:42 AM

I've posted this info here before but for those who are new..... My now 19 yr old son was diagnosed as bi-polar and celiac after attemping to end his life by crashing his car. He has gone back and forth from eating gluten and hearing voices to being gluten free and totally down to earth and peaceful. Lots of meds have been tried. The ones that work for him are basically benedryl and a mood stabalizer mixed together. He is currently med free after a period of weening down. He has to report to the prison nurse twice a day, the psychologist once a week and the psychiatrist once a month. He keeps benedryl in his cell to help regulate his reations. He is not able to be completely gluten free as being on a special diet makes an inmate a target for unwanted attention. He does what he can with what is served in the chow hall and what he can buy from the prison store. This was his first and only offense, committed when he was 17, his sentence is 29 months to 10 years. He has served 13 months.

He will be fine, we are dealing with it. I am sharing this information because it's important to know how serious the consequences of untreated celiacs and the resulting mental illness can be.

Take care, RA
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#577327 Need Advise On What To Say

Posted by on 23 November 2009 - 09:29 AM

I suggest just bringing your own...

I've had too many glutenings at places who have gluten free menu's, but then they add seasoning to the "plain grilled" chicken breast that I asked for with "nothing" on it...this just happened to me over the weekend. And when I asked what was in the seasoning, the manager said, "it's basically just salt..." I for a fact know it wasn't and thought it extremely rude especially since I did ask for it to be plain and I explained that I have an allergy.

This has happened to me also so now I ask to see the label of everything going in or on my food. I even yelled at a gal working for subway because they took the chicken out of the box and threw away all the labels. She kept saying, "It's just chicken, nothing else" I said, "By law you have to be able to show me the label." I don't know if that is true but I was mad and hungry so eh.. I was being a meany. Mostly now I just take apples and nuts everywhere I go except to relative's houses. The relatives all seem to be curious and willing to make "just plain meat" and veggies for us.
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#563835 Us Produced Malto Dextrin Is No Longer Safe

Posted by on 22 September 2009 - 02:37 PM

I just feel safer buying foods that don't come with a label like bananas
or with simple ingredients like Natural Peanut Butter, ingredients: peanuts, salt
or Rice Cakes, ingredients: brown rice.

Maybe I'm being silly but all my parts are working and feel great for the first time in awhile.
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#545468 Anybody Out There A Morbidly Obese Celiac?

Posted by on 08 July 2009 - 05:45 AM

It's always been obvious to me that the women who are morbidly obese and have very thin hair and open sores are malnourished. I'm just a Mom, a dr should know better than to assume that a overweight person can not be malnourished.

According to my WII I'm overweight. I lose weight quickly when I go low carb (under 10 carbs a day) but it's incredibly hard to sustain. So I tell myself I'll have more time for that when schools out for the summer, then when the kids go back to school I'll have more time. It's bull, I just don't enjoy cooking! My latest deal with myself is .....July 16th I'll go low carb until my WII smiles.

I don't have to weight in to play golf! :D
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