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GottaSki

Member Since 13 Mar 2009
Offline Last Active Private
*****

Posts I've Made

In Topic: Recently Tested For Celiac - Questions & Confused

28 October 2014 - 04:03 PM

The celiac antibody tests are IgA and IgG based. With deficient total serum IgA, the IgA based celiac antibody tests are not valid and make the IgG tests that much more important.

Another important item you mention was deficient Vitamin D...celiac disease prevents proper absorption of many nutrients.

It takes a doctor that understands the combination of symptoms, nutritional deficiencies and proper celiac antibody testing to diagnose celiac disease in many cases.

I agree with the diagnosis, but highly suggest further nutrient testing as many need to supplement until the digestive system has a chance to heal and begin to properly absorb nutrients.

All that said...if you are not comfortable with the diagnosis, I suggest you seek out a gastroenterologist with celiac experience to discuss the possibility of further testing.

Undiagnosed celiac disease can cause all of the symptoms known as Fibromyalgia....as others have mentioned, it can take time for these symptoms to improve.

The complete removal of gluten is not an easy transition, but once you are past the learning curve it becomes much easier to live gluten-free.. Do read the newbie thread others have linked to.

If you are thinking of consulting with Gastro...do not remove gluten until you do. Further testing (endoscopy with small intestine biopsy) requires continued gluten consumption until the endo has been completed.

Welcome to the best club you never wanted to join :)

In Topic: Just Want To Share This Small Victory!

23 October 2014 - 09:51 PM

Hi De Ho...

Saw your post...fantastic...and I must add...

I have had virtually NO cold or flu bugs since I was diagnosed with celiac disease five and a half years ago. I have had many autoimmune flares that can feel worse than the worst flu....yet, knowing I wasn't catching every bug flying by....was and is comforting.

Yay for not catching bugs :)

In Topic: To My Canadian Pals

23 October 2014 - 10:14 AM

Well said Mommida!

Emily...we understand this very well. The changes in the US post 9/11 have been hard to tolerate.

Yearning for a safer time never ends dispite becoming used to enhanced security protocols.

We love Canada in this family -- very much look forward to visiting more than BC one day.

Stay strong Canada!

In Topic: Help Needed With Test Results

21 October 2014 - 06:45 AM

Yes, positive is positive. Especially the positve EMA. Perhaps you caught this early or her limited consumption of gluten has effected the results.

Two things:

Make sure she is ingesting at least one slice of glutenous bread each day leading up to the endoscopic biopsies.

Request the balance of celiac antibody tests:

tTG-IgG
DGP-IgA
DGP-IgG

Hang in there :)

In Topic: Help With Biopsy Results

20 October 2014 - 03:29 PM

Inflammation is not uncommon.

Congratulations on healthy villi!

Were alll of her celiac antibodies tested? negative? Any nutrient deficiencies at diagnosis corrected?