GottaSki

I would go to a GI that specializes in celiac disease.

 

Your endoscopy sounds like damage from celiac disease...do you have the pathology report along with the procedural report?

 

The most telling piece of information is your improvement gluten-free.

 

Also of interest is a Total IgA is low...just not out of range which could mean the IgA blood work is of no use.  Have you had a tTG-IgG? or and AGA-IgG -- I do see you have a positive DGP-IgG.

 

Here is a simple explanation of the Marsh Scale for Celiac Disease...note Stage 1 and 2 are not specific to celiac disease...yet damage plus positive DGP-IgG plus familial history plus dietary response seems like Celiac to me:

 

Here is a basic explanation of the Marsh Scale used to type Celiac Disease.

Stage 1, the cells on the surface of the intestinal lining (the epithelial cells) have more lymphocytes (white blood cells) among them than normal - Stage one is not specific to Celiac Disease.

Stage 2, the changes of Stage 1 are present (increased lymphocytes), and the crypts are larger than normal. 

Stage 3, the changes of Stage 2 are present (increased lymphocytes and larger-than-normal crypts), and the villi are shrinking and flattening (atrophy). There are three levels of Stage 3:
3A--Partial villous atrophy
3B--Subtotal villous atrophy
3C--Total villous atrophy

Stage 4, the villi are totally atrophied (completely flattened) and the crypts are now shrunken, too.

 

PS...there are many gluten-free beers available.

It's possible that the allergy meds are acting on something that was untested. Any allergist will admit they only have tests for a fraction of possible allergens. It's also possible the allergy meds are suppressing her autoimmune reaction to something. I personally get great relief from autoimmune symptoms by taking antihistamines. It's a cheat to keep me going if things get really bad.

 

Ditto.

c'mon! You know I'd love it you did!!  ...... but that's really all you want? just green beans?

 

I want it all...and I want it NOW!  just teasing...I do want it all and wish I could pop over....taking a break from studying...edited something out as a few of my classmates know I'm on here....lol

 

Off to hit several grocery stores as our fridge and cupboards are a bit bare -- well bare for our house -- and then take care of a problem at my Mom's -- not sure what is for dinner...probably food

Good Morning!

I think making an appointment with the primary that knows you is wise...starting with a new primary closer to you might work...but I would wait a bit. As your time gluten-free increases many of these symptoms may remedy themselves. That being said...get into whichever doctor you decide is best to have as many labs ordered as you need. The TSH is a pituitary hormones, not a thyroid hormones -- although doctors swear by it to diagnose thyroid issues. You need thyroid antibodies run along with Free T3 and Free T4. I cant remember what all you have had tested...but if it has been three months or more gluten-free I would add full celiac antibody panel along with CBC, CMP, B1 B2, B6, B12, D, K, Iron, Ferritin, Copper and Zinc.

Happy First Birthday!

Sorry you aren't feeling great yet...but as you point out you have learned a lot...this knowledge will bring healing...unfortunately it can take months and years...doesn't seem fair...so stomp...yell..I have a time or ten and then get up tomorrow and try again...one day (hopefully very soon) you will be amazed by the improvement.

Until then...hang in there