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GottaSki

Member Since 13 Mar 2009
Offline Last Active Private
*****

Posts I've Made

In Topic: Strange Question But I'm Curious...

15 September 2014 - 10:11 PM

Give this a good read....

http://www.celiac.co...ewbie-info-101/

In Topic: High Deamidated Gliadin Test

13 September 2014 - 12:50 PM

 I know :/  I'm trying to be positive about it all, but my understanding was that the test result was more significant than she seemed to think it was.  But then I also feel like I'm being a hypochondriac sometimes, and want to respect the doctor's training and experience (but not blindly).  Anyway…  we are going to go ahead with the six month trial.  Her symptoms at this point are not so bad that they are really affecting her quality of life or anything, and the doctor did give us the recommendation to repeat the labs earlier if her symptoms worsened.  With everything we've been through with my other children as well, I've come to really appreciate the importance of an actual diagnosis.  Especially with children.  There also is that possibility that perhaps it is not celiac disease and I'd like some answers on that then as well…  we still don't have answers with the other kids (one of them has even gone through with the biopsy) so perhaps it is not celiac after all..  although my gut (pun intended, lol) tells me it is…  who knows….[/size]


If possible it really is best to get an accurate diagnosis....just sad that it can be such a frustrating process.

In Topic: High Deamidated Gliadin Test

13 September 2014 - 11:51 AM

Update time!
 
Okay, according to our doctor (who again, is the director of the celiac center at a prestigious children's hospital), the deamidated gliadin test is not as specific to celiac disease as I had thought from what I was reading :/  She said that the endomysial abs test was more specific and a positive result on that test would have her thinking more about celiac disease (we did not have this test done).
 
She also said that a positive result on a deamidated gliadin test could also be caused by some other conditions…  she specifically mentioned severe acid reflux or food allergies.  So my daughter's result could either be from one of those, or it could in fact be *early* celiac.  
 
So the plan is to keep a food diary for at least a week, along with noting symptoms, etc.  then continue on a regular diet for 6 months and then test again.  If it's celiac, the numbers will be higher at that point, and we will do a more complete panel of labs.  If her symptoms worsen, we do the labs closer to the 3 month mark.
 
I wanted to update for anyone who might find themselves in a similar situation :)  
 
Of course I wish I had every answer now, but this is the way things go I suppose…  one step at a time.  I can wait for 6 months :P


Thanks for the update and asking the doc about what else could elevate the DGP....that is the first time someone came back with an answer...I've got something to research now :)

In Topic: High Deamidated Gliadin Test

11 September 2014 - 06:19 PM

Thank you, Nicole!!  I have not seen that chart yet, so I'm glad you took the time to post it again :)  I am so very curious to see what her doctor has to say about all of this...


Good luck Apple!

PS...Nicole good information is always a good idea.

In Topic: The What's For Dinner Tonight Chat

10 September 2014 - 12:23 PM

 
ski - we had a mega water balloon launcher at the racetrack in syracuse (fairgrounds) one year.  it would launch all the way across to the other side of the track.  THOSE people were surprised, too!!  (and WET hahahhaaaa!!)
 


Love it!

That would have been welcomed at California ... Especially the Labor Day race used to be hot as hell...I paid 25 bucks one season for the water truck to fill a kiddy pool...everyone laughed at me until they ended pulling their camp chairs to the edge to dangle their feet in my pool! Made the water too dirty for the toddler racetrack neighbor...but fun for all the other kids :)