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Member Since 13 Mar 2009
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#878199 Gluten-Free Bread Recos, Hated Udi's

Posted by on 04 July 2013 - 06:06 PM

Our family loves....Udi's, Canyon Bakehouse and Glutino.


If you are new to gluten-free breads...may I suggest -- trying to toast Udi's before you toss it?  


There is always baking your own -- we did in my early days as we could not afford Udi's for a family with multiple celiacs.  Thankfully....prices have come down a bit.

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#877980 I Need A Gluten Free Hug!

Posted by on 03 July 2013 - 10:31 AM

(((((Hug)))))) for MamaTrois!


(((((Hug)))))) for FireFairy!


along with a (((((Hug)))))) for NotMe!


and a spare for anyone that hops in ((((((HUG)))))))


boy I feel so much better after all those


Happy Almost 4th of July :)

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#877941 Help With Results...ttg & Thyroid

Posted by on 03 July 2013 - 05:41 AM

 I'd like my stable self back now please! ;)


My stable self is making more appearances lately -- my hubs and sons are VERY thankful ;)


Hang tight - eat right -- things will get better!

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#877940 Is Wine gluten-free?

Posted by on 03 July 2013 - 05:37 AM

This doesn't have so much to do with the wine gluten-free issue, I'm addressing the question in that previous post.  You can note that alcoholic beverages are not allowed in the gluten contamination free diet.


I have a very limited whole food diet and safely consume Red Wine often.  My intestines are finally healing according to my repeat biopsies -- there is no gluten in the wine I am drinking -- If I were offered a fine very old vintage -- I might question what it was contained in originally, but newer/mass produced wines are not held in containers with or strained through any gluten.

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#877839 Just Got Back From The Mayo Clinic In Minnesota - Is This Familiar To Anyone...

Posted by on 02 July 2013 - 03:31 PM

Yes, big help Lisa! One of my fears is that I'm going to become intolerant to the little foods I have left. I'm already so restricted that it's difficult to eat a healthy amount. I was told to do the rotation diet and not eat foods more than once over a four day period. That's impossible for me. I try to eat them once or twice and then not eat them again for the next 2-3 days. But, even that is difficult. I'm already wondering if I've lost some of the foods that were originally safe after the first blood test. But, if you are right (and I tend to believe you are b/c I am experiencing similar issues), then my stomach isn't going to heal by removing the gluten if I'm still eating some of the foods that I've tested positive for.


Again -- for me -- I don't worry about the rotation thing -- now that I am down to meat, fish, selected vegies and fruits -- oh I did get almond back -- but my total safe food list is very short and I eat as much of those safe foods as i want....I am not dropping weight but I look much lighter -- again that pesky inflammation deal.


I should say that many folks have found they need to rotate their foods -- but it simply was not possible when I was at most limited diet so I did not and haven't needed to thus far.

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#877825 Just Got Back From The Mayo Clinic In Minnesota - Is This Familiar To Anyone...

Posted by on 02 July 2013 - 01:59 PM

For me....I have had many improved periods as I removed certain foods post celiac diagnosis. 


What it boils down to --- for me --- is my system was treating many foods as an invader.  I'd remove or replace foods and then those new foods I was using became problems -- whether it was that I was eating more of them or just recognizing they were a problem because of the symptom log -- i'll never know -- great example -- at about 18 months gluten-free I was having yet another autoimmune flare from hell -- which led to my complete lectin elimination diet -- turns out I was intolerant of nearly high lectin food -- my go to lunch at the time was Quinoa with Red Bell Pepper and Tiny Peas for color -- along with a couple handfuls of peanuts to munch on at my desk -- I can't eat any of those items -- still haven't gotten them back nearly two years later -- I do remain hopeful that I will, but have learned to eat many yummy things without them.


I think you are on the right track.  With all that you have removed -- just add good fat where ever possible.  Foods high in histamine or that induce histamine have made the last best improvement to my health....I've been healthier with less pain (relative) since removing them last November -- not suggesting that you need to remove histamines per se....just wanted to preface what I am about to say. Add as much good fat as you can....coconut oil, nuts, avocado (if you tolerate).


Did you say you don't eat red meat -- or all meat?  getting enough fat and protein is tough on a limited diet.  If you eat poultry...don't worry about only eating the lean breast meat...eat the legs, thighs and skin too!  Fish?  Salmon in particular has fat and if you aren't gaining or at least maintaining weight - eat larger portions? 


I make a "chocolate mousse" in the blender with almonds, cocoa, coconut oil, vanilla and agave -- pretty darn tasty and definitely not low calorie!


Hope this helps...and isn't too confused...will try to check back in when I get home.



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#877443 Where Are These People And More?

Posted by on 30 June 2013 - 08:56 AM

I believe that those that aren't on for a long while are off living their healthful happy gluten-free lives -- sometimes they come back - sometimes not -- I've taken a few sabbaticals from this site over the years...

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#876540 Family Of Celiacs In Denial

Posted by on 25 June 2013 - 12:27 PM

Many of us have dealt with this situation with family and friends.


Nicole is correct -- eduction is the key along with time.  Time for your health to improve, time for them to understand this isn't a passing phase or idea, time -- took some in our extended family a couple years to get that I had not been faking my flares for the past 20 years. 


Feeling real health for the first time in my life in my late forties makes all the nay say'rs much easier to tolerate ;)


Hang in there...take care of yourself....the rest will improve OR it won't...I'm the biggest optimist in our family but do understand I can only change myself and hope for others to do the same -- well and nudge them when they seem receptive :P

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#875742 Newbie Saying Hello

Posted by on 20 June 2013 - 09:21 PM

Welcome Michie!


No need to ever feel foolish here....you are not alone.


If you have not yet...make sure you check out the Newbie 101 thread.


We understand the frustration that comes with analyzing each morsel of food...it does get better...I promise.


Hang in there :)

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#874564 The What's For Dinner Tonight Chat

Posted by on 14 June 2013 - 06:59 AM

Not sure what is for dinner...but know what one item will be on Sunday -- my Dad loves crabcakes -- found this on my FunnyPage this morning -- someone copied and pasted so not sure to whom to give credit....



1 large egg
2½ tablespoons mayonnaise (I like Hellman’s Real)
1½ teaspoons Dijon mustard (I like Maille brand)
1 teaspoon Worcestershire sauce
1 teaspoon Old Bay seasoning
¼ teaspoon salt
¼ cup finely diced celery (you’ll need one stalk)
2 tablespoons finely chopped fresh parsley
1 pound lump crab meat*
½ cup panko (I like the Whole Foods 365 brand for this recipe)
Canola oil

1. Line a baking sheet with aluminum foil.

2. Combine the egg, mayonnaise, Dijon mustard, Worcestershire, Old Bay, salt, celery, and parsley in a large bowl and mix well. Add the crab meat (be sure to check the meat for any hard and sharp cartilage) and panko; gently fold mixture together until just combined, being careful not to shred the crab meat. Shape into 6 crab cakes (about ½ cup each) and place on prepared baking sheet. Cover and refrigerate for at least 1 hour.

3. Preheat a large nonstick pan to medium heat and coat with canola oil. When oil is hot, place crab cakes in pan and cook until golden brown, about 3-5 minutes per side. Be careful as oil may splatter. Serve immediately with tartar sauce or a squeeze of lemon.

Quick Tartar Sauce

1 cup mayonnaise
1½ tablespoons sweet pickle relish
1 teaspoon Dijon mustard
1 tablespoon minced red onion
1-2 tablespoons lemon juice, to taste
Salt and freshly ground black pepper, to taste

Mix all ingredients together in a small bowl. Cover and chill until ready to serve.


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#873898 Is Wine gluten-free?

Posted by on 11 June 2013 - 06:23 AM

I drink wine -- it is really my only indulgence -- I cannot drink white and some reds -- but it has nothing to do with gluten -- rather sulphites and histamine.

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#872454 I Just Need To Get This Out.... (Death Mentioned)

Posted by on 03 June 2013 - 09:49 PM

Welcome Mommy!


I too lost one of my very best buds just two short years ago.  Here is what I know from the bottom of my heart -- she is gone but lives on thru me and those she loved each and every day.  When times are the most dark...I think... WWKD....I think that and then double check it is legal and a good idea....my buddy was loads of fun, but not always prudent ;)


Live,  Get your family tested if there is any possibility of Celiac Disease or NCGS. Eat good whole foods. Move as often as possible on your own and then add family and friends to your exercise....these things honor your friend.  


Oh...and find a song that reminds you of her and play it regularly --- "Brown Eyed Girl" plays around here and I automatically get hugs from my sons and hubs....I know Kim is laughing out loud that I am using my missing of her to gain hugs!!!!  Not really...but it is the way she would see it...and I am cool with that.

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#872167 Thoughts On Hoda

Posted by on 02 June 2013 - 07:12 AM



The phrase "ignorance is bliss" is what came to mind after watching Hoda and Kathie Lee discuss what they think of men who have to eat gluten-free.  For many who have to follow the gluten-free diet, it is not a choice, but a medical necessity, myself included.  Instead of dissecting the segment and pointing out everything wrong with Hoda and Kathie Lee's comments, I choose to educate.  As an elementary teacher, it's in my nature.



I love this!!!!


Thank you for sharing :)

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#872098 Is Okay To Self Diagnose?

Posted by on 01 June 2013 - 06:20 PM


I have until Monday to decide, and then I making a decision and sticking with it. I definitely don't want to drive you guys crazy from my indecisiveness! 



You can't drive us crazy....well....I can tell you that you are no where close to driving us crazy yet.


The way I see it -- the silly celiac diagnosis process is driving you crazy -- with good reason.


Hang in there....change your mind a few more times if needed...we will still be here and most of us have felt much of your indecisiveness -- so not to worry -- you are not a bother -- just another one of us :)

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#871942 New Problem

Posted by on 31 May 2013 - 06:45 PM

This is my opinion -- has basis -- but too tired to share all the science right now....


GERD / acid reflux meds do not help and often hurt.


You see...those of us with damage to our digestive system are actually making too little acid -- not too much...so when we take these meds we make even less which throws the chemistry off for the whole digestive tract -- read up on taking HCL rather than preventing acid -- or PM me to remind me to tell you more later.


Happy Friday!

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