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Member Since 13 Mar 2009
Offline Last Active Today, 02:54 PM

#871380 gluten-free Oats Have A 1 In 20 Chance Of Causing Celiac Attack

Posted by GottaSki on 29 May 2013 - 06:47 AM

Two of us in my family can't eat gluten-free Oats right now -- hope to get them back one day soon.


Four of us can.

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#871370 Thoughts On Hoda

Posted by GottaSki on 29 May 2013 - 06:08 AM

Anyone remember the old make the high school girls carry around a ten pound bag of flour or sugar for a day to get the message across that teenage pregnancy aint as cute as it looks???


I propose all journalists that wish to discuss food allergies and or any "gluten people" :ph34r: issue MUST order and eat completely gluten free / nut free in every every restaurant they visit for one full month :D


Oh...anyone know if those little handy dandy gluten test stripes are available for them to purchase to prove each meal they eat contains no cross-contamination????

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#871364 The New Celiac Drug Is Out There

Posted by GottaSki on 29 May 2013 - 05:55 AM



'this to shall pass' has been the motto turned joke between me and my kids too -- it really ought to be the Celiac Disease Motto ;)

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#871362 Rapidly Greying Hair While On Gluten Challenge?

Posted by GottaSki on 29 May 2013 - 05:49 AM

Oh deer! I thought once white always white so I was not concerned. My hair is just getting whiter. One Grandmother went White in her 20's. The other still had a lot of Black hair when she passed at 93. Before being diagnosed I thought the white was just genetic.


It can be genetic -- I have a friend that went white in his 20s...he remains the picture of health in every way.


just saying for me...seems it was an indication of malabsorption :)

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#871359 Rapidly Greying Hair While On Gluten Challenge?

Posted by GottaSki on 29 May 2013 - 05:46 AM

take your pick...I wasn't absorbing B12 D, K, Copper, and Zinc in both instances.

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#871177 My Only Celiac Friend Started Eating Gluten Again, And I Feel Alone.

Posted by GottaSki on 28 May 2013 - 12:47 PM

ps...here is a great thread to hang out and chit-chat and find some yummy things to eat:



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#871176 My Only Celiac Friend Started Eating Gluten Again, And I Feel Alone.

Posted by GottaSki on 28 May 2013 - 12:45 PM

Welcome Back!!!


Very sorry to hear your friend is dismissing the positive blood tests -- my guess is she will regret returning to eating gluten -- hope it is sooner rather than before irreparable damage happens.


My advice for you is continue living your own gluten-free life -- take care of yourself -- maybe hang out here as there are many of us that were the only celiacs we knew before we were diagnosed.


Great to see you here again :)

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#871175 Biopsy Results Inconclusive; Early Celiac, Sibo, Something Else?

Posted by GottaSki on 28 May 2013 - 12:41 PM

So frustrating....


First -- not having the two genes generally tested for can NOT rule out Celiac Disease -- although my guess is you are carrying them.


Second -- request a written or electronic copy of both the procedural report AND the pathology report and let us chime in if you feel comfortable to do so.


Third -- the most important factor is your improvement gluten-free :)


Hang in there!

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#871172 The New Celiac Drug Is Out There

Posted by GottaSki on 28 May 2013 - 12:27 PM

Hi ABQ--


I agree with what others have said above....thought I'd add if you want a good giggle...go back and read what some of us were posting our first months gluten-free -- we all stomped our feet :angry:  threw a few pity parties -_-  and were at times pretty darn grumbly  :wacko:


nearly all posts on this site come from a place of wanting to help others get through what we all have -- hopefully with a bit less heartache  :blink: along with avoiding many of the pitfalls we tripped over  :ph34r:


Hang in there  :wub:

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#870696 Do You Think Celiac Disease Is Likely With The Family History I Have?

Posted by GottaSki on 25 May 2013 - 03:52 PM

Sorry... Once again I am very frustrated about this! My blood tests came back negative and I just had an endoscopy yesterday and am just waiting for the results...


I feel like family history on my moms side could indicate celiac...


My great grandmother died of multiple myloma.

My grandma has been going to the doctor for a reoccurring rash on her bottom, but her tests were negative... She got a referral to a GI but now canceled her appointments..

My mom had lupus

And now I got diagnosed with a hiatal hernia and GERD from my endoscopy..


We all have a history of anxiety and depression.. I'm trying to be patient but the closer I get the harder it issss!


So, all I'm asking is, Do you think all of these family problems could be related to celiac disease??


It is certainly possible.


Now that your endoscopy is complete...you can remove all gluten.  Often the dietary response is the most important factor for Celiac Disease or Non Celiac Gluten Intolerance.

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#870688 Is Coeliac Disease The Only Thing At Play?

Posted by GottaSki on 25 May 2013 - 02:04 PM

Are you eating simple whole foods?  Processed foods -- gluten-free or not can often be tough on the healing digestive system.


Dairy can also be tough until healing happens.


A food/symptom log can be very helpful in sorting out possible problem foods you are having during transition -- if a food (other than gluten) is bothering you...remove it for a while and then try it again after a week or more.


Hang in there :)

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#870218 The New Celiac Drug Is Out There

Posted by GottaSki on 22 May 2013 - 07:57 PM

Ya....that is not my understanding of the items currently in various stages of testing...also find it strange that someone diagnosed nine years ago has yet to find good tasting gluten free food.
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#870192 The New Celiac Drug Is Out There

Posted by GottaSki on 22 May 2013 - 04:35 PM

Certainly interesting...glad to hear these trials are finally progressing...they were on hold for a bit there.  I do know that after the damage that gluten has caused me along with my children I don't think we will ever join "the gluten loving americans" mentioned in the article.


That said.... I would love something that could be taken to avoid cc issues for my kids and grands...someday...once it has been thoroughly tested -- and should that day come I can't see pounding the gluten -- would only use it to safely dine out of our home occasionally without the whole research, question and pray method currently being used by most of us.

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#870134 The What's For Dinner Tonight Chat

Posted by GottaSki on 22 May 2013 - 09:53 AM

Zippity Doo Daa!


I aced my Bio final even though I was falling asleep at my desk due to Benedryl to counteract the allergic-type reactions I've had this past week!!!  and I am such a PITA that the professor emailed me to tell me as he knew I'd be tracking him down to find out :D


Teaching the son to make chili got post-poned so we are about to do it right now for dinner tonight :)

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#869877 We Need To Start A Thread On Stupid Stuff Doctors Say!

Posted by GottaSki on 21 May 2013 - 05:59 AM

Well before I had my thyroid out I was having a pre discussion with the surgeon about the procedure and what to expect. He seemed to bounce around the office like zebedee and proceeded to explain how he just "whips out the thyroid and lobs it into a bucket" ... no wonder I was extra nervous and was right to be so when he woke me up in the middle of surgery to explain how he'd cut a vocal cord! Everytime I think of him, I imagine him not having a steady hand cos of all the jigging about he does :( grrrr, luckily with alot of vocal therapy and praying my voice is finally back, no thanks to him!

I missed this post grrrrrrrrrrrrr is right! Very glad you have your voice -- but very angry to read this story!
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