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Member Since 13 Mar 2009
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#870192 The New Celiac Drug Is Out There

Posted by on 22 May 2013 - 04:35 PM

Certainly interesting...glad to hear these trials are finally progressing...they were on hold for a bit there.  I do know that after the damage that gluten has caused me along with my children I don't think we will ever join "the gluten loving americans" mentioned in the article.


That said.... I would love something that could be taken to avoid cc issues for my kids and grands...someday...once it has been thoroughly tested -- and should that day come I can't see pounding the gluten -- would only use it to safely dine out of our home occasionally without the whole research, question and pray method currently being used by most of us.

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#870134 The What's For Dinner Tonight Chat

Posted by on 22 May 2013 - 09:53 AM

Zippity Doo Daa!


I aced my Bio final even though I was falling asleep at my desk due to Benedryl to counteract the allergic-type reactions I've had this past week!!!  and I am such a PITA that the professor emailed me to tell me as he knew I'd be tracking him down to find out :D


Teaching the son to make chili got post-poned so we are about to do it right now for dinner tonight :)

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#869877 We Need To Start A Thread On Stupid Stuff Doctors Say!

Posted by on 21 May 2013 - 05:59 AM

Well before I had my thyroid out I was having a pre discussion with the surgeon about the procedure and what to expect. He seemed to bounce around the office like zebedee and proceeded to explain how he just "whips out the thyroid and lobs it into a bucket" ... no wonder I was extra nervous and was right to be so when he woke me up in the middle of surgery to explain how he'd cut a vocal cord! Everytime I think of him, I imagine him not having a steady hand cos of all the jigging about he does :( grrrr, luckily with alot of vocal therapy and praying my voice is finally back, no thanks to him!

I missed this post grrrrrrrrrrrrr is right! Very glad you have your voice -- but very angry to read this story!
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#869527 Should I Go To A New Gi?

Posted by on 18 May 2013 - 03:28 PM

I would go to a GI that specializes in celiac disease.


Your endoscopy sounds like damage from celiac disease...do you have the pathology report along with the procedural report?


The most telling piece of information is your improvement gluten-free.


Also of interest is a Total IgA is low...just not out of range which could mean the IgA blood work is of no use.  Have you had a tTG-IgG? or and AGA-IgG -- I do see you have a positive DGP-IgG.


Here is a simple explanation of the Marsh Scale for Celiac Disease...note Stage 1 and 2 are not specific to celiac disease...yet damage plus positive DGP-IgG plus familial history plus dietary response seems like Celiac to me:


Here is a basic explanation of the Marsh Scale used to type Celiac Disease.

Stage 1, the cells on the surface of the intestinal lining (the epithelial cells) have more lymphocytes (white blood cells) among them than normal - Stage one is not specific to Celiac Disease.

Stage 2, the changes of Stage 1 are present (increased lymphocytes), and the crypts are larger than normal. 

Stage 3, the changes of Stage 2 are present (increased lymphocytes and larger-than-normal crypts), and the villi are shrinking and flattening (atrophy). There are three levels of Stage 3:
3A--Partial villous atrophy
3B--Subtotal villous atrophy
3C--Total villous atrophy

Stage 4, the villi are totally atrophied (completely flattened) and the crypts are now shrunken, too.


PS...there are many gluten-free beers available.

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#869418 I've Been Gluten Free For One Year!

Posted by on 17 May 2013 - 07:50 PM

Happy First Birthday!

Sorry you aren't feeling great yet...but as you point out you have learned a lot...this knowledge will bring healing...unfortunately it can take months and years...doesn't seem fair...so stomp...yell..I have a time or ten and then get up tomorrow and try again...one day (hopefully very soon) you will be amazed by the improvement.

Until then...hang in there :)
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#869173 Mushroom (Neroli) Memorial Thread

Posted by on 16 May 2013 - 02:29 PM

Exactly right....God has scooped up one of the best.

Through tears I type...Shroomie you will not be forgotten - by me - or by countless people that you graciously advised with accurate along with sensible words...each and every day that you were able to do so.

Often late in the evening we would be the only mods online and would tag team --- I have missed you each time you've been ill...but firmly believed you could beat anything in your path....we joke about super powers...but I was certain you actually possessed them.

Rest in peace my dear friend...I will miss you always..."my Lectin Cuz"

My prayer today is for Neroli's husband, family and friends that they will find peace and that Shroomie has left a bit of her strength and determination behind to help them through the days to come.
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#868612 Got Glutened. Hoping For Some Insight.

Posted by on 14 May 2013 - 07:45 AM

I got glutened in a bar once when all I had was ice water.  Have a look at how they wash the glasses and how the ice is stored.  I should mention that I am very sensitive so typical celiacs shouldn't have to worry about this.


It is possible to stay safe for everyone -- no matter sensitivity...it simply takes planning.  I am intolerant of a multitude of foods and have a severe problem regulating histamine so my body can't cool itself.


Yet....yesterday I spent the day at the zoo with Biology class -- in 90 degree heat -- impossible?  No...I carried a small hydrosize backpack with frozen water bottle, ice pack, umbrella and a couple bandanas to wet down when in need cooling...a bag of almonds and a chicken leg -- made it fine and some of my classemates borrowed the umbrella that they chuckled at when I first popped it outta my little pack.


I drink water and sometimes wine in every establishment I deem safe -- that would include the bars I have visited since gaining my life back.

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#868386 Shocked And Overwhelmed

Posted by on 13 May 2013 - 06:57 AM

Welcome Michael!!!


You are off to a great start - with time it gets easier to pack some of your own food even on the go -- if you have In and Out near you --- that is our family's go to fast food.  The only gluten in the place is the buns and they have a very good "gluten" policy.  We still say we have a wheat/gluten allergy - celiac is not an allergy -- but telling any server you have allergies usually raises the level of caution -- especially in places where waitstaff are a bit tired of the "fad" gluten free diet folks.  We save the heals of our gluten free bread loaves to use as burger buns...but these can be eaten 'protein style" (wrapped in lettuce) in a pinch.


Stay safe....make sure you read the "Newbie 101" thread and ask as many questions as you need -- the transition is tough but it happens much more quickly when you ask questions.


Hang in there :)

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#867257 Anaphlyaxis

Posted by on 07 May 2013 - 08:54 AM

Hi JM!


This happens to me -- but mine didn't come on suddenly -- for years I couldn't tolerate exercise in warm weather...it got worse and now I have had several anaphylactic episodes...one was triggered by Sunflower Seeds during an elimination trial diet and the others have had not exact source -- the last one took two epi pens en route to the hospital and got worse once there.  


Until you know what the trigger is -- please ask your primary for an epi pen prescription -- these reactions can get worse each time -- I hope yours do not...but do carry Benedryl and Epi Pen with you.

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#865290 The What's For Dinner Tonight Chat

Posted by on 25 April 2013 - 02:03 PM

Dinner Peeps Dance Party!!!!












Sorry had to.... that dude is too stinkin' cute :wub:

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#864746 Gluten On Dishes? Being Too Careful?

Posted by on 22 April 2013 - 06:30 PM

We evolved into a completely gluten-free kitchen -- during the transition we had separate cookware and utensils for things that touched gluten -- some have separate cookware and utensils for the gluten-free items -- either way is good.  Again, for me -- plates and utensils become clean with washing and I never worried about them.


I found the advice offered answered the OP question quite well -- trolling has nothing to do with honest answers to a question posed here.


PS>>>edited to add -- Welcome Laura - that was not a stupid question - hang out and make sure to read the "Newbie 101" thread and feel free to ask more questions :)

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#864054 What A Difference A Year (Well Four Years) Makes!

Posted by on 18 April 2013 - 05:58 AM

:) Happy Belated First Birthday Colleen :)


I'm too stubborn for the stinking chair  :unsure:

-- at least I was at age 45 and 47 :huh:

-- might be fun in a few years :P


-- we can race them to the dinning/party room for L2T's scrumptious dinners ;)

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#863953 Celebrate With Me!

Posted by on 17 April 2013 - 12:54 PM

Zippity Doooo Daaaaa - Zippity Ehhhh -- My o my what a wonderful day!!!




That made my week, nay month -- perhaps even this year!!!!


Oh darn it -- those pesky happy tears were bound to hop out and there. they. are.  Good tears are wonderful -- think I'll enjoy them and your good news for a few moments before I get back to it.


Great Big - HUGE Hugs :)

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#863798 The What's For Dinner Tonight Chat

Posted by on 16 April 2013 - 04:55 PM

Mushroom Risotto (dried chanterelles, porcini, wood mushrooms that were reconstituted with Sherry) with mushroom powder (I also pulverized dried porcinis in my spice grinder to make it extra mushroom-y) PLUS used mushroom stock

Juniper, Bay and Vanilla Poached Shrimp over Beet Coulis (with lemon juice, horseradish, etc.), scattered with baby arugula and sprinkled with toasted pine nuts

Steamed broccoli


That's about it.  ^_^


See this is how the plot started -- we are all turning into cave peeps and L2T passes thru with unbelievable food that smells absolutely mouthwatering....that's it I'm hooking up the dogsled ;)

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#863752 Initial Success With Going Gluten Free Only For Symptoms To Return

Posted by on 16 April 2013 - 11:57 AM

Here I am -- I, like IrishHeart have had several setbacks while remaining as gluten free as possible in this world.  


What she has typed contains loads of valuable information - I have nothing to add - just confirm that I agree that histamine containing and histamine inducing foods could be a piece of your puzzle.


Here is a link I like to use for a broad overview of Histamine Intolerance - commonly (not in the US) referred to as HIT.




Keep looking for answers -- when celiac or gluten intolerance does not completely resolve with careful removal of gluten it is time to look to other foods - in my opinion and personal experience.


Hang in there :)

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