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Member Since 13 Mar 2009
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#923379 Boston- Four Thumbs Up!

Posted by on 09 July 2014 - 07:39 PM


Gluten Dude, Jules Gluten Free, Dr. Fasano and our own IrishHeart :)
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#923374 Boston- Four Thumbs Up!

Posted by on 09 July 2014 - 06:27 PM

No, it is an excellent full shot of four beauties smiling poolside in Orlando (including IH)....I can post it if you'd like ;)

While I also love our Dr. F.....my favorite photo above is the pure joy on your son's face....aside from the medical aspects....this trip did so much to encourage both of you to travel....priceless!

Nicely done Gemini and Irish....don't forget that itinerary...my trip to Boston is still in the works...best guess today is November :)
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#923308 5 Years Gluten Free- Encouragement For The Newbies

Posted by on 09 July 2014 - 11:20 AM

I've been gluten free for 9 days.  It seems over whelming, glad to read such an encouraging post.

Welcome Kate!

It is overwhelming at first, but after some time it will become easier and eventually simple. I was in tears regularly at the grocery store in my early days....and I'm not the only one.

Keep it as simple as possible, stick with mostly whole foods ... Shop the perimeter of the grocery store where they keep the fresh foods...keeping the processed gluten-free items as treats.

If you haven't read this yet...give it a good read, perhaps twice...loads of fast forward info in it:


Hang in there :)
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#923234 Results All In - Still Confused...

Posted by on 08 July 2014 - 08:45 PM


Has there been DGP-IgG or AGA-IgG blood tests run. Given the IgA deficiency I would highly suggest completing the IgG based tests. Together with positive tTG-IgG, positive gene and symptoms it paints a picture of celiac.

Once the blood has been drawn, then remove gluten. At that age, if gluten is causing symptoms you should see improvement quickly.

Also, as Nicole mentioned - request written or electronic copies of both the procedural AND pathology reports from the endo...these reports often include valuable information that is not significant unless considered in the context of serology and symptoms.

Hang in there...sounds like you are on the right track :)
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#923019 Which Came First?

Posted by on 07 July 2014 - 11:10 AM

I forgot to ask, which comes first? leaky gut or celiac? does one cause the other and same with arthritis, which causes arthritis?

It is kind of a 'chicken or egg' type question ... in my opinion. When I was initially diagnosed I firmly believed that the damage caused by celiac disease is what caused my other food intolerances and lingering autoimmune symptoms.

Five years later I have read quite a bit, spoken with several experts and now think I may have had another functional digestive disorder since birth that triggered the celiac gene....but have no way given where science is today to confirm which came first.

For most folks if their autoimmune symptoms resolve with the complete elimination of gluten....it would seem they had primary celiac disease that triggered the other AIs. For those of us that take years to improve, it would seem possible that another disorder was primary.

Again...all of this is my opinion and I welcome any additions that prove celiac is the primary disorder in health puzzles similar to mine.
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#922989 Results Help Please

Posted by on 07 July 2014 - 09:16 AM

Welcome to the club!

Your tests are indeed all positive for Celiac Disease. With those numbers you should get a fast forward for an appt with a GI that specializes in Celiac Disease or minimally has experience in this area.

You should meet with the GI to discuss your results and decide if the endoscopy is your next step. The reason to get in quickly is...once you decide to have OR not have the endoscopic biopsy you will be able to plan the complete removal of gluten from your diet. Until this decision is made keep eating at least one slice of glutenous bread per day!

I'm on mobile, but will be back with the link for the "newbie 101" thread.

Hang in there :)

Here ya go....
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#922820 Feeling Good On Gluten?

Posted by on 06 July 2014 - 12:54 PM

Apologies. When I first did my research into opiod peptides in gluten years ago, I didn't realize that anyone had made claims that gluten had the same effects as heroin in the brain. I should have clarified when I made my first comment that just because they fit into the same receptors, doesn't mean the opiod peptides in wheat have the same effects as heroin.
That said, in one of the links Irish Heart provided that debunks this claim, the author does link to this study in mice that showed that one of the opiod peptides in wheat has been found to produce various effects in the peripheral and central nervous systems that facilitates learning, reduces anxiety, and when introduced directly into the brain, produced analgesia (pain killer).

There is another study that found that some of the opiod peptides in gluten appear to be inactive, while the most active were equivalent to a low dose of morphine. http://www.sciencedi...196978184901803
There was a study that specifically looked at whether or not opiod peptides were addictive and found that they definitely had an effect that involved both dopamine and serotonin. http://www.sciencedi...026049581901724
And another that relates opiod peptides to addiction. http://www.sciencema.../4404/415.short
But much of the issue that Irish Heart brought to our attention appears to be semantics. Of course I'm having difficulty taking seriously anyone who misuses the terms hypothesis (unproven) and theory (scientific evidence exists). But it appears that opiod peptides fall right in the middle on the scale. On one end, it is not "proven". On the other, it isn't just complete conjecture that hasn't been studied yet, a hypothesis. Rather if falls right in the middle as a theory and that scientific evidence does exist. 
I agree that gluten should not be equated to heroin so I should have been more careful in my wording earlier. And though it may not be "proven" that the opiod peptides are what makes gluten addicitve, there is evidence to suggest as much.
And Irish Heart does quote a mention of leaky gut playing a role. I personally am not a fan of the term leaky gut in general because it is so often misused in nonscientific claims. But I'll eagerly await a study of the hypothesis that a damaged digestive system could be more porous, which could be a reason why someone might have a stronger reaction to the properties of gluten than someone whose digestive system is working ideally.

Wow...that is a lot of information....none of which is needed to answer a question that may not have a single answer. Gluten makes Dania feel calm.

Welcome Dania!

I am one that encourages initial testing for celiac disease before complete gluten removal as that data can never be replicated.

Hang in there :)
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#922223 Newly Diagnosed With Questions!

Posted by on 01 July 2014 - 09:30 AM

Yep, what Irish said.


Hang in there...the first six months are the hardest...between learning curves and wonky digestive systems and the wonderful encounters with family and friends that "know" all about this gluten-free thing ;)


Hang tough...it gets much better :)

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#921031 Brain Fog Please Begone

Posted by on 20 June 2014 - 11:06 PM

I find that lots of water and a good workout helps clear my head. It is really hard but 30 min-1 hour of light cardio makes a big difference for me and was essential during the first few months.
On a side note, I didn't completely get rid of the brain fog until I eliminated the gums. Just something to consider if you still don't feel well and are certain it isn't cross contamination :)

Forgive me....in my opinion if your head clears with exercise, additional water or slight dietary adjustment....

Consider yourself very fortunate to have never experienced the level of dysfunction we are speaking to ... We always try to lighten serious bodily dysfunction...but this does not mean we take any of these matters lightly.
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#920918 The What's For Dinner Tonight Chat

Posted by on 19 June 2014 - 04:59 PM

Oh boy am I having fun now!!!

Oldest son...he's the one dx'd for anyone keeping count....he's got his friends over for movie night.....love these things cuz his friends always have some food requirements....I'm vegan, I'm veggie, I only eat grass fed....blah, blah...you get the idea. Anyhow....this group is new since my seven mon nap last year...so, here is what's for dinner:

Just threw a huge assed can of diced tomatoes in KFG with fresh basil and oregano from my silly little garden.. oh and some garlic, salt, sugar and squeeze of lemon....May have dumped the wine I was drinking in too ;)

Told oldest he is in charge of the noodles....pulled out the big stock pot filled with water and left three packs of spaghetti next to it.

Ran back for a dip in the cooling pool and remembered my piggy men polished off too much cheesecake to be able to share with 12...so filled an extra pie crust I made with cheesecake with apples cinnamon .... A half bag of Betty's yellow cake mix and some melted butter on top and put the younger one in charge of that.

Now that I have updated the important peeps...I am jumping back in the pool.
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#920714 The What's For Dinner Tonight Chat

Posted by on 18 June 2014 - 11:28 AM

hmmm what the hell is for dinner now that I am reliving all the scary apartments I had to visit in my property management years -- ewwwwww


let's see -- kids left some very nice organic handfed (joking) chicken breasts in my freeze...thinking tacos will cheer the recovering patient -- maybe...grouchy pants, but thankful he is on the mend and simply coughing, tired and grumpy.


dessert is cherry cheesecake -- sister's birthday so i made individuals in custard cups so one of the kids could run them up...tried to get them ready early this morning as I needed to run up to take care of Mom...oh well delivered a meatloaf dinner ready to throw in the oven and one of the boys will run up dessert...done :)


Oh...have to attach a pic later of one of the best kitchen gadgets ever...a little piece of wood with a nail you use to remove cherry pits...can't remember where I saw for sale, but asked hubs to make me one a while back but hadn't really tried it for large quantity of cherries until this morning....AWESOME and so flippin' simple :D



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#920069 The Funny Pages - Tickle Me Elbow - The Sequel

Posted by on 12 June 2014 - 01:17 PM

100% of all peeps exposed to water will die...roflmao


:lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol:


That is funny stuff, right there...I do believe I'll be stealing that line very soon :P


I am so happy to have a line to counter one of hubs favorites :D


"Life causes Death."

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#920037 The What's For Dinner Tonight Chat

Posted by on 12 June 2014 - 08:55 AM

Happy 90th Birthday Irish's Pop!


I made a wish along with a small toast last night for a birthday angel to make my sick pup better today....hubs is up and eating...asked and answered.


Guess I have the first toast ready for this evening.  "Thanks Coach"  :wub:


Zoodles with Cilantro Garlic Sauce sound like an excellent idea to go with the wine ;)

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#919969 The Funny Pages - Tickle Me Elbow - The Sequel

Posted by on 11 June 2014 - 09:13 PM

I have been dealing with potty training a 3 year old beagle rescue... and this is humorous yet totally my life.  ::face palm::

Lmao...just had a visit from my kids, kidlets and their two dogs...great dogs, but the youngest somehow forgot the way to the back yard...doh! Been a long time since I stepped in poop ... Um don't think I ever have in the house .. Now where is that cute vomit dude when I need him?
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#918574 I Had A Dexa Scan Today. I Am In Limbo On The Results

Posted by on 31 May 2014 - 03:47 PM

I agree with Irish on this one. I'm glad you got good news, but unless you had prior measurable data ... This is great news, but far from miraculous.

Hoping the rest of your nutrient levels are good or improving :)
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