Jump to content

Follow Us:   Twitter Facebook Celiac.com Forum RSS      

Celiac.com Sponsor:

   Get email alerts  Subscribe to FREE Celiac.com email alerts

  arrowShare this page:
Celiac.com Sponsor:


Member Since 16 Mar 2009
Offline Last Active Apr 04 2014 03:08 PM

#890284 Do You Take Your Celiac Disease Seriously?

Posted by on 30 September 2013 - 10:39 AM

I take it very seriously. It is a disease, not an "I have it sometimes" illness. The Cold or Flu can go away, celiac doesn't. So it's important to consider ramifcations when "ignoring" a disgnosed disease. Although I get fear tactics may not work on everyone, for me it was either  I love being in pain and constantly sick or I don't. So, I don't and something as simple as removing something from your diet to feel better.....jeez thats easy. No treatments, no drugs, no surgerys.


I always say, "either your in enough pain to do something to heal yourself or not. if your not, then it must not be that bad, if it isn't that bad, then quit complaining." B)

  • 1

#879274 The New Celiac Drug Is Out There

Posted by on 12 July 2013 - 03:59 PM

While the article is entertaining to read.....(not sure I buy the legitamacy of it) it would be interesting in theory, but then many Celiac's would need to take something like this long term in order to see what the affects of the drugs are doing. And that I would gather would be dangerous for them and probably bad.


Then, I don't believe this is the right approach to celiac disease or any for that matter. There is no money in a cure, there never will be. Hence we have drugs that cover up/help or get rid of symptoms. But the bottom line is the disease still exits, so while the drug many help a person get through the day, the problem of a remaining disease still exists and that isn't exactly helpful for the long term.


While WE as advocates for our own health (because we have had to be in many cases because of the lack of education in our doctors) we can make good decisions about food and nutrition. While that may not cure us of our disease, it allows us to not depend on the drug companies to "take care" of our symptoms in the mean time. We can take care of that ourselves in a more reliable and natural way. And that is huge in the long term. It also should teach the next generation that they also have that ablity to become their own health advocates and stand strong for their decisions in health and how/what they eat. Because ultimately that is up to us as individuals.



  • 2

#878289 I Don't Know What To Do Anymore!

Posted by on 05 July 2013 - 11:33 AM

I would stick to a Paelo diet for a month and then slowly reintroduce items back in. Thats how I discoved I am intolerant to corn and cow milk products. Basically eat meat, fruit and veggies, no grains..except quinoa (maybe), I would cut all grains, but if your bored with food that might be ok. And no white potatoes. Only sweet potatoes/yams.


I hope you feel better soon.

  • 1

#809815 Interesting Info About Gluten Withdrawal

Posted by on 09 July 2012 - 01:17 PM

Irish, I think sucked/sucks is the perfect word. :D

I know when I did both together 3 years ago it was horrible, but since I did casein and gluten together it prolly wasn't that bad because I didn't know there was such a thing as casein withdraw. When I added casein/dairy back into my diet 6 months later, no issues I went back on it. Now, with colitis and constant D, I have removed it and I feel much better but I have been getting strange headaches and other withdraw like symptoms. Silly casein! I had no idea. Then to add "insult to injury" I stopped chocolate, soda and caffeine. :ph34r:

So sucked and is still a little bit sucking (almost done through the withdraw, I hope) for now. B)

We some tough folks for sure to be able to do what we do to modify and change our diets so heavily. Even my mom said to me last night, she doesn't know if she would have the strength to do what I have done with regards to my ability to follow a strict gluten free, casein free, nightshade free and caffeine free diet.

So kudos to all of us!
  • 1

#808297 Kraft And Cross-Contamination O.0

Posted by on 03 July 2012 - 10:54 AM

I think another way to look at this too is that Kraft and all others are businesses. Even though they are nice enough to be as honest and up front as they can be to the folks of the gluten free community....they still run a business and they still have to cover their butts legally from any folks that might want to sue them.

I think it's hard to look at things like this without some sort of emotional view because lets face it we have all been extremely ill and don't want to go back to being like that, so the though that our food isn't safe is kinda of overwhelming. But looking at this logically without bring in that fear of the emotional "omg I might get sick" aspect we can see that they are doing their best, they have been honest and they have to protect themselves legally. They are not out to hurt us or don't care about us per say, but at the same time the consumer has the power to either make or break them, so I think the gluten free consumers have backed them because of positive experience. I mean look at what we did to Domino's. :)

Take what you will from that but I think common sense and bit of logic when reading labels and making decisions might be the best practice.
  • 1

#718036 Negative Ttg...symptoms...and Gluten-Light.....how Conclusive Is This?

Posted by on 22 July 2011 - 10:29 AM

As a brand new celiac adult whose parents only did what they had hard evidence for despite a lifetime of sickness, I beg you to listen to your sons body and just try a gluten-free diet. A lifetime of sickness and disability that could have been prevented with a healthy diet change is well worth the parents' inconvenience, I think.

I agree with this, but also remove dairy as you remove gluten. That would be my first step. Then if he appears do be doing good, try adding dairy back in at a later date.

I know it's easier with "firm" diagnosis, but life isn't full of absolutes....so do what you can now as a mother. B)
  • 1

#717394 Why Do I Care If My Doctor Discounts My Experience

Posted by on 19 July 2011 - 10:26 AM

What I can't understand is the doctor's telling people the that "the diet is so hard". Really? Thats your cop-out. :angry: But then I forget, if they can't cover up the symptoms with pills, it just doesn't work for them. :blink:

Anyways, at least we can decide what food we can or can't eat on our own. B)
  • 2

#716837 Hard To Believe What Ive Become

Posted by on 16 July 2011 - 10:10 PM

It is a struggle isn't it? But "anything worth doing, is worth doing right." I get "freak outs" as I call them when going out to eat still even after 2 years gluten free and I probably will forever. BUT the one thing my hubby tells me is that if, IF I get glutened, it will pass. Yes it sucks and it's horrible, but it does pass and at that point you have to give yourself credit for trying and doing the very best you can not get glutened, but if you do, it will pass.

I don't understand why you don't just take your supplements at the table? I wouldn't be so concerned with everyone thinks. If they can't love you as you are with whatever is going on in your life, then they aren't worth any effort on your part. Don't be so hard on yourself. :)

Sending positive energy your way!!
  • 1

#709583 People Who "bailed" When You Were Sick/crippled With Pain?

Posted by on 17 June 2011 - 08:29 AM

I get it.

First, hats off to Hubby. It really is a blessing when your spouse or partner stands by you and loves you no matter what. But others don't always.

I had a friend since I was 8 years old (I am 32 now), but we were tight and sometimes I think my lack of a diagnosis got in the way of our friendship. Sometimes. Then I think I came to realize, during one of my friends events that we really weren't friends anymore and she was a very selfish person and had been for most of our relationship. I just chose to ignore it for many years. I was giving, she was always taking. I bear her no ill-will, but I don't need people like that in my life. She is entitled to behavior whichever way she chooses. I choose not to be friends with her.

I guess my point is that whatever the reason, there are people that we outgrow, don't mesh with or aren't on the same road during our lives. And if the illness that we have allows us to see that, then all the better. I even remember my oldest sister thought I was faking it for years, until I had that diagnosis. Then she felt bad, even still to this day I think she has guilt over not believing me.

There are new relationships to be made. I actually have a friend that I have known for 4 years now that is the most loving, giving person. Who ironically went through a bad bout of a mysterious illness as well, and it was nice to be there for someone as a friend. Especially since I never had that from mine.

Try not to take it personal, maybe just maybe they are feeling guilt or even afriad to approach you. Either way, your ok. Thats what is important. B)
  • 1

#702958 Hypothetical Question

Posted by on 27 May 2011 - 10:45 AM

Fun question, no I wouldn't eat it. But since I am on an island, I assume there is water out there with fishes in it. Fish works for me. :D
  • 1

#698038 Really Need Some Input On What To Do Next

Posted by on 09 May 2011 - 10:50 AM

I think the others have really good points and ideas. To add to it though, I am not sure 3 months is enough time to see results. I think longer is better, maybe not. There is a chance you don't have celiac disease or a gluten issue. But maybe you do.

Either way.. my first thought I had was are you sure that your 100% gluten free? Any medicines/vitamins you take? Wooden spoons, colanders, etc? I know from first hand experience going gluten free back in 2000 that I didn't feel better after 6 months, when I didn't realize the extent of where gluten was hidden. I was still eating it.

For example; the rice from El Pollo Loco. I thought, hey it's rice, there shouldn't be gluten in there. Wrong! And such continued for 6 months. Plus I was eating dairy. Dang, I felt like an idiot. <_<

So maybe cutting out dairy again might help too.

I hope you feel better. :)
  • 1

#694923 Truncated Ingredients Lists

Posted by on 25 April 2011 - 07:17 PM

All I can say is that in the U.S., the Lay's Salt and Vinegar chips are definitely gluten-free. And the vinegar is NOT malt vinegar.


Good to know, but I thought there were several comments on the fact that Lay's isn't a "gluten free" claimer, because their products are made on the same lines as gluten containing products. :unsure: And many peeps have had issues with their products that "look" gluten-free but they have a gluten reaction, called the company to find that there are shared lines.

Either way, call the company..me thinks. B)
  • 1

#693060 Puttin In Work

Posted by on 18 April 2011 - 10:32 AM

I am thinking you need a new doctor.

Any chance of that? I am not sure how that stuff works in Canada.
  • 1

#691598 Manager Bringing Gluten Free Cake

Posted by on 12 April 2011 - 10:50 AM

Maybe it's me, but I would really wonder if that cake was gluten free. If your boss meant well, great. But I have ran into way too many people that think it's all in your head, so they try to feed you gluten, just to see if you really do get sick from it. Almost like suddenly if we eat gluten we turn into the one-eyed, one-horned, flying purple people eater...while they are shouting..."they do exist, they do exist!" :P

I would probably handle it a bit differently. I would have asked what was put into it, how it was made. While commenting on how yummie it looked and how good it smelled. With much thanking and inquiring on it. Maybe even asking for the recipe before, in a nice way saying something like, "I really appreciate the effort; I just am crazy paranoid, because if there is one inkling of gluten I will be out sick for days."

  • 1

#691410 Protein Powder?

Posted by on 11 April 2011 - 01:20 PM

I had the same problem with protein drinks myself and really need to use them as I weight train. The one that works the best so far is one made by BioChem. I have tried a number of others and they did not agree with me, when used on a regular basis.

BioChem Protein powder is whey based but lactose free. The issue I was having with them was the fact that most contain gums of some sort, like guar or xanthan gum. These are the binders and I just do not digest them well at all. Maybe that is the problem you are having. BioChem seems to agree with me the best, although it does contain some xanthan gum. I do not use them everyday and I think that is key for me. 2-3 times per week, maximum, and I do fine.

While it is fine to avoid soy, the reference to it being "dangerous" is a bit dramatic. Many people do fine with soy but many overlook gums. They can be a real problem for Celiacs.

Sorry if my dangerous comment is bothersome. But Soy even if your not allergic to it or have a problem with it in the digestion sense..it is still a dangerous product that people really should do the research before consuming it.

It is the number one GMO'd resource on the planet and it has been linked to many medical problems.


Many folks think it's ok to eat, thats fine if you choose to eat, but at least in my mind I choose to be be educated about its dangers before eating it and I like to share with others. B)


The Pea Protein I use is here: http://www.vitaminsh...ection=vitamins
  • 1

Celiac.com Sponsors: