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Birdie_Is_Tiny

Member Since 22 Mar 2009
Offline Last Active Aug 17 2009 06:39 AM
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Posts I've Made

In Topic: Help For My Holiday!

08 August 2009 - 07:12 AM

If you want a snack-like thing to keep with you, Cliff nectar bars are wonderful. They are available at Wegman's and I think I have even seen them at Tops. They are made on dedicated equipment, they have lots of yummy flavors, and are very good for you.

I recommend Red Robin if you like burgers!! Their gluten free menu is wonderful and they have delicious fries.

Also if you visit an outback steakhouse, the chocolate thunder from down under is an extremely tasty gluten-free brownie.

Good luck!

In Topic: Anyone Else Told To Eat Gluten Again For A Biopsy?

08 August 2009 - 06:08 AM

Jerseyangel...so glad you mentioned hiccups. I've had hiccups off and on for the past 3 years. A recent endoscopy showed I had a hiatal hernia.

My gastro doc also wanted me to go back on gluten in order to do another endoscopy....(the gold standard). I refused. An endo one year ago showed no damage to small intestine.....I had been off gluten for almost 2 years, and have issues with grains, including oatmeal, soy, milk, casein,nuts,sesame,chicken, in addition to lactose intolerance.EnteroLab tests were positive,(double genes) blood test for celiac negative. No one told me I was supposed to still be eating gluten when the "official" celiac blood test was done.

I refuse to go back to gluten, or any other of the foods that cause a problem, just so I can have positive test results. I get very sick 24/7, and I see no reason to be a glutton for punishment.



Could you two maybe give me some more details on the hernia? Is it likely at all that that could be my problem? I didn't do the gluten trial, but my doctor called me to say that he wanted me to get HLA-typing instead. So I had that blood test, and called for the results. He informed me that the test had come back negative for celiac. I have an appointment with him to discuss that on the 24th, but I was wondering if anyway could give me any insight on this. Is it possible I have a gluten intolerance aside from celiac? Is it possible that I do not have a problem with gluten? I've been researching it but it is very frustrating and confusing. I saw an improvement on the gluten-free diet but the past month or so my symptoms have been slowly returning and I'm wondering if maybe there is a different explanation for my frequent nausea and stuff.

In Topic: Anybody Who Loves Jesus? :)

21 June 2009 - 12:22 PM

Yep me too. I think his Dad is pretty neat too!


that's great, love it. :)

.....does anybody else kind of chuckle when they're saying the Lord's prayer.... "Give us this day our daily bread...." I always want to say "Give us this day our daily...rice bread." lol

In Topic: I See Things That Are Not Real Or There When I Wake Up Sometimes?

18 June 2009 - 06:20 PM

I often wake up hearing music that isn't there. Have done this for many years. :)



Me too! I once walked around my house putting my ears to all the radios, stereos, and the tv because I was certain I could hear Madonna. Nothing was actually on it creeped me out! Also, why Madonna? lol

In Topic: Husband Having Trouble Understanding

18 June 2009 - 03:47 PM

Can definitely relate. My family is so skeptical when it comes to cross contamination. My sister rolls her eyes like I'm just looking for attention. My dad has trouble understanding my nervousness about shared cutting boards. My mom will be catious but kind of acts like she's just doing it to humor me and doesn't think it's neccessary. My whole family has this attitude that says, "It can't really be that bad." It is incredibly frustrating to be treated like I'm paranoid, crazy, or persnickity. I am a fairly intelligent young woman and I really dislike being treated as though I don't understand my own medical condition. It hurts that my own family could believe that I would be such a pain in the butt about having non-contaminated food if it wasn't required. I'm not a very assertive person by nature but I have learned that I need to be in order to avoid stomach pains, irritability, depression, and severe nausea. It's so isolating that everything involving food turns into a huge ordeal.