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Ems1984

Member Since 05 Apr 2009
Offline Last Active May 18 2009 05:03 PM
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Posts I've Made

In Topic: Very Encouraged

18 May 2009 - 05:03 PM

Hello,

I'm so glad to hear that you're feeling better, and am glad I saw this posting so I could write you. I, for years, have had symptoms similar to celiac, but have recently tested negative for the disease (both blood and endoscopy). With the doctor's help, I self-diagnosed myself with gluten intolerace. I have been gluten free for 4 days and nothing has really changed, which is extremely discouraging.

As you think back on your experience, how did your first couple of days go? I realize that everyone is different, but am trying to put things in perspective for myself.

Thanks!


Hi There!!

Thanks for your message :)

Just wondering if you're able to tell me what your symptoms are? Its important to remember that celiac symptoms are similiar to a few other conditions also. For example, lactose intolerance has similiar side-effects such as gas, bloating and diarrhea.

Whilst your tests came back negative, the only real way to work out if you cant tolerate gluten is to eliminate it from your diet completely for at least a month. Be mindful of foods that you wouldnt necessarily think contain gluten such as some soy sauces, soft drinks etc.

In terms of nothing changing in the last few days for you, dont be discouraged! Depending on the damage to your small intestine, it can take a while for the healing process to begin to show. Have you tried doing a food journal? I found this really helpful, i wrote down not only what id eaten but also any symptoms i could think of that could possibly be related. it really helps to look back over it and see when and where i had a reaction.

Im actually going to see a naturopath this week to work out if there are any other things going on in my body that im not aware of! whilst being gluten-free seems to help, i do have other symptoms going on that seem to occur regardless of not eating gluten.

but just give it time, and try to be as disciplined as possible, thats the only way you will know for sure what the problem is.

godd luck, and keep me posted!

Em

In Topic: Very Encouraged

30 April 2009 - 04:49 PM

oh and i ended up going to the Thai resturant and ordered a chicken stir-fry because the only gluten free item was fish and chips!!
i felt fine afterwards and started questioning whether or not my body can tolerate gluten. the next day though, i felt really fuzzy headed, lethargic and gassy... symptoms i usually dont question but now i can see their source

In Topic: Very Encouraged

30 April 2009 - 04:42 PM

[quote name='adelaidez' date='Apr 30 2009, 06:00 AM' post='529561']
Congrats, im glad your having success:) May i ask how long did it takes for your bloating to go down? and was it worse at first? i am trying to get past like 6 days being glutened free but i seem to give up and eat something with gluten in it as i feel that it isnt doing anything and my stomach is still bloated.

The bloating went down after a day of two... i had no idea it was gluten that was causing it, until i was 'glutened' one day and saw how much more my stomach stuck out! the further i am along this challenge, the flatter my stomach looks. i actually think after years of damaging my small intestine, it may still take a while for complete healing and a complete flat tummy...

well done for getting to 6 days!! i know how hard it is at first, the worst is prob eating out where you cant control what u eat as much... but the only way to truly know if the gluten-free diet is the answer to your symptoms then you really do need to be very strict! can i ask what symptoms you have? and have you actually been diagnosed with celiacs?

In Topic: Frustrated!

19 April 2009 - 04:30 AM

thanks for all your responses! i feel so encouraged being able to talk with people who have some understanding of how this all works!

i have been recording what i have been eating and also how my body has been reacting. i do think my increase in soy could be the cause of some of my latest symptoms...

but yes, will keep at it for a few more weeks!

In Topic: Blood Test Negative

16 April 2009 - 04:12 PM

total iga seems to be within the normal range -- if a bit on the low-normal side (numerically). this may or may not have any clinical relevance; so, you need to check out the laboratory-specific ranges for your sex/age. this should be included in the report.
i assume that other things were tested as well..... ????


Thanks for that!!

Here's the specifics of my results

Endomysial antibody - negative
Tissue transglutaminase IgA - 0 U/ml (<7)
Total serum IgA - 0.96 (0.69-3.10)

thats all i can see that relates to the coeliac screeing...