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Member Since 13 Apr 2009
Offline Last Active Mar 10 2013 03:21 PM

#654298 Need Some Advice For Thanksgiving

Posted by on 17 November 2010 - 05:47 PM

I agree with all the other posters (above) who have suggested that you bring your own food. I think this is the smartest choice. You could prepare your own turkey (or get some from a gluten free restaurant or caterer) and carve it up to take with you. If you have a cooler, you're set.

I have a cooler that plugs in and I have a car with an outlet...so I'm able to take the cooler from house, to car, to destination and keep my food cold (I got mine at a hardware store).

In your shoes I would prepare my own thanksgiving dinner, buy some great gluten-free rolls from a local bakery and take my own meal (and I usually make MORE than I need so that there is an abundance of food for me and it feels celebratory)

Good luck

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#648751 Packed Lunches

Posted by on 24 October 2010 - 01:40 PM

hey there:

I was a vegan and going gluten free as a vegan is VERY difficult, particularly if you have other food intollerances.

I'm not clear on why you would completely take out the possibility of sandwhiches. As a student, a sandwich is a pretty easy 'go to' food. Find a bakery that makes good fresh gluten free bread and take sandwiches to school each day! There are gluten free deli meats. Can you have cheese? If so, pack cheese or make cheese sandwiches.

I appreciate that gluten-free bread can be expensive, but I think it is worth it (in your situation), particularly as you need portable food.

Snacks = fruits (bananas are one of my favourites) and veggies. When I was a student, I used to love packing baby carrots and sugar snap peas.

I have a peanut allergy, but you may be able to have nuts, etc. Pack that.

Trail mix (there are good gluten-free ones OR to save money, make your own).

How about gluten-free yogurt? I am sure you have the capacity to pack some things that need to stay cool (I used to pack yogurt in my lunches, using a lunch bag designed for the purposes of keeping food cold).

How about left overs? If you have a big stir fry, why not pack the leftovers? Do you like corn pasta? I find it works well for things like beef strognaff, etc. Sure, you'll eat it cold. So..still tastes good. You can put it on a good corn version of the rice cake (I hate rice cakes, but the ones made from corn are really good). Let's call it a corn-cake.

On that note, take corn-cake. Buy some cream cheese (assuming there is a food court that sells these things) and put some corned beef (deli meat) on it. Great combo. Very yummy.

If you have the capacity to keep things cool, pack tuna or salmon. mmmmmm. You can use lettuce as a bread substitute.

I also find that you can buy gluten free hard shell tacos...pack for lunch along with left over stir fry. At lunch, mix crushed up taco shells with the stir fry.

Pack salads.

PS - almost forgot: Cook up a gluten-free pizza and take that. Kinda expensive and not as healthy, but it works.

quote name='Hamster101' date='24 October 2010 - 02:22 PM' timestamp='1287955371' post='648742']
Hi there. I haven't known about being coeliac for very long and as such am still adjusting to the lifestyle. My first move was to replace all my old non-edible stuff with gluten free versions - something I'm now weaning myself off of - but I really need some advice for when I'm away from home.

I was brought up on the ease of the sandwich as a packed lunch staple, but obviously now I am finding it much harder to do that when I'm trying to cut my replacement-food intake. I go into University from 7.30am 'til 5pm (7.30 being when I have to be on a bus to the station) and as such have no access to a kitchen, a fridge or a microwave for the whole day I am away from home.

What kind of food can I pack that isn't too much of a hassle to prepare? I'm stuck for ideas and could do with some advice.

On that note, I am struggling to find things that arent direct replacements of bad foods (pastas, breads and other wheat based things) to eat. Currently my diet revolves around peas, sweetcorn and bags/ tins of chilli con carne, and rice of various flavours. I occasionally have fresh meat, as frozen all seems to be packed with wheat, but that is expensive and my family cannot afford to keep it up.

Other than becoming a gluten free vegan, what can I do to help improve my diet and save my family some money?
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#638034 Do You Expect Relatives To Cater To Your Gluten-Free Diet?

Posted by on 08 September 2010 - 03:35 PM

I never expect my relatives to cater events in a gluten free manner. I typically bring my entire meal, today being one of those days!! lol. When they offer and take it very seriously, being aware of and taking steps to avoid CC, I am grateful.

I'm also grateful that I can go to these events, with my own meal, and feel GOOD the entire time...no feeling sick after dinner and wanting to get out of there and go home. When I was first diagnosed, I was overwhelmed..it seemed impossible to figure this diet out and I just don't expect anybody else to do that...especially in the time frame I needed to do it. Not everyone needs to be an expert! Just me. Over time, my relatives have become more educated.

But, no. I don't expect other people to understand all the issues related to the gluten-free diet or celiac disease. I just expect them to be gracious when I say, "thanks for making that pie, but I"m unable to eat it because....."


Thank you!!! I'm glad to hear that everyone thinks my in-laws are being accommodating. I wanted to believe that. I think you're right--a lot of it is just misunderstanding and not knowing what is safe and what isn't. I guess I expected my entire extended family to start Googling celiac and to automatically know what has gluten and what doesn't. But that's just me, I guess. And I truly cannot believe grandparents would knowingly gluten a child. What a horror show! I think I would stop speaking to relatives who did that. I'll count my blessings and just keep providing food for my daughter and know it is safe. :)

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#637800 Food Pantry Issues

Posted by on 07 September 2010 - 07:21 PM

Well, the person you spoke to at the sally anne should be ashamed of him/herself. The idea that you would be spoken to rudely is disgusting to me. And the idea that you would be sent away without the help you require! SHAMEFUL!

Do you have Saint Vincent de Paul in your neck of the woods (if I have the spelling right). It is a Catholic run service and, frankly, I find that the Catholic run assistance and outreach programs are much more client centred and helpful.

At this juncture, you are going to have to be your own best advocate. You know what - you need to attend at a large well organized food bank, the bigger the better, and by pass the volunteers! Speak to the social worker, director or nutritionalist. It is uancceptable that they are not meeting your dietary needs. Take medical documentation with you. I am right fecking angry about this.

The problem is that foodbanks typically carry crappy food, lots of regular pasta cuz it's cheap and canned goods cuz they are not perishable. Most of the canned goods will work for you. But you should have been given a certificate for the grocery store so you could buy meat, potatoes, rice, etc. GRRRR.

If you get nowhere, PM me.


Thank you for all you comments. To answer your questions:
1) I went to the salvation army the other day and was spoken to quite rudely by the people there who said "They were not a medical facility". IE take what you are given.
2) I was only given a few weeks of food stamps due to a recent emloyer who said I would be working full time by the 3rd. Unfortunatley, I won't start until the 21st of this month.
3) I am in the Winchester, VA area.

any other advice would be greatly appreciated.

Hungry Ken

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#637712 Food Pantry Issues

Posted by on 07 September 2010 - 01:10 PM

I'm sorry to hear you are going through such a hard time and encountered such difficulty at the food-bank. When I was a social service worker, I used to run a food bank and when individuals came in with special dietary issues, I would issue a certificate for the local grocery store so that the person could buy groceries in-line with his/her particular needs. I am hopeful that you happened across a one-off food pantry and that if you explain your situation, perhaps bringing a medical note, you will be treated with the dignity you deserve.

I also think that the folks on here have given sage advice -- find a church, one with an outreach program, and approach that church for assistance. Can you get special funding or emergency funding via social assistance as a result of your celiac diagnosis? What state are you in?


:( I'm sure someone has had to deal with this before. I have no job, I was put out of my house, and I'm subsisting off of social services, food pantries and soup kitchens. I do have a rood over my head. Unfortunately there is not a book that tells a person with celiacs how to cope in these dire circumstances. How can I get the food that I need when all the foods that are offered have gluten in them? The first place that I went gave me the attitude that I shouldn't be asking for anything special under these conditions. I have gluten-free food that will last the next few days. After that, it will be by faith.

Sillyken :)
(read a sign that said "keep smiling! Its the law!)

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#637029 "gluten Free Is All The Rage Now"

Posted by on 04 September 2010 - 02:13 PM

Hey Georgie -- sorry to hear you spent three days on the couch. That is so very frustrating - i hate missing my life because I've been gluttened. I fear that the fad quality of this diet may lead to grave consequences for celiacs if businesses want to capitalize on the fad diet without understanding the disease. It may be that there will need to be some legislative intervention at some point with regard to using the term "gluten free"... perhaps there already are regulations on this issue...I haven't looked it up.

That is my worry too. That all these people doing gluten-free on a casual basis because it is 'trendy' are making it look bad for those of us that have Coeliac and need to be zero Gluten.

I have just had 3 days on the couch as a shop sold my hubbie some 'gluten-free' biscuits. ( that were not 100% gluten-free). When he rang back to ask and eventually complain the store owner was like - oh they are not 100% gluten-free but most people do not react to them.... like it was no big deal to eat a gluten-free food that was only 99% gluten-free ..... and had not bothered to train her staff to explain the difference between 99% gluten-free and 100% gluten-free....

If I had bought that biscuit and eaten it immediately before driving the car I could have killed myself by driving off the road. ( I would not eat a new food now before driving but I used to in my early days). As it was I spent 3 days on the couch and been in a lot of pain. Hubbie had to ring back 4x before the store even issued an apology/we will train the staff / store credit....

GRRRRRRRRR...... :angry:

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#611869 Inin Need Of A Current Gluten Free Product List (Canada)

Posted by on 20 May 2010 - 08:18 AM

OP - if you PM me and send me your email address, I will send you my gluten-free information (if you don't mind me contacting you by email). I am in Toronto, diagnosed a year ago and have collected product listings from various canadian sources; thus, they are somewhat current.
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#549675 Anyone Unemployed Or Divorced Because Of Celiac?

Posted by on 24 July 2009 - 07:37 AM

A lot of what people have been writing really hit home with me. I have managed to find success in my career but at such a huge sacrifice to my personal life. I am married and my husband is great, but I had to fight so hard every single freaking day just to make it through. I had undetectable iron levels for months, I've been sick for 10 years.....always blamed it on the thyroid and told myself to TOUGH IT UP.

I toughed it up through undergrad (4 year program in 3 years), law school, and my articles. I overcompensated in EVERY ASPECT of my professional life to make up for being weak (i thought of my exhaustion as a weakness) and I focused solely on my career goals because I could only direct my energy one way..i didn't have enough energy to focus on it all: career, friends, and family so I made a choice: career. And EVERY day was torture. Headaches, pain, liver problems, extreme tiredness, foggy head. God, I used to think: I can't live my entire life like this. Then I'd say, TOUGH IT UP. God. It was such a terrible cycle.

Finally after some more serious health issues and dropping almost 30 pounds in three months I started to realize that my problem was not just a thyroid issue. I was in serious trouble. I started getting tested...grabbed all my medical records so that I had copies, found a good liver specialist and now I have a diagnosis of celiac disease and I"m slowly starting to feel better.

But I"ve neglected the personal aspect of my life. I mean, come on, when you feel completely wretched every day...there is NO energy left for friends

But I think we should all be proud of ourselves. Seriously, I look back at what I"ve accomplished and I KNOW that I'm very strong -- other people could not have coped and done so well when every day was like a nightmare. I think it is the same for a lot of you.

I"m trying to re-organize my priorities right now. I"m blessed at the moment because I am enjoying some time off.

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