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shandango

Member Since 20 Apr 2009
Offline Last Active Nov 15 2012 03:25 PM
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Posts I've Made

In Topic: Time To Conception From Starting Diet

20 April 2010 - 09:50 AM

I was gluten free for 5 years with occasional gluten cheating and now have been completely gluten free (no intensional cheating) for 1 year before I got pregnant. I was not intentionally trying to get pregnant either, it's almost as if my body just all of a sudden decided to become fertile after years of not ever worrying about becoming pregnant. I have had 2 miscarriages since I was 22 (also both not intentional pregnancies), I am now 30 and years of using NO birth control (at least 10 years to be exact). I never had the infertility looked into because I wasn't concerned about having kids so it was quite convenient for me.

Then last November I went in for a routine pap smear and while getting the check up my doctor examined my breasts which were terribly sore and we talked about my 12 hour menstruation in October and he decided a pregnancy test was necessary. Test came back positive and I was needless to say shocked as hell.

So please let your friend know it can take a long time to correct the infertility Celiac causes, but patience is a virtue.

Also I did not wait until I was diagnosed to go gluten free, my tests will never be conclusive but I know in my heart what is wrong with me and going gluten free cured all of my symptoms and lead to a much more productive life. I do not recommend my methods but my gastroenterologist told me himself the tests are not 100% reliable and he is certain I have Celiac, positive test or not.

Good luck!

In Topic: Gluten Free Vegans? New To Board.

22 April 2009 - 06:28 AM

Well I'm getting by so far. I made cookies last night. They aren't as good as I wanted them to be but with a little tweaking I think they will be much better the next time I make them, I don't think I used enough peanut butter.... for flavor.

Thank you everyone for your tips and suggestions!

In Topic: Fibromyalgia Or Celiac?

21 April 2009 - 05:58 PM

I was diagnosed with Fibromyalgia in 2000. Didn't find out about Celiac until 2005 and I suffered with pain and bowel issues for years before that. I went gluten free in 2005 and felt much better, not perfect but better. I was in so much pain that I had already chosen to turn to some serious pain meds. I started eating gluten again after a year to test the theory and it didn't seem to both me again for about another year.

Now I am gluten free, lactose free and off the pain meds. I am a firm believer that I never had FMS to begin with, I have Celiac. My blood test came back negative in 2005 and I never got a biopsy but as far as I'm concerned if the gluten free diet is working and I react as bad as I do, it's Celiac.

I had pain in every muscle of my body, the worst was arms and legs. I had restless legs syndrome, chronic fatigue, migraines and pretty much couldn't handle any activity for too long. I have now officially been gluten free completely for 2 weeks with no cross contamination or slip ups and am now also completely vegan. I feel wonderful. The last to go was the leg pain and I haven't had to take any pain killers of any sort for 3 days and this is after 8 years of being drugged up on something.

Is there a connection? Yes. I think the connection is that most doctors don't know enough about everything and they create these mysterious syndromes and diseases just to have a diagnosis without all the work. The reason I never stopped searching for an answer was that I was told FMS is not progressive, it shouldn't get worse and I was getting worse day by day. I knew something else was wrong.

I hope more people find the answers I have because so many are suffering needlessly.

In Topic: Dairy Sensitivity Better Or Worse?

21 April 2009 - 05:35 PM

I have been lactose intolerant for as long as I can remember, long before the gluten or anything else and one thing I noticed was there were certain dairy products I could eat and certain ones I couldn't. The two major ones I had to avoid were cow's milk and ice cream, with those I got the worst reaction, I won't go into details but it wasn't pretty. I could however usually eat cheese and yogurt without too much of a problem, so I did for many many years, actually until just recently.

I think a lot of it is listening to your body, trying things and seeing how you feel. With food sensitivities and allergies, it seems nothing really makes sense. For instance, I am allergic to rice. If I eat a bowl of rice or have rice krispies I am guaranteed a trip to the hospital but when I first found out about this, I had no idea how many things rice was in. So I still at Special K cereal and many other cereals with rice hidden in it without any reaction or very little reaction, maybe a sniffle. Now of course eventually the reaction got worse and that was when I realized what I was doing but it's touch and go with food issues for me.

I think you will be safe as long as you pay attention to what does bother you the most and avoid those things, use hemp or soy milk for cereal rather than cow's milk. You still get your cereal and no upset bowels.

In Topic: What Do You Tell Them?

21 April 2009 - 06:47 AM

If someone invites you over for dinner, how do you explain your intolerance to them? If you are with someone and they offer you food, how do you kindly refuse or ask the ingredients without offending them?

What if someone insists on having you over and wants to make a gluten-free meal for you? Where do you even begin to explain to them what you can and cannot have?

I'm just curious how you put it all in a nutshell and avoid being offensive.



I'm just plain old honest. My health is more important to me than their feelings. I don't get annoyed when people can't eat certain things at my house and I would expect the same respect from them. But then again, I never been good at dancing on egg shells for anyone. The way I see it, I suffered long enough not knowing and now that I know what is wrong with me, I make it pretty simple for everyone else. Plus I have had food restrictions most of my life anyways because I was vegetarians for years first, so I guess it helps that I'm used to saying no to people.

I also pretty much refused to eat anything from a box as I spent most of my childhood doing that so really I'm just honest with people. I will say something like "no offense but I have a pretty particular diet, if you are willing to work with me on that, I'll be happy to come over and eat with you. If not, I'll eat at home." Sometimes I do offer to bring something I can eat. Most of my friends and family are very understanding and cooperative, and those that aren't I figure just don't care anyways so what's the point of having them around?

Good luck!