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Member Since 02 May 2009
Offline Last Active May 10 2010 10:51 PM

Topics I've Started

How Big Is This Iceberg ?

30 November 2009 - 12:47 AM

I know that Celiac disease of the gut is just the tip of the Iceberg of the gluten and other food intolerance diseases that are plaguing humanity . It wasn't until this past March that I learned about celiac disease , I thank Celiac.com and this forum for a great deal of what I've learned. I've probably had celiac problems for 50+ years, like being short and asked to join the wrestling team my 1st year of high school, they needed a little guy for the lightest ( 92lb ) bracket, I weighed 89Lbs !! I've had skin problems for 30+ years, been going to doctors for 25 years , kept hearing systemic dermatitis----- take these antibiotics... about 4 years ago went to the V.A. figured it might be Agent Orange from Vietnam . they said not agent orange. in May they took the wrong kind of skin biopsie again even after I told them I suspected Dermatitis Herpitiformis. when it came back no infection I asked does this mean it's an autoimune disease, they said oh no it must be your nerves , quit scratching???? In April I started my Gluten free learning curve, and after a while I realized why you need to be 100% gluten free. my D.H. is 90% better (still eat a lot at resturants ) and have lost about 30 lbs as I had become obiese thru the years,,, another symptom doctors don't recongnize. Bottom line I'm self diagnosed but I believe it's the answer as a number of other problems have also resolved... sorry about the long story to get to my question, as I have read about the many symptoms of celiac disease and Gluten/food intolerances with the autoimune problems that come with them,,,, I can't believe what I'm seeing......... I'm starting to feel that half the people I know have something going on thats related to the unrecognized "Iceberg" of a problem !!!!!!!! when I went to my son's house for thanks giving dinner I almost cried as my 3 year old grandson had a red sore the size of a pencil eraser on his face (cheek) with a couple of other small red marks a few inches away, I didn't say anything. some one else asked about it, my daughter inlaw said that he had a pimple come up and that he had scratched it... I'm starting to think that I'm getting paraniod about how big this problem really might be. How big is this Iceberg ? Dan

Iodine Patch Test

02 May 2009 - 09:16 PM

Hi , new here 1st post, I've been reading here about DH for about a month now and like most people seem to have to find out on my own what is really wrong. I've had this skin condition for 25+ years (I'm 61 ) been to like 7 pcp's and 3 dermatologist , they want to call it systemic dermatitis and just say don't scratch and take these antibiotics ! been going to the VA because I thought that maybe it was from Agent Orange ,but they said it was'nt cloracne . more later , my main question is has anybody tried or know anything about doing a Iodine patch test for DH to react with any IgA in your skin to cause a skin reaction/blister ? thanks Dan

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