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mamaw

Member Since 10 Oct 2004
Offline Last Active Today, 04:55 AM
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#936905 Kraft Cheez Whiz

Posted by mamaw on 15 December 2014 - 04:31 PM

bartfull  is  so right  on.... one  can  get  ill  responses  from certain foods  even if it  is gluten-free  but  I  to do not  believe  it  was  gluten that  caused a response... We  eat  cheese  whiz  in  broccoli  casserole....

Oddly  enough  is  one  for you: I  can eat  a gluten-free  product  by itself  but  when I add  another  gluten-free food  along  with  it I get  sick...


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#935974 Just Have To Get This Out.

Posted by mamaw on 03 December 2014 - 05:59 AM

I think  this  is  one of the  hardest  parts  of  being  celiac...in general we look  the  norm( whatever  that  is)& when  anyone  makes  the  snide  remarks  or comments  they are very hurtful & at  times  unforgettable. Worse when it  comes  from people  who are  supposed  to love & support  you...Many of us  have  them too.....

Your  mother's  emotional  rantings  may  be  from  an  un-dx'd  illness & maybe  she  doesn't  even  realize  what  is  pouring  out  of her  mouth!

You  are  correct  in  removing yourself from  that situation asap...Your  health  will improve  even more...Please  leave  an open  space in your  heart for  forgiveness, holding on  to  bitter  feelings  can  cause great  damage  to a  person , letting  go  of those  negative  life  events  is   VERY hard but    for you to move on  to a better  place one needs  to  be  open... &  understanding... another  way to  look at  this  is   : it  is  hard  for  some  parents to think  their kids  know  more than them! After all  you will always be  their child.. For  one  that  is  not  a  good  way of  thinking  ... We learn from everyone  on a daily basis....  ie: training  a puppy  for a  service  dog  by  hard core  prisoners,,  a puppy  can turn  their life  into a  positive &  teach  these  prisoner's  to  trust  , love &  respect  .....

If  you mother  is dx'd  she  may  fall  down  &  beg  you to help her  when she  fails  & sees  how  great  you are doing!

You are  in a  great  place  right  now,  you understand  what you need to do to  get  better & grow in your  life... Some  never  achieve  that in life &  your  a young  person & well on  your  way.

 

hugs


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#935841 Holiday Blues

Posted by mamaw on 01 December 2014 - 05:05 AM

sending  more hugs!  You  are  still all good  when it  comes  to celiac....the feelings  you  have  are  normal   to celiac,  I  think most  of us  have  been  there our   first  few  months  into  recovery....sadness,  anger, denial, an  emotional  roller  coaster  for  many....some  it  takes  much longer  to  find  peace ... the good  thing it  does  happen...


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#935821 Holiday Blues

Posted by mamaw on 30 November 2014 - 01:00 PM

Holidays  in general  can  be  pretty depressing then  throw  in a new illness....  hugs  to you.....Please  don't dwell  in what  others  have, your  turn & time  will come...you don't  know  the others  money  situation  or  their   thought  process..they  may not  be  ready for a new home  & may end  up  biting  off  more than  they  have  funds to pay for.. ( that is just  an example)...sometimes when  people  rush into decisions  , big  decisions  to  fast  they  loose  big time.... so it is  better  to  do  lots  of  planning & be prepared  for  future events.....

You  will  catch up at  the right  time.....be happy  that  you are  healing  have a  great partner & are in a safe place...with  gluten-free food... I  always  prepare  gluten-free  food  to take to any  invite...

It  is  hard  for  us to  understand  this   celiac  let  alone  others  who  have  no  clue or  issues.. I find  that  if  it  isn't  effecting  them then they  don't  truly care...Just  a  normal  thing although  it  hurts at times...For  instance  do  you  care  about  MS or  a brain  tumor  if  no one  around  you  has it? yes, you may  care  but  not  enough  to  know  everything about  it...so  don't  be  to hard  on  people  who  lack knowledge  about  celiac  when  they don't  have  it...

The  good  news  is  you  found  you have  many things to be thankful for... And  may health & happiness  follow  you through  this  holiday season....

hugs


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#935580 I Don't Want Celiacs Anymore

Posted by mamaw on 25 November 2014 - 05:12 AM

hello & welcome

celiac   is  a  hard  disease  to swallow for many. but  it is  what  it is  so  at  some  point  you  will have to bite  the bullet  &  go back to being  gluten-free 100% of the  time  24/7   for  life...   celiac  is  not  just  a  diet  it  truly is a lifestyle change.. ANd  NO ONE  Wants  to  have  it...You did  it  before  & you  can  do it  again.....it  is  much  easier  now  to live  a  healthy happy gluten-free  life with  many  restaurants, & gluten-free  food  available....you  actually did it  when it  was  much harder  to  find  gluten-free  so  you  must  train your  brain to do it  again... the  brain  plays  tricks on  our  thinking  so  get  out  of your  head......

Waitingdreams  is  a perfect  example  of  how  one  can  make  changes  in  their  life...she  came  in  at  the  bottom of the  pit (so to  speak) &  has  listened  & learned by trial & error  until  she got  it. Her  rewards of  hard work & challenges have  paid  off  & now  she to  sees  light  at the  end  of a LONG road....she   is  willing  to give it all she  got  & then some....

It is  natural to feel  sad ,& blue   but  once  you  get  rid  of that  baggage  &  get a game plan in place  you to  will be  able  to defeat  a  big dragon in your  life.. You  will get  great satisfaction  in knowing  how  strong  you really are  & how  happy & healthy  you will  be....

Don't  fight  it  until  another  autoimmune  creeps  in on you  or  even  worse  a  cancer......

This is  one  of the  easiest  diseases  to  control without  chemo,  deadly drugs, or  being  connected to some  machine  for  hours/days....we  just  need  to  be special & eat  special food... can't  get  much  easier...you make the  choice  which  disease  you would  choose!

You CAN  do  this  &   you now  have a  team  of  celiac who  are  onboard  with you to  give  you any help  you  need.. Just  ask

 

hugs


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#935199 Gluten Free, Corn Free Tooth Paste?

Posted by mamaw on 18 November 2014 - 10:59 AM

Here are a  couple to check out.. coral white tea tree toothpaste, good  gums, earthpaste, & Himalaya toothpaste.. always read  ingredients to make  sure  there are no ingredients  that you may react too...also  baking  soda  & perioxide  sprinkled  over the  brush works  great....


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#935179 Am I Just Nervous

Posted by mamaw on 18 November 2014 - 05:08 AM

It all takes  patience  & lots  of  time... Sometimes  "accidents"  become  one of the greatest  learning  tools  so  chalk it  up as a learning tool,  make it a positive  , you  probably will not  do it  again  .... Mishaps  may be  creep in at times  while you  are  figuring it all out  .....

Since  there  is  wheat  in your  house make  sure there is no  double dipping ( or  else  get  your own  jars  of  things)ie: butter, jelly, condiments, peanut butter &  so on.... 

Train  the  family to  never  make a  sandwich  on  the  bare  counter always  now use  a paper towel, wipe  up all crumbs asap... I really  should have  took  stock in paper towels!!!!

If  you travel they do  make a bag  called  Toasta Bags that  you  can make  toast, grill cheese, waffles, bagels, & so in  while  using  a "not clean toaster" I carry  them on  vacation  to motels,  & to  family  while visiting....A lfesaver for me.. I  also cart along an ice  chest full of gluten-free  food & goodies....sometimes I even take a single hot  (electric) plate  to  heat  or  cook  gluten-free food  on  in the  motel room...

 

I'm a  BIG fan of  Probiotics  & digestive  enzymes..we  need all the  digestive help we  can get.....

 

My  hubby  eats gluten-free  at  home  & loves  it  but  if we  are  out at a restaurant  he  eats  regular  food.. He  does  have  a  couple  of  snacks  that  are not gluten-free, other than that  we  are  gluten-free.....at home....


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#935159 Am I Just Nervous

Posted by mamaw on 17 November 2014 - 06:32 PM

have  you  cleaned  out  your  kitchen  of  utensils  & cooking  utensils  that  maybe  harboring  wheat   crumbs?

Keeping  your  food  very plain & simple without  a lot  of processed stuff will help... gluten hides in  everything....


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#934774 Next Steps For Husband?

Posted by mamaw on 12 November 2014 - 07:03 PM

You know  your  husband  so if  you  think  he  would  cheat  without  knowing  for  positive testing  then  by all means  I  vote  for  him  to  eat  a loaded  full gluten diet  for  at  least  a month then  retest.... He  should  be  consuming  as  much  gluten as  he  can for  testing....&  if  it  were  me  I would  not  do the  surgery  until after  his  gluten testing  is done  as  he  may not need the  surgery  at  all....

Another  thought  is  he  could be  NCGI  & there  is no test  at  the present  time  for  that  just  an elimination diet for  at  least  three  months.....so  he  actually  could  do this  either  way  but  still  would not  have   the  knowledge  of  knowing  for  positive  if he is celiac.. if he chose the  elimination  plan....


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#934473 Does Your School Provide A gluten-free Lunch For Your Kids?

Posted by mamaw on 08 November 2014 - 02:04 PM

Back in our  neck of the  woods  the  lunch  plan was  the Obama  Plan  since  it was  Michele  Obama  who  put  into  action... had  nothing to do with politics.....but  since  "the Plan"  became reality  our  school  kids  have  suffered so   it  isn't  so great  for  everyone....A beautiful  full salad  bar  was  taken away  in place  of  a  hot dog.... some  parents  know  there  kid  will not  eat  veggies   so  at  lunch ,the kid  must  take  the  food & pitches  it  in the trash & parents are paying for this... (The  fresh fruit  is  disgusting....&  usually not  washed  so  the kids  are also  eating  pesticides.)

 ... Now  the  evening  meal is  where  these  parents  can  have  their  child  eat some veggies  to try to teach them  ...that  is  where  some are  angry about  the plan....

And  I  honestly  don't  feel  it is the goverment's  job   to  tell us  what  we can  & can not  eat...remember  these  foods  (bad)  would  not  be on the  market  if  they  were  monitored in the  first  place...like  the  GMO"S  we  are  partaking  in  on a  daily basis...I believe  the  parents  should  be in  charge  not an office  who  knows  nothing  about your  child's  health or eating  habits  &  yes, some  parents  are  NOT doing a  good  job on  food choices for  their children..

And  my personal  opinion  is wheat  is  not the  staff of  life    for  anyone!!!!


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#933803 Chia Seeds

Posted by mamaw on 30 October 2014 - 01:59 PM

I too  have  read  recipes  wrong but  your  combination   of  flours  & such  sound  like  you will get  a healthy  bread..... We  eat  salba  seeds  in  everything because they are tasteless.... but  if  in  throwing  in some  in  a  baking  recipe  be  careful not to add  to much.... I use  them a lot in smoothies, scrambles eggs  & things like  that...


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#919066 And The Torture Begins...

Posted by mamaw on 04 June 2014 - 04:43 PM

You  probably already know  the drill:   When  life  hands you lemons  make  lemonade"..... when I see  , smell or  hear  of  something that  puts  me  over  the top, I  either  go home  &  make  a copycat  or  order  it  gluten-free  & treat  myself...  And  after you have been gluten-free  for  a  period  of  time  your  taste & desires  will change.. It  becomes  easier  to  say  wow  that  looked  yummy  but  I  don't  need  it....

I  think the  key  is  make  sure  you never  feel food  deprived.......

People  mean well  they  just  don't know  about  this  crazy  disease....


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#918894 Chronic Constipation

Posted by mamaw on 03 June 2014 - 09:08 AM

This  topic  has been  addressed  so many times  here....

I for  one  have  chronic  C....  I  have  tried  everything  except  a  bomb....  I  was  in hospital  for over  a week with this issue, they  couldn't  even  find  a fix!...

Here  is  what  I do,  miralax up to three times a  day, fiber  tablets  &  mineral oil  once  every couple  of  months....of  course  fruits, prunes, figs etc.... things  that  usually  cause D  has no effect  on me....

The things  I mentioned  above  are safe  & non-habit forming...... after  you  get  on a  program  one  can  adjust  the  amount  of  miralax... I now can  do miralax  once or twice a day  then  skip  a  day or  two.....

 

Many  people  who  have  bowels movements  daily  can still be  constipated....some  don't realize  that.....


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#918627 First Set Back

Posted by mamaw on 01 June 2014 - 06:45 AM

I just  wanted  to throw  another  tidbit  out  there.....some  people  eat  only the  same  foods  forever  with no problems  but  for  others  they  develop  vitamin &  mineral deficiency  &  also  food  deprivation  because  their  food  choices  are  lacking  in healthy  quality...so  if  you  plan  on  a  very limited  diet  for  a  long  period  make  sure  it  is  a  healthy  choice  &  not  just  a  calorie  laden  junk  food..( which by the  way  is  usually a  kid's  choice).

 every ones diet  needs    to be  a  great  variety  of  foods  not  just  processed  ...some  people  never  eat  fresh , live  foods....


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#917158 Sit Down Dinner Wedding Reception Help!

Posted by mamaw on 22 May 2014 - 04:52 PM

Call the  place  where the  reception is going to be held  &  ask  if  the  reception  is  being  catered  by  one  of their  chefs  , if  so  ask  to  speak to   the  chef... Most  always  the  chef  can prepare  gluten-free  chicken...  In my  neck of the  woods  the  chicken usually  is  stuffed  chicken breast  , not  gluten-free  but  the  chef  will prepare  a  grilled  breast  for me.....Last year  we attended  six  weddings  at  different  areas  &  places &  I  always  called  ahead  , offered  to pay  for my own  meal   &  I  always  got  this  message  back....  Gluten  free  is  so popular now  days  , no problem  we  will  make  your  meal gluten-free  but  don't  eat  the  bruschetta  appetizers.  cookies on the  cookie  table  or the  wedding  cake....

Sometimes  they  are  buffet  type receptions  &  others  have been  sit down, served....

We  are going to a  sit down this  Saturday....  I called  ahead  because  it is  over  an hour  from our  home...  I  spoke  to the   chef  &  he  laughed  &  said  oh  I  already  have  three  gluten-free  attending  this wedding  & 2  vegans& 1  peanut  allergy...  so  I'll add  you to the  gluten-free  list....just identify  yourself  when  you get  here  so we  know  which  table to deliver  your  gluten-free  meal....

He  also  said  most  of his  menu  is  gluten-free  already because  so many  people  now  days  have  food  issues...

 

Do your  homework  first   & then enjoy yourself  at the  event...


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