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mamaw

Member Since 10 Oct 2004
Offline Last Active Yesterday, 06:14 PM
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#935199 Gluten Free, Corn Free Tooth Paste?

Posted by mamaw on 18 November 2014 - 10:59 AM

Here are a  couple to check out.. coral white tea tree toothpaste, good  gums, earthpaste, & Himalaya toothpaste.. always read  ingredients to make  sure  there are no ingredients  that you may react too...also  baking  soda  & perioxide  sprinkled  over the  brush works  great....


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#935179 Am I Just Nervous

Posted by mamaw on 18 November 2014 - 05:08 AM

It all takes  patience  & lots  of  time... Sometimes  "accidents"  become  one of the greatest  learning  tools  so  chalk it  up as a learning tool,  make it a positive  , you  probably will not  do it  again  .... Mishaps  may be  creep in at times  while you  are  figuring it all out  .....

Since  there  is  wheat  in your  house make  sure there is no  double dipping ( or  else  get  your own  jars  of  things)ie: butter, jelly, condiments, peanut butter &  so on.... 

Train  the  family to  never  make a  sandwich  on  the  bare  counter always  now use  a paper towel, wipe  up all crumbs asap... I really  should have  took  stock in paper towels!!!!

If  you travel they do  make a bag  called  Toasta Bags that  you  can make  toast, grill cheese, waffles, bagels, & so in  while  using  a "not clean toaster" I carry  them on  vacation  to motels,  & to  family  while visiting....A lfesaver for me.. I  also cart along an ice  chest full of gluten-free  food & goodies....sometimes I even take a single hot  (electric) plate  to  heat  or  cook  gluten-free food  on  in the  motel room...

 

I'm a  BIG fan of  Probiotics  & digestive  enzymes..we  need all the  digestive help we  can get.....

 

My  hubby  eats gluten-free  at  home  & loves  it  but  if we  are  out at a restaurant  he  eats  regular  food.. He  does  have  a  couple  of  snacks  that  are not gluten-free, other than that  we  are  gluten-free.....at home....


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#935159 Am I Just Nervous

Posted by mamaw on 17 November 2014 - 06:32 PM

have  you  cleaned  out  your  kitchen  of  utensils  & cooking  utensils  that  maybe  harboring  wheat   crumbs?

Keeping  your  food  very plain & simple without  a lot  of processed stuff will help... gluten hides in  everything....


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#934774 Next Steps For Husband?

Posted by mamaw on 12 November 2014 - 07:03 PM

You know  your  husband  so if  you  think  he  would  cheat  without  knowing  for  positive testing  then  by all means  I  vote  for  him  to  eat  a loaded  full gluten diet  for  at  least  a month then  retest.... He  should  be  consuming  as  much  gluten as  he  can for  testing....&  if  it  were  me  I would  not  do the  surgery  until after  his  gluten testing  is done  as  he  may not need the  surgery  at  all....

Another  thought  is  he  could be  NCGI  & there  is no test  at  the present  time  for  that  just  an elimination diet for  at  least  three  months.....so  he  actually  could  do this  either  way  but  still  would not  have   the  knowledge  of  knowing  for  positive  if he is celiac.. if he chose the  elimination  plan....


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#934473 Does Your School Provide A gluten-free Lunch For Your Kids?

Posted by mamaw on 08 November 2014 - 02:04 PM

Back in our  neck of the  woods  the  lunch  plan was  the Obama  Plan  since  it was  Michele  Obama  who  put  into  action... had  nothing to do with politics.....but  since  "the Plan"  became reality  our  school  kids  have  suffered so   it  isn't  so great  for  everyone....A beautiful  full salad  bar  was  taken away  in place  of  a  hot dog.... some  parents  know  there  kid  will not  eat  veggies   so  at  lunch ,the kid  must  take  the  food & pitches  it  in the trash & parents are paying for this... (The  fresh fruit  is  disgusting....&  usually not  washed  so  the kids  are also  eating  pesticides.)

 ... Now  the  evening  meal is  where  these  parents  can  have  their  child  eat some veggies  to try to teach them  ...that  is  where  some are  angry about  the plan....

And  I  honestly  don't  feel  it is the goverment's  job   to  tell us  what  we can  & can not  eat...remember  these  foods  (bad)  would  not  be on the  market  if  they  were  monitored in the  first  place...like  the  GMO"S  we  are  partaking  in  on a  daily basis...I believe  the  parents  should  be in  charge  not an office  who  knows  nothing  about your  child's  health or eating  habits  &  yes, some  parents  are  NOT doing a  good  job on  food choices for  their children..

And  my personal  opinion  is wheat  is  not the  staff of  life    for  anyone!!!!


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#933803 Chia Seeds

Posted by mamaw on 30 October 2014 - 01:59 PM

I too  have  read  recipes  wrong but  your  combination   of  flours  & such  sound  like  you will get  a healthy  bread..... We  eat  salba  seeds  in  everything because they are tasteless.... but  if  in  throwing  in some  in  a  baking  recipe  be  careful not to add  to much.... I use  them a lot in smoothies, scrambles eggs  & things like  that...


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#919066 And The Torture Begins...

Posted by mamaw on 04 June 2014 - 04:43 PM

You  probably already know  the drill:   When  life  hands you lemons  make  lemonade"..... when I see  , smell or  hear  of  something that  puts  me  over  the top, I  either  go home  &  make  a copycat  or  order  it  gluten-free  & treat  myself...  And  after you have been gluten-free  for  a  period  of  time  your  taste & desires  will change.. It  becomes  easier  to  say  wow  that  looked  yummy  but  I  don't  need  it....

I  think the  key  is  make  sure  you never  feel food  deprived.......

People  mean well  they  just  don't know  about  this  crazy  disease....


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#918894 Chronic Constipation

Posted by mamaw on 03 June 2014 - 09:08 AM

This  topic  has been  addressed  so many times  here....

I for  one  have  chronic  C....  I  have  tried  everything  except  a  bomb....  I  was  in hospital  for over  a week with this issue, they  couldn't  even  find  a fix!...

Here  is  what  I do,  miralax up to three times a  day, fiber  tablets  &  mineral oil  once  every couple  of  months....of  course  fruits, prunes, figs etc.... things  that  usually  cause D  has no effect  on me....

The things  I mentioned  above  are safe  & non-habit forming...... after  you  get  on a  program  one  can  adjust  the  amount  of  miralax... I now can  do miralax  once or twice a day  then  skip  a  day or  two.....

 

Many  people  who  have  bowels movements  daily  can still be  constipated....some  don't realize  that.....


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#918627 First Set Back

Posted by mamaw on 01 June 2014 - 06:45 AM

I just  wanted  to throw  another  tidbit  out  there.....some  people  eat  only the  same  foods  forever  with no problems  but  for  others  they  develop  vitamin &  mineral deficiency  &  also  food  deprivation  because  their  food  choices  are  lacking  in healthy  quality...so  if  you  plan  on  a  very limited  diet  for  a  long  period  make  sure  it  is  a  healthy  choice  &  not  just  a  calorie  laden  junk  food..( which by the  way  is  usually a  kid's  choice).

 every ones diet  needs    to be  a  great  variety  of  foods  not  just  processed  ...some  people  never  eat  fresh , live  foods....


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#917158 Sit Down Dinner Wedding Reception Help!

Posted by mamaw on 22 May 2014 - 04:52 PM

Call the  place  where the  reception is going to be held  &  ask  if  the  reception  is  being  catered  by  one  of their  chefs  , if  so  ask  to  speak to   the  chef... Most  always  the  chef  can prepare  gluten-free  chicken...  In my  neck of the  woods  the  chicken usually  is  stuffed  chicken breast  , not  gluten-free  but  the  chef  will prepare  a  grilled  breast  for me.....Last year  we attended  six  weddings  at  different  areas  &  places &  I  always  called  ahead  , offered  to pay  for my own  meal   &  I  always  got  this  message  back....  Gluten  free  is  so popular now  days  , no problem  we  will  make  your  meal gluten-free  but  don't  eat  the  bruschetta  appetizers.  cookies on the  cookie  table  or the  wedding  cake....

Sometimes  they  are  buffet  type receptions  &  others  have been  sit down, served....

We  are going to a  sit down this  Saturday....  I called  ahead  because  it is  over  an hour  from our  home...  I  spoke  to the   chef  &  he  laughed  &  said  oh  I  already  have  three  gluten-free  attending  this wedding  & 2  vegans& 1  peanut  allergy...  so  I'll add  you to the  gluten-free  list....just identify  yourself  when  you get  here  so we  know  which  table to deliver  your  gluten-free  meal....

He  also  said  most  of his  menu  is  gluten-free  already because  so many  people  now  days  have  food  issues...

 

Do your  homework  first   & then enjoy yourself  at the  event...


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#916745 Brand New And Scared

Posted by mamaw on 20 May 2014 - 06:40 AM

Hello & Welcome...

others have  given  good  sound  advice.... Once  you  learn  what's  gluten free  &  what  to watch out  for  it  becomes  routine...but  in this  journey  it  takes  lots  of  patience, learning, &  trial & error  along  with  lots  of  emotions that  one  usually  doesn't  know  where  those  are  coming  from... It  is  wonderful  you have  support & understanding  that  alone  helps  make the journey  easier....When you get  down  put  yourself in others  shoes.... those  who  have  no support  of  family  or  friends, those who  have  no  funds  for  health  care  or  gluten-free  food..those  who  struggle  with  other  illness along  with celiac... that  alone  should  make  you find  all the great  things  you have going for you...

Think of  celiac  as a step  in the  road  that  in the  beginning  seemed  impossible  but  soon  the  navigation  falls  into  place  &  all the  missed  food appears.  , only  it  is food  that  heals  your  body  not destroys  it... This  disease  is  better  than  any other  disease------- no  chemo,  no  deadly drugs, just  a  lifestyle  change. (  for  the better)

The  only thing  I  can  say  negative  is that  I  think we all miss  the convenience   of  being  able  to  eat  anything  , anywhere... but  if you  plan  ahead  for  every  scenario  it  too  becomes  easier....

Carry  a  bag  of  gluten-free food  for  work,  car, purse at all  times that  way  you will be never be  starved  &  slip up ... pre-planning  is one  of the best  defenses...... have  sweets  bakes  & frozen  for a  moments  notice.....

We  travel  all over  & we  always  have  gluten-free  food   with us  or  know  where  we  can purchase  no matter  if  we  are in the  US  or  abroad....

 While  you are  waiting  for your  scope  take  this time to  focus  on  the gluten-free  basics plain meats, fruits & veggies...buy  some  gluten-free pretzels, crackers, sweets  & prepare  in your  head  what  is going to happen, this way  you are one step ahead.....

 

Don't  let  celiac  define  who you are  , you  define  celiac  in your  lifestyle....keep the upper  hand.....

 Good  Luck

mamaw


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#914711 It Was Supposed To Be Over At Gluten Free! Help :(

Posted by mamaw on 01 May 2014 - 01:38 PM

Consider yourself  in terms  of an infant  at  the present time because  being  new to gluten-free  your  are in the infancy  phase...There  is no cure  for  celiac  just   control .....100% gluten-free  24/7  365  days  a  year for life  yes  I  said  for LIFE>>>>>>

It is  a  hard  thought  to swallow but  we  have to be honest.......

Now  you are 17  have  done  a lot  of  abusing  your body  already, drugs,  booze,  junk  food.....if   you  were  putting  in  nothing healthy   into  your  car's  gas  tank  or  maybe  no  oil  or the  wrong  gas  what  so you think  will happen? You  have  doen the  same  thing to your body&  overtime  this  is  what  you have at present  a  broken  done  immune   system....

Now  the good  news  is  you  can make  changes  & repair  the  damage  but  it  doesn't  happen over  night , yes, some  see instant  relief  others  it  can  take  a  year or  two  to  even  begin to see  change  but  for  most  it does  come.... Stay focused     &  it  will happen...  you make it happen....

It is  normal  to  feel  anger,  sadness,   hopelessness , denial  & so on  so  don't  think you are  crazy  , your  are  not....all part  of the  healing  process....  We  need  healing  in body, mind  & spirit ......

Our  kids  are  both in high  school 16  &   13  they  survive  quite  well as teenagers  being  gluten-free.. I  can  say  though  they never  used  drugs  for pleasure or  otherwise,  do not  drink  or  live  in the  fast  world... They both  are  honor  students  &  are  football players,  Wrestlers  &  track  stars  at their  school.. They  both  are  hunks & very popular....... so you to  can  do this....many young adults  are  surviving  being  gluten-free....

I would suggest  blood work to see  if  you need Vit D B-12  & so on....

  You said  no summer for  me!  Why not?  friends  should like  you for the person  you are not  how   you look  ..... this  is a hard lesson to learn for a young  person....people  who  you think  are  friends  may  not  be true friends....true  friends  don't  judge.... they carry you through the hard times....

And  when  you are  actually old  enough  to  consume  alcohol    there  are  plenty of  gluten-free  choices.....

It    happens  that  some  can  have more than one thing  wrong with them  so  yes, you can have IBS, Celiac  & so on.. All  very  closely  similar.....

There  can be  a  chance  that after  your  body heals  a bit  you can try to add  dairy back  in.....

Your  food  maybe gluten-free  but  what  about  CC  from  cooking utensils, pots & pans.....toothpaste...  Are  you  still eating  a lot of processed  food  even if it is gluten-free  that can cause  problems... while you are  healing....

Life  is  short handle  with  care....you have only one  shot to get it  right....

blessings


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#914529 Mourning My Loss?

Posted by mamaw on 30 April 2014 - 08:39 AM

The loss  of  gluten  in our lives  is  very similar  to loosing  a loved  one.. We  go through  all the  stages  of  loss .. From  what  your  mother  taught  you as  a young  child  on  what & how to  eat  has  now  become  off  limits...I  always  felt  like  part  of  me  got  lost  when going  gluten-free....  you  know "wheat  is  the staff of      life" well boy  is  that  so  wrong! but  that's  is  what  I was  taught so  I  think  a  part  of  my being  has  gone forever.... so  with that  being  said  ,, we  go  through all  the  emotional  feelings  of  anger, loss,  pain,  denial . bargaining  & finally  great  health.....

But  what  comes  with  all that emotion  is  a healthy happy long  life .... there is light at  the end of the tunnel.....

 

Look  here  under  recipes  , we have  some  of the best  cooks/bakers  right  here.....

 

For  your  children  try to keep  them  excited  about all the new  things  they will be able  to  make.... There  are plenty  of  ways  to make  them  &  the  new  lifestyle   interesting......  Our  kid  was 2 1/2  when  going  gluten-free  the other  was  7-8  both  are in high  school now  ..... we  matched  everything  the  school  served  along  with  all the  parties... Kids  never  felt deprived  or  left  out...

It all takes  time   but  you to  will get  to a better  place....


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#912851 Philadelphia, Pa - Tips?

Posted by mamaw on 16 April 2014 - 01:05 PM

Hi I live  in Western Pa but  travel  to Philly  often.... Gluten Free Philly (mike)  has  a great  listing of  places  to  eat.....Do  go to South Philly  to Taffet's  Bakery.... Omar  has  the  best  breads.....there  is  a  restaurant  a crossed  or  up the  street  from him  who uses  his  bread s  ... very good,  I also  get  a  roll from him  & go have  a philly cheesesteak  while  there..... Pasta  Pomadoro  in Voorhees, NJ  is  excellent. Worth  the trip....a favorite  of many....

Also  in  that   area  is  Sweet Notes  Bagels... google them &  they sell  to many  places out  there so  you can fing  a  cafĂ©  who  has  them for  breakfast....

Jules  gluten-free  pizza  has  several pizza  shops around....

Plus  of  course  all the  chains  are  available  too.... WE love  Maggiano's ( sp?) having  a  brain  fog  day, sorry) call  ahead  for  reservations  as it gets  crazy   & also  if  you give  them a  day or two notice  they will  make  gluten-free pasta  if  they know you are  coming....There menu is on  their  website.....

also  I like  to  just  google  gluten-free in Philly & it brings  up tons  of  places  the  gluten-free  apps  don't....

there  is  a good  Brazilian  place  to in  Sunnyhill...forget  the name....


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#912210 For Those With Thyroid Disease: How Did Celiac Affect Your Meds?

Posted by mamaw on 10 April 2014 - 05:26 PM

corrie

I too have  no  functioning  thyroid  gland  due to RAI...dead  in the  water, they  can't  even find  any traces  of a gland on my ultrasound.... I also too  have Grave's.....I was  on  Synthyroid  for  years  .. I got to the  point  where  I  couldn't  function  &  got  very ill... I  demanded  to be  switched  to a  whole  glandular ( 2 1/2 years ago) &  finally now   have  a  better  life...My  endo  has  me  on  a  starting  dose  so  I'm  pretty  much  hypo all the  time, I  can't  get him  to up  my dose  a  little... He  is  afraid  I'll  become  hyper again &  I'm an  A Fibber  ....


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