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mamaw

Member Since 10 Oct 2004
Offline Last Active Today, 01:12 PM
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#917158 Sit Down Dinner Wedding Reception Help!

Posted by mamaw on 22 May 2014 - 04:52 PM

Call the  place  where the  reception is going to be held  &  ask  if  the  reception  is  being  catered  by  one  of their  chefs  , if  so  ask  to  speak to   the  chef... Most  always  the  chef  can prepare  gluten-free  chicken...  In my  neck of the  woods  the  chicken usually  is  stuffed  chicken breast  , not  gluten-free  but  the  chef  will prepare  a  grilled  breast  for me.....Last year  we attended  six  weddings  at  different  areas  &  places &  I  always  called  ahead  , offered  to pay  for my own  meal   &  I  always  got  this  message  back....  Gluten  free  is  so popular now  days  , no problem  we  will  make  your  meal gluten-free  but  don't  eat  the  bruschetta  appetizers.  cookies on the  cookie  table  or the  wedding  cake....

Sometimes  they  are  buffet  type receptions  &  others  have been  sit down, served....

We  are going to a  sit down this  Saturday....  I called  ahead  because  it is  over  an hour  from our  home...  I  spoke  to the   chef  &  he  laughed  &  said  oh  I  already  have  three  gluten-free  attending  this wedding  & 2  vegans& 1  peanut  allergy...  so  I'll add  you to the  gluten-free  list....just identify  yourself  when  you get  here  so we  know  which  table to deliver  your  gluten-free  meal....

He  also  said  most  of his  menu  is  gluten-free  already because  so many  people  now  days  have  food  issues...

 

Do your  homework  first   & then enjoy yourself  at the  event...


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#916745 Brand New And Scared

Posted by mamaw on 20 May 2014 - 06:40 AM

Hello & Welcome...

others have  given  good  sound  advice.... Once  you  learn  what's  gluten free  &  what  to watch out  for  it  becomes  routine...but  in this  journey  it  takes  lots  of  patience, learning, &  trial & error  along  with  lots  of  emotions that  one  usually  doesn't  know  where  those  are  coming  from... It  is  wonderful  you have  support & understanding  that  alone  helps  make the journey  easier....When you get  down  put  yourself in others  shoes.... those  who  have  no support  of  family  or  friends, those who  have  no  funds  for  health  care  or  gluten-free  food..those  who  struggle  with  other  illness along  with celiac... that  alone  should  make  you find  all the great  things  you have going for you...

Think of  celiac  as a step  in the  road  that  in the  beginning  seemed  impossible  but  soon  the  navigation  falls  into  place  &  all the  missed  food appears.  , only  it  is food  that  heals  your  body  not destroys  it... This  disease  is  better  than  any other  disease------- no  chemo,  no  deadly drugs, just  a  lifestyle  change. (  for  the better)

The  only thing  I  can  say  negative  is that  I  think we all miss  the convenience   of  being  able  to  eat  anything  , anywhere... but  if you  plan  ahead  for  every  scenario  it  too  becomes  easier....

Carry  a  bag  of  gluten-free food  for  work,  car, purse at all  times that  way  you will be never be  starved  &  slip up ... pre-planning  is one  of the best  defenses...... have  sweets  bakes  & frozen  for a  moments  notice.....

We  travel  all over  & we  always  have  gluten-free  food   with us  or  know  where  we  can purchase  no matter  if  we  are in the  US  or  abroad....

 While  you are  waiting  for your  scope  take  this time to  focus  on  the gluten-free  basics plain meats, fruits & veggies...buy  some  gluten-free pretzels, crackers, sweets  & prepare  in your  head  what  is going to happen, this way  you are one step ahead.....

 

Don't  let  celiac  define  who you are  , you  define  celiac  in your  lifestyle....keep the upper  hand.....

 Good  Luck

mamaw


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#914711 It Was Supposed To Be Over At Gluten Free! Help :(

Posted by mamaw on 01 May 2014 - 01:38 PM

Consider yourself  in terms  of an infant  at  the present time because  being  new to gluten-free  your  are in the infancy  phase...There  is no cure  for  celiac  just   control .....100% gluten-free  24/7  365  days  a  year for life  yes  I  said  for LIFE>>>>>>

It is  a  hard  thought  to swallow but  we  have to be honest.......

Now  you are 17  have  done  a lot  of  abusing  your body  already, drugs,  booze,  junk  food.....if   you  were  putting  in  nothing healthy   into  your  car's  gas  tank  or  maybe  no  oil  or the  wrong  gas  what  so you think  will happen? You  have  doen the  same  thing to your body&  overtime  this  is  what  you have at present  a  broken  done  immune   system....

Now  the good  news  is  you  can make  changes  & repair  the  damage  but  it  doesn't  happen over  night , yes, some  see instant  relief  others  it  can  take  a  year or  two  to  even  begin to see  change  but  for  most  it does  come.... Stay focused     &  it  will happen...  you make it happen....

It is  normal  to  feel  anger,  sadness,   hopelessness , denial  & so on  so  don't  think you are  crazy  , your  are  not....all part  of the  healing  process....  We  need  healing  in body, mind  & spirit ......

Our  kids  are  both in high  school 16  &   13  they  survive  quite  well as teenagers  being  gluten-free.. I  can  say  though  they never  used  drugs  for pleasure or  otherwise,  do not  drink  or  live  in the  fast  world... They both  are  honor  students  &  are  football players,  Wrestlers  &  track  stars  at their  school.. They  both  are  hunks & very popular....... so you to  can  do this....many young adults  are  surviving  being  gluten-free....

I would suggest  blood work to see  if  you need Vit D B-12  & so on....

  You said  no summer for  me!  Why not?  friends  should like  you for the person  you are not  how   you look  ..... this  is a hard lesson to learn for a young  person....people  who  you think  are  friends  may  not  be true friends....true  friends  don't  judge.... they carry you through the hard times....

And  when  you are  actually old  enough  to  consume  alcohol    there  are  plenty of  gluten-free  choices.....

It    happens  that  some  can  have more than one thing  wrong with them  so  yes, you can have IBS, Celiac  & so on.. All  very  closely  similar.....

There  can be  a  chance  that after  your  body heals  a bit  you can try to add  dairy back  in.....

Your  food  maybe gluten-free  but  what  about  CC  from  cooking utensils, pots & pans.....toothpaste...  Are  you  still eating  a lot of processed  food  even if it is gluten-free  that can cause  problems... while you are  healing....

Life  is  short handle  with  care....you have only one  shot to get it  right....

blessings


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#914529 Mourning My Loss?

Posted by mamaw on 30 April 2014 - 08:39 AM

The loss  of  gluten  in our lives  is  very similar  to loosing  a loved  one.. We  go through  all the  stages  of  loss .. From  what  your  mother  taught  you as  a young  child  on  what & how to  eat  has  now  become  off  limits...I  always  felt  like  part  of  me  got  lost  when going  gluten-free....  you  know "wheat  is  the staff of      life" well boy  is  that  so  wrong! but  that's  is  what  I was  taught so  I  think  a  part  of  my being  has  gone forever.... so  with that  being  said  ,, we  go  through all  the  emotional  feelings  of  anger, loss,  pain,  denial . bargaining  & finally  great  health.....

But  what  comes  with  all that emotion  is  a healthy happy long  life .... there is light at  the end of the tunnel.....

 

Look  here  under  recipes  , we have  some  of the best  cooks/bakers  right  here.....

 

For  your  children  try to keep  them  excited  about all the new  things  they will be able  to  make.... There  are plenty  of  ways  to make  them  &  the  new  lifestyle   interesting......  Our  kid  was 2 1/2  when  going  gluten-free  the other  was  7-8  both  are in high  school now  ..... we  matched  everything  the  school  served  along  with  all the  parties... Kids  never  felt deprived  or  left  out...

It all takes  time   but  you to  will get  to a better  place....


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#912851 Philadelphia, Pa - Tips?

Posted by mamaw on 16 April 2014 - 01:05 PM

Hi I live  in Western Pa but  travel  to Philly  often.... Gluten Free Philly (mike)  has  a great  listing of  places  to  eat.....Do  go to South Philly  to Taffet's  Bakery.... Omar  has  the  best  breads.....there  is  a  restaurant  a crossed  or  up the  street  from him  who uses  his  bread s  ... very good,  I also  get  a  roll from him  & go have  a philly cheesesteak  while  there..... Pasta  Pomadoro  in Voorhees, NJ  is  excellent. Worth  the trip....a favorite  of many....

Also  in  that   area  is  Sweet Notes  Bagels... google them &  they sell  to many  places out  there so  you can fing  a  cafĂ©  who  has  them for  breakfast....

Jules  gluten-free  pizza  has  several pizza  shops around....

Plus  of  course  all the  chains  are  available  too.... WE love  Maggiano's ( sp?) having  a  brain  fog  day, sorry) call  ahead  for  reservations  as it gets  crazy   & also  if  you give  them a  day or two notice  they will  make  gluten-free pasta  if  they know you are  coming....There menu is on  their  website.....

also  I like  to  just  google  gluten-free in Philly & it brings  up tons  of  places  the  gluten-free  apps  don't....

there  is  a good  Brazilian  place  to in  Sunnyhill...forget  the name....


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#912210 For Those With Thyroid Disease: How Did Celiac Affect Your Meds?

Posted by mamaw on 10 April 2014 - 05:26 PM

corrie

I too have  no  functioning  thyroid  gland  due to RAI...dead  in the  water, they  can't  even find  any traces  of a gland on my ultrasound.... I also too  have Grave's.....I was  on  Synthyroid  for  years  .. I got to the  point  where  I  couldn't  function  &  got  very ill... I  demanded  to be  switched  to a  whole  glandular ( 2 1/2 years ago) &  finally now   have  a  better  life...My  endo  has  me  on  a  starting  dose  so  I'm  pretty  much  hypo all the  time, I  can't  get him  to up  my dose  a  little... He  is  afraid  I'll  become  hyper again &  I'm an  A Fibber  ....


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#910187 Need A Probiotic Withoug Gluten, Soy, Corn, Dairy

Posted by mamaw on 25 March 2014 - 05:08 AM

probiotics  debate::::::  I think we all have  ones  that  work  for  us &  some  may work wonders  for some  & for  others  not  so much.... for  me  Culturelle  is one  that  didn't  work for me. I had  no health issues  with it  , it  just  didn't help me.....

I  do  believe  we  should  switch  probiotics  on  & off  giving  the  body  different  strains   &  amounts....we  become  accustomed to  the  same  probiotic  so  a  rotation  is  very  helpful keeping  the  gut  healthy & happy...

Probiotics  have  a  wide  range  of  strains,  and a   wider  range  in price!!!!!  more  expensive  doesn't  mean better & cheaper  brands  doesn't mean less effective.. Our  bodies  tell  us    what  works  for  that  body......

The only  thing  I've  heard  from many  doctors  is  take it  on an  empty  stomach....

Digestive  enzymes  ( which I think  are  as  important)  are  taken  before  meals...

 

Just  my two  cents.....


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#908920 Good Dark Beer?

Posted by mamaw on 14 March 2014 - 05:54 AM

I cook  with gluten-free  beer  but  usually don't  drink  it  but  I like Green's (3 types) dam astura( sp may be  wrong)   there are so many  now  ... I  had one that  was  st something  in a  unique bottle  but it  was sooooo strong.....husband  couldn't  even drink it....it  was  imported....

plus  if  you  are  lucky to live  in a  big  city  several  have  the  micro brew  that   are good..... 


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#908553 Scared To Death

Posted by mamaw on 10 March 2014 - 06:52 PM

Hello  

this  could  be  almost  anything  so  don't  put the  cart  before the horse......breathe !!!!  Have  you  had  some  very  recent  blood work  done? I have  a friend  who had  similar  things  going on  &  it  was  pre-diabetes  &  other  foods  causing  the issues.... plus  for  some it  takes  years  before  they  finally  see  their  intestines  calming  down... For instance  some  foods    don't  bother me  eating them  alone  but if  I add  another food  with it  I'm ill.......

I do  agree that  a  chiropractor  isn't  a  doctor --------- who  should  be  dx'ing a  brain tumor!  That is  insane.....

I  do know  corn, soy, msg, sulphites   can play havoc  ... also  are  you staying  away from  the  gluten-free processed  foods?  GMO"S?????  These  all  seem  to  do more  harm  than good  for us....


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#905958 How Do I Stop The Worrying?

Posted by mamaw on 14 February 2014 - 09:39 AM

remember   how  hard  it is  to  understand  this  illness even,  celiac  folks  have  trouble  understanding  this  at  the  beginning...as  annoying  as  being  asked  constantly  how  you  are  someone  truly loves  you &  cares  for your  well being....&  if they are not  experiencing  the  symptoms  how  could  they  understand  when at  times  we  question  ....

It could  be  worse,  as  many  face  this  new  lifestyle  alone  because  family & friends  think  they  are  just plain crazy....not  normal....

My suggestion  would be  gather up some  good  reports  about  celiac  &  have  a  conversation  & learn  about  celiac  , extending  conditions  that often  follow celiac....have   answers  to  all the  questions  ..

Do you have  a good  support  group  you all can lean on  ?  Finding  a  seasoned  faithful  gluten-free  support  person  is  a  GREAT asset  to  you & family/friends.....

 

hth


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#905230 Problems With The School, Hipaa Release

Posted by mamaw on 06 February 2014 - 07:46 AM

sorry  your  school is  so  rotten....there  are many of  them....Have  you  considered  a  private  school?  Home  schooling? We too  have  never  had  a  problem  with  the kids  being  celiac  until  high  school......it  appears   kids  in  high  school skip  &  miss  a lot  of school  so  all pays  for that!

I  honestly  think  home  school  would  work out  for him..... I do  know  many  very  sensitive  celiac  students  who  have  had to do  just  that (home school) because  of their  having  reactions to  many  food  issues including  corn, soy ....almost  impossible  to hid  from corn or  soy  in  the school lunch program.....

It  doesn't  seem like the  school is  getting  it.... what  does the school nurse  have to  say?  The  school is  within  it's  rights but  still very  sad....kids  who  get  kicked  out  for  drug  possession can attend  an  after  school program  to  get  a diploma , or  kids  who  cause  fights  & bully  can do the  same  but  a medical  condition  doesn't  cut  it  for  an  after  school  program....or  any  help in  acquiring  a  diploma.....

hugs  to  you.....I  would  be  so  angry I would  pull;l  that kid  out  of school , home  school &  send  him off to  college... I'd  prove  he  is worth  saving.....

 

hugs


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#905106 Gluten Free Snack Discoveries!

Posted by mamaw on 05 February 2014 - 06:16 AM

glad you are  finding  some  goodies  you like! Try  Van's  cheese  crackers.....Glutino or  Snyder's gluten-free  pretzels....Glutino parmesan/garlic crisps...plus soooo many more.....


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#904520 Essential Oils / Body Oils

Posted by mamaw on 30 January 2014 - 05:03 PM

some  essential oils  needs to be  diluted  with  a  neutral oil  as  it  can be  to potent  on its  own


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#888201 How To Make Crunchy Chicken Nuggets?

Posted by mamaw on 12 September 2013 - 10:52 AM

Might not be low carb bu kinninkinnick makes a wonderful gluten-free panko .. Also before panko I used brown rice flour sorghum flour , spices & a bit of high heat cooking oil...(avocado oil) .. Or many use rice krispie cereal, corn flakes, or chex
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#888043 Kraft Cheez Whiz

Posted by mamaw on 11 September 2013 - 03:58 AM

it is gluten free...a processed gluten-free food.
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