Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


mamaw

Member Since 10 Oct 2004
Offline Last Active Yesterday, 11:50 AM
-----

#818638 The Wise Alternative

Posted by mamaw on 19 August 2012 - 05:02 PM

the only cure for celiac disease is the gluten-free diet. the only other person I know who can cure celiac is our maker Jesus Christ...
  • 1


#810158 So Frustrated...

Posted by mamaw on 10 July 2012 - 04:27 PM

GFreMo has a great suggestion. But for me I would be considering this relationship before it goes to the next level.I would be having a serious talk with him to make sure he understands celiac. There is no cheating, no its not okay if you get ill once in awhile.He needs to be with you on this all the way not half time only...

Educate the family & if they don't care then I would start looking for a new mate who cares enough to understand & take it as a serious illness...

hugs
  • 1


#809485 Still Constipated!

Posted by mamaw on 08 July 2012 - 07:31 AM

We all are not made perfect we all come with flaws, some big issues some little problems but none of us were made perfect...I spent a week in the hospital for C, I also use alternative meds & docs. I was tested many times over for cancer , perforatrated bowel & so on but all came back good. My alternative doc also said some people just have issues with a certtain thing that we maybe were just not perfect by design. Not that we are not perfect in the eyes of our maker--- just the way he wanted us to be.
I have tried & still try crazy things now & then. After two weeks of no movement I understand the pain..I eat all my fruits & veggies, drink water according to my body weight, take vits & min excersise but I still take meds for C.... I found that mineral oil & miralax are two of the safest things to use. I will not use something I can become addicted to or something that makes the bowels stop functioning on there own , on occasion...I use very little from mainstream drug companies because I am super sensitive to everything & I found I can use these two things on occasion ...

Also I'm a BIG fan of alternative meds & solutions but one can also take to much of these things & also have problems. Esp. when a vitamin or mineral is being taken & the body doesn't need it... Then the alternative meds get a BAD rap & the docs are called quacks...I believe we should be tested for vits & mins to see if we need it before just willy nilly going to the health food store & picking at random...
  • 1


#802122 Fustrated

Posted by mamaw on 09 June 2012 - 03:31 PM

Just a few more thoughts. Are you a dx'd celiac? Have you had routine bloodwork done ? Vit B-12 & Vit D checked? Thyroid screening? all of it TSH, T-3 T-4 Free T3, FreeT4, RT-3. Total T-3, calicum, Glucose, sodium.... Stress test, echo????

Just a few things I suggest you have completed if you haven't already...
  • 1


#802006 Fustrated

Posted by mamaw on 09 June 2012 - 09:32 AM

It all takes time & understanding learning all about being gluten-free for life. in a way it sounds to me like you may be feeling food deprived besides the normal feeling angry & mad because of celiac...again this is a normal feeling --- feeling deprived......
I think after ten years I still at times get this feeling. As you & everyone else I want to go along with the mainstream but I know I will NEVER be able to do that ever again in this life ...Also I know I'm so much better off than regular wheat eaters as far as health goes..I do miss the convience of stopping & running in for a quick bite..

But we all manage to get through it because deep in our minds we know & understand what could happen if we stray ......

With all that being said I suggest you think of all the things you want to eat or miss & we can tell you where to buy it or make it ..that way you will not feel like you are missing out so much.. It's will never be the olden days but it does help to live in a celiac world...

I would think I won the lottery if someone just once cooked for me...or surprised me with safe food...

I always carry gluten-free foods & snacks in my car , purse,pocket... when I know I'm going out to eat I take a bun, breadsticks, english muffin to match where I'm dining so I too can have bread...the other day hubby wanted to have lunch at Wendy's so I know he always gets a wrap so I made my wrap & took it with me& joined him for lunch. We had a coffee, & a frosty together...simple& a nice lunch....together(most important)


I always have a wide variety of gluten-free foods so I don't get to feeling blah about food...


hth
  • 1


#798410 I'm Going Bonkers Over The Diificulties Of Celiac Disease!

Posted by mamaw on 25 May 2012 - 05:45 PM

I totally agree with Irish Heart....not worth the hassle.....I have a friend who works for the IRS, he said don't do it!
  • 1


#794176 Croissant Recipe?

Posted by mamaw on 08 May 2012 - 03:54 PM

Celiac Specialites has a crossiant bun that is to die for....
  • 1


#790764 What About Oats?

Posted by mamaw on 25 April 2012 - 12:38 PM

Just because a product is organic does not mean it is safe for celiac people.. The only oats that are safe are the certified gluten free oats... ie: Laura's gluten-free oats,Bob's Red MIll. Pure gluten-free oats & so on..

Plus if a person is just starting out on the gluten-free lifestyle it is not good to use oats until the intestinal tract has time to heal... Oats are hard to digest esp. when one is trying to heal intestinal damage ..Many cannot do oats even after being gluten-free for a long period of time....just to hard on the system....

I eat oats, been gluten-free for a LONG TIME -- I eat only gluten-free certified & can only eat 1/2 cup maybe twice a week...
Your nutritionist is wrong by telling you because they are organic they are okay for celiac use...this person is not giving out correct info...you are paying them for wrong info...
  • 1


#789562 Beware B Vitamin Toxicity!

Posted by mamaw on 21 April 2012 - 05:45 AM

Vitainims & minerals can be toxic as well as drugs. I don't believe in mega dosing anything..unless it is a life & death situation....then I may try anything!

I had a reaction to B-6 was not taking extra just what was in a multi I was taking..Small amount but my body just didn't need it so the body rebelled...I find taking the individual supplements works best for me & not multi's..This way I can control ...
As they say" everything in moderation" & that means everything...Some people think or feel a little is good but more is better!
  • 1


#788468 Week One

Posted by mamaw on 17 April 2012 - 03:33 PM

As time goes on it does get better & easier...

When parties you know are coming up make foods safe for yourself & when you find a yummy dessert make it for all to enjoy... Works wonders!

Also have a safe bag of goodies in your desk, in your car, & a bar in your ourse at all times... I know many of my friends love to snack on chocolate, I'm not a big choc. fan so I take pretzels or another snack I enjoy...always ends up they eat my pretzels too... But I do't let them stick their gluten hands in the bag!!!!!!
Keep up the good work on your new gluten-free journey...
  • 1


#787056 Need Advice, What To Do?!

Posted by mamaw on 12 April 2012 - 09:20 AM

I agree with the other posters on this one..Plus some people have little or no reaction with CC.(Yes, I understand this man is having problems) he needs to be the one to make changes far as his diet goes....He needs to address his followers...if he desires change...

In the meantime you have already figured out that some things cause you issues.. But you too are still having CC when you eat the fries when they are fried in oil that also fries breaded foods..so there fore some CC issues may not be a problem for you either since you eat the fries...

You are very knew to the gluten-free lifestyle so you also are still learning....
Do you have a support (gluten-free) near you? If so, this may be a good time to have a knowledged member of the gluten-free support group come to your church & do a presentation about celiac& the gluten free lfestyle...Everyone would learn from this social event. & no one's feelings would be crushed......
  • 1


#785768 Aak! Glutened!

Posted by mamaw on 06 April 2012 - 12:58 PM

I also just checked on the nutritional page & all fries are listed as containing wheat....
  • 0


#784852 Graduation

Posted by mamaw on 02 April 2012 - 03:24 PM

Googles, First off, congrats on your BIG Milestone! Yes, these big events in our lives makes us celiac people a bit crazy.. Maybe a bit insecure ...ticked off , for sure.Understandable.. But celiac is our way of life to maintain our health. WIthout health( good health) we may just be dead...

Many times I wish I didn't have to make & take food! But I do attend every party invited to.. If I know what is being served I make us the same thing gluten-free. If I don't I take what I feel like. People do ask about my food being differnet from the mainstream food. I give a brief explanation about being gluten-free.I also share a taste of my food. It usually stops the questions or opens up questions for others who ask about their health issues & could they be helped by being gluten-free...and several times I have run into others who have celiac & are still in the closet about it & when they see me open & honest about it they finally open up.... I have bonded many friendships over celiac...

And as I see it being celiac for many years; this is a blessing a true blessing.I can control my health & destiny by gluten-free food... No Deadly drugs, No chemo, no radiation, No wheelchair, no ventilator....what other disease can be controlled by such a simple way...Diabetes must be controlled by diet & insulin injections..very common illness--- no injections for celiac....we have eyes that see, ears that hear, a body that moves by itself, ...think about this --- what would you rather have???

ANd we are not alone people have allergies to foods they have to avoid ie:dairy, soy, corn.Then we have people who can't be in a room with perfume, peanut allergies that can kill......we all have something we have to deal with...they feel the same as we do.....

Please enjoy your big moments as they never will be there again.....

blessings
  • 1


#781166 5 Month Withdrawel Anyone Been Fatigued This Long?

Posted by mamaw on 16 March 2012 - 04:41 PM

Make sure docs are checking your thyroid & for adrenal fatigue... Adrenal fatigue is nasty...ANd yes, it can take some years & years to recover from gluten for some...

Another would be to check to see if you are getting CC from gluten somewhere or hidden gluten...ie:pet food, scrambled eggs at a restaurant, marinades & such..cooking utensils.....

Check your ferritin, iron levels, B-12, vit D...total lipid panel....


hope you feel better soon....



blessings



mamaw
  • 3


#774594 Anyone Else Lose All The Friends?

Posted by mamaw on 19 February 2012 - 04:52 PM

I totally understand! It's wonderful that your partner is your rock...don't worry about the others it's their loss.....sometimes even family walks away..It is just very hard for some to understand that simple food can make us sick..They just can't understand that because we all need food to survive& they don't see or understand why for hundreds of years people have consumed wheat & now all of a sudden we can't....it just doesn't make sense to them. Then they figure you cannot join them for social occasions because you can't eat...Just not true but it is easy for them to go with this...

I have not been to anyone's home to eat in nine years....except for people who are gluten-free...

Sorry but we all understand.... keep your guy!!!!!

mamaw
  • 1