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mamaw

Member Since 10 Oct 2004
Offline Last Active Yesterday, 06:48 PM
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#798410 I'm Going Bonkers Over The Diificulties Of Celiac Disease!

Posted by on 25 May 2012 - 05:45 PM

I totally agree with Irish Heart....not worth the hassle.....I have a friend who works for the IRS, he said don't do it!
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#794176 Croissant Recipe?

Posted by on 08 May 2012 - 03:54 PM

Celiac Specialites has a crossiant bun that is to die for....
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#790764 What About Oats?

Posted by on 25 April 2012 - 12:38 PM

Just because a product is organic does not mean it is safe for celiac people.. The only oats that are safe are the certified gluten free oats... ie: Laura's gluten-free oats,Bob's Red MIll. Pure gluten-free oats & so on..

Plus if a person is just starting out on the gluten-free lifestyle it is not good to use oats until the intestinal tract has time to heal... Oats are hard to digest esp. when one is trying to heal intestinal damage ..Many cannot do oats even after being gluten-free for a long period of time....just to hard on the system....

I eat oats, been gluten-free for a LONG TIME -- I eat only gluten-free certified & can only eat 1/2 cup maybe twice a week...
Your nutritionist is wrong by telling you because they are organic they are okay for celiac use...this person is not giving out correct info...you are paying them for wrong info...
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#789562 Beware B Vitamin Toxicity!

Posted by on 21 April 2012 - 05:45 AM

Vitainims & minerals can be toxic as well as drugs. I don't believe in mega dosing anything..unless it is a life & death situation....then I may try anything!

I had a reaction to B-6 was not taking extra just what was in a multi I was taking..Small amount but my body just didn't need it so the body rebelled...I find taking the individual supplements works best for me & not multi's..This way I can control ...
As they say" everything in moderation" & that means everything...Some people think or feel a little is good but more is better!
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#788468 Week One

Posted by on 17 April 2012 - 03:33 PM

As time goes on it does get better & easier...

When parties you know are coming up make foods safe for yourself & when you find a yummy dessert make it for all to enjoy... Works wonders!

Also have a safe bag of goodies in your desk, in your car, & a bar in your ourse at all times... I know many of my friends love to snack on chocolate, I'm not a big choc. fan so I take pretzels or another snack I enjoy...always ends up they eat my pretzels too... But I do't let them stick their gluten hands in the bag!!!!!!
Keep up the good work on your new gluten-free journey...
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#787056 Need Advice, What To Do?!

Posted by on 12 April 2012 - 09:20 AM

I agree with the other posters on this one..Plus some people have little or no reaction with CC.(Yes, I understand this man is having problems) he needs to be the one to make changes far as his diet goes....He needs to address his followers...if he desires change...

In the meantime you have already figured out that some things cause you issues.. But you too are still having CC when you eat the fries when they are fried in oil that also fries breaded foods..so there fore some CC issues may not be a problem for you either since you eat the fries...

You are very knew to the gluten-free lifestyle so you also are still learning....
Do you have a support (gluten-free) near you? If so, this may be a good time to have a knowledged member of the gluten-free support group come to your church & do a presentation about celiac& the gluten free lfestyle...Everyone would learn from this social event. & no one's feelings would be crushed......
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#785768 Aak! Glutened!

Posted by on 06 April 2012 - 12:58 PM

I also just checked on the nutritional page & all fries are listed as containing wheat....
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#784852 Graduation

Posted by on 02 April 2012 - 03:24 PM

Googles, First off, congrats on your BIG Milestone! Yes, these big events in our lives makes us celiac people a bit crazy.. Maybe a bit insecure ...ticked off , for sure.Understandable.. But celiac is our way of life to maintain our health. WIthout health( good health) we may just be dead...

Many times I wish I didn't have to make & take food! But I do attend every party invited to.. If I know what is being served I make us the same thing gluten-free. If I don't I take what I feel like. People do ask about my food being differnet from the mainstream food. I give a brief explanation about being gluten-free.I also share a taste of my food. It usually stops the questions or opens up questions for others who ask about their health issues & could they be helped by being gluten-free...and several times I have run into others who have celiac & are still in the closet about it & when they see me open & honest about it they finally open up.... I have bonded many friendships over celiac...

And as I see it being celiac for many years; this is a blessing a true blessing.I can control my health & destiny by gluten-free food... No Deadly drugs, No chemo, no radiation, No wheelchair, no ventilator....what other disease can be controlled by such a simple way...Diabetes must be controlled by diet & insulin injections..very common illness--- no injections for celiac....we have eyes that see, ears that hear, a body that moves by itself, ...think about this --- what would you rather have???

ANd we are not alone people have allergies to foods they have to avoid ie:dairy, soy, corn.Then we have people who can't be in a room with perfume, peanut allergies that can kill......we all have something we have to deal with...they feel the same as we do.....

Please enjoy your big moments as they never will be there again.....

blessings
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#781166 5 Month Withdrawel Anyone Been Fatigued This Long?

Posted by on 16 March 2012 - 04:41 PM

Make sure docs are checking your thyroid & for adrenal fatigue... Adrenal fatigue is nasty...ANd yes, it can take some years & years to recover from gluten for some...

Another would be to check to see if you are getting CC from gluten somewhere or hidden gluten...ie:pet food, scrambled eggs at a restaurant, marinades & such..cooking utensils.....

Check your ferritin, iron levels, B-12, vit D...total lipid panel....


hope you feel better soon....



blessings



mamaw
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#774594 Anyone Else Lose All The Friends?

Posted by on 19 February 2012 - 04:52 PM

I totally understand! It's wonderful that your partner is your rock...don't worry about the others it's their loss.....sometimes even family walks away..It is just very hard for some to understand that simple food can make us sick..They just can't understand that because we all need food to survive& they don't see or understand why for hundreds of years people have consumed wheat & now all of a sudden we can't....it just doesn't make sense to them. Then they figure you cannot join them for social occasions because you can't eat...Just not true but it is easy for them to go with this...

I have not been to anyone's home to eat in nine years....except for people who are gluten-free...

Sorry but we all understand.... keep your guy!!!!!

mamaw
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#762946 Another Piece Of The Puzzle, 30 Years Late. Do I Laugh Or Cry?

Posted by on 07 January 2012 - 10:01 AM

Thanks for sharing your story.ANd years ago that is the way it was... sooooo sad...And to some point it still is today only I don't hear much ever about out growing celiac any longer.. Small step for all those years..
But today thanks to Dr Fasano & Dr Green more are becoming enlightened...and more are getting Dx'd. That I'm thankful for.. People in their 70"s & 80's now know they were not crazy that they do & did have a true illness..
Hope ypour future is much better than your past!
blessings
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#761976 Palpatiations

Posted by on 03 January 2012 - 02:03 PM

Go to a cardio doc & get it checked out. Also maybe a thyroid panel...(bloodwork)...
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#754727 Living With A Non Celiac Family

Posted by on 07 December 2011 - 06:41 PM

I think the gluten-free diet would help your brother & maybe keep the Crohn's in check........does your parents understand celiac disease? If so, I bet your Mom would try cooking gluten-free or why don't you offer to cook gluten-free for everyone... Anything that is made with wheat can be done gluten-free..if does take learning & label reading.......
Great that you have a supported husband, wean him into gluten-free now so he will be ready for when you have your own place...
Years ago when I first went gluten-free , I started myfamily off with Glutino pretzels, they thoguht they were better than the wheat ones... Then I went onto choc.chip cookies, & quick breads... Then onto whole meals prepared gluten-free.. Fired chicken, spaghetti, ... Of course any naked meats, veggies, fish& fish are naturally gluten-free... Put your own seasonings on them .. McCormick's clearly labels...
hth
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#754689 I Am Starting To Hate Food...

Posted by on 07 December 2011 - 05:06 PM

Your emotions are very normal & even expected...
Just to let you know you will get through this & survive. ANd even be healthy...

Now corn starch works well for making gravy.. Real spuds are way better than those artifical ones....& better for you..
Lasagne can be gluten free & no one will ever tell the difference ..We serve it alot & no one ever knows.....garlic bread is so easy. Get a gluten-free baguette& make your own ..We like Against the grain or everybody eats baguettes....
Honestly there is everything gluten-free that is wheat based now days. But you have to do your homework..... read labels, listen & learn
One thing that will never change is planning& pre-planning is a constant but it becomes so simple after you accustom yourself to it you will never think much about it...sot of that old hat!


It is okay to mourn & go through all the stages of grief but don't let it destroy you or the disease wins...you be in the driver's seat & you control........

Now to family ...... sometimes they just never get it......& other family is supported, I got the latter one!!!! But I never stay home from anything because I can't eat the food... I always take a dish that I can share & it is gluten-free (this way I know I can have something safe to eat). I always make a dessert to share again gluten-free.....now days when I go to family gatherings many will not know what I brought & tell me oh are you sure you should eat this or that... It makes me laugh tha that they have no idea about what is gluten or not...love grandma anyway even if she doesn't understand.... I bet her dessert can be gluten-free too!!!!

If you need help please just ask..
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#744284 I Keep "testing" Myself

Posted by on 03 November 2011 - 09:39 AM

It's mind over matter...... focus on what you can have & not what you think you might miss....For me I had to pretend I was in another country & the foods, flours I used were not available so I had to use what was available & learn how to make it taste & look good to eat... I removed all the gluten supplies in my house so it was do or die from starvation....
Some find if they get sick enough times they stop, then others focus on the cancer issues from celiac...

I have a friend who is celiac but never truly followed the gluten-free diet. She looked old beyond her years.. SHe finally after 30 years became very sick & doctors told her her life may very well bepend on her being gluten-free.. She stopped three months ago & she looks 40 years younger... She has her zip back as well...Now she can't believe how she abused her body for so long when she reacted daily eating gluten-free....
Plus now days no one should be craving anything asthere are so many wonderful gluten-free goodies available.
Plus your ideas of what you like in foods may change after you get going strictly on the diet. I craved pizza years ago at first nothing tasted like a greasy Pizza Hut Pizza, now one can find great tasting pizza... I haven't had a pizza in months.... don't even miss it anymore. Pizza used to be a weekly thing at our house!

You control your thoughts ......please don't let celiac disease win or any disease win without fighting for your life....

blessings
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