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korie66

Member Since 30 May 2009
Offline Last Active Apr 29 2010 06:31 PM
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Posts I've Made

In Topic: Body Shop

29 April 2010 - 11:40 AM

Does anyone just go ahead & use body lotion that could possibly have gluten in it? I have a pre-diagnosis bottle of body shop lotion that I love. It has no gluten ingredients but does have fragrance & the company will not state gluten-free or not. I thought I could just use it on arms & legs & wash my hands really good. I don't get symptoms from accidental glutens, just hidden symptoms I wouldn't ever know about. Any advice on this one?


i am 2 1/2 years gluten free. I have found the more picky i have been about cross contamination etc. the more sensitive i have become even to topical products. When i first went gluten free i used any hair, beauty products even if they had wheat protein and saw no problems. After about a year i noticed skin reactions to wheat protein in my shampoo, really bad welts that wouldn't go away for weeks. Then later i cut any products out with tocopherol or vitamin e (which can be made from wheat)and at this point i got on the internet and bought 100% gluten free hair products and found new makeup and noticed i immediately felt better in a day or 2 going totally topical gluten free.
Your skin is an organ, at this point i believe that i react just from gluten or possible gluten contaminated topical products on my skin with no possible ingestion. I actually get rash or hive like symptoms around my scalp if i use hair products that don't list any gluten but are possibly contaminated i also get bumps on my arm and on my chest all in the same spots every time, and yes from a hair product. i also get brain fog, body pain, etc. i just basically feel off and it seems like gluten is slowly seeping into my body, until i wash it out then my body seems to get better after about a day. I have tested this numerous times with exactly the same results which are my normal gluten reactions. I used to use dove since i read it should be ok, not anymore, i totally have gluten reactions to it. So now i use only totally gluten free lotions, makeup, and hair products. And i'm not getting hair in my mouth because my hair is short. And its not during shampooing because i wash may hair about every 4 days and the first time i noticed with dove was after 2 weeks of continued use of dove. I realize i am super sensitive but i would tell people to try going totally topical gluten free (hair, lotion,makeup) for awhile then go back to your normal topical products and see if you notice a difference in how you feel. It was the only way i was able to figure out if i should be more cautious or not.

In Topic: Panic Attacks & Gluten

30 May 2009 - 11:13 PM

WOW...is this ever interesting. I would not call what I get panic attacks, however, I get what we are now calling "episodes", as I get lightheaded, sick to my stomach, dizzy and cannot stand up, I have to go to bed and sleep it off, it is kind of like a stupor. When I wake up, then I am fine or on my way to it, need a little time to recover. My friend and I have thought, after looking back over the years, these were caused by gluten and once I went gluten-free, they disappeared, like for FIVE years now. Recently, I ate regular oatmeal twice and had two "episodes" and all I can think of is that it must have been the oatmeal as I eat totally gluten-free otherwise. I don't even have celiac disease, or I don't think so, I am gluten intolerant/sensitive. I was tested through Dr. Fine at his operation down there in Texas and they said I have the gene. I passed it along to my granddaughter, who is almost 11 and was diagnosed when she was one. She has it bad. She gets violently sick if she gets gluten. Normally I don't, if I have just a touch of it. Thanks to the person that started this thread, it has been very interesting.

Barbara



all regular oatmeal is gluten contaminated, you can get gluten free oatmeal that is not contaminated in organic sections.

In Topic: Panic Attacks & Gluten

30 May 2009 - 11:08 PM

I had anxiety all my life, depression, paranoia, i worried all the time, had phobias, and panic attacks. After I took gluten out of my diet ALL of these mental problems disappeared like magic...It was as if I was an entirely new person with less limits and new found mental stability with NO medications ONLY no wheat!

When i get gluten by accident i get extremely angry, my friends and i call it "wheat anger", or "pws" (not pms) post wheat syndrome.

Here's how mine goes like clockwork... I get contaminated food, my stomach burns within 15-30 min then i get super tired, by the next day i barely can get out of bed i have joint pain, muscle pain, muscle weakness, my entire body hurts i get bad sinusitis headaches, my allergies go nuts my brain doesn't seem to function correctly, i have problems concentrating and remembering words i want to say...
as all the goes away and i start to feel better... about 3 days later i have super out of nowhere anger for no reason, everything and everyone pisses me off and i feel like i want to punch things, i don't want people around me, i feel closed in, i have anxiety and am jumpy and moody . I just try to kinda joke it away with my boyfriend, he knows and understands whats up and i try really really hard not to be personally mean to him or anyone else because i know it's the gluten making me feel this way. Then as fast as it comes it disappears 12-24 hours later out of nowhere and i am completely the opposite super happy, goofy and normal again.

I believe it is a total chemical reaction in my brain from the wheat. It is like this every single time i get glutened like clockwork.

If you still have anxiety you may be getting cross contaminated food. I eat no cereal unless it says gluten free (usually in the organic section) the only large company cereal i know of that s gluten free is general mills rice chex (must say gluten free on the box) and as of june 1st they will have other flavors gluten free but the package must say so... I actually don't eat out often at all because it seemed i was getting contaminated food no matter how careful i was. I research everything i eat as well as resturants, medications and beauty products. I recently was unknowingly being glutened by birth control pills, the active ones had no gluten but the inactive ones did which i didn't take but them beings packaged together contaminated the active pills and i progressively got sicker and sicker and moodier and moodier and finally figured it out... and changed pills.

Wheat is in everything... The best thing to do is only eat things you are sure of for awhile like fruits, vegetables, plain meats you prepare yourself (with no sauces unless it says gluten free) and see how your anxiety changes. You may just need to do more research about what you can and cannot eat. You may also need tested for malabsorption of vitamins and nutrients that can cause depression, anxiety, body pain etc.

good luck!

In Topic: Anger, Quick Temper, Depression

30 May 2009 - 10:39 PM

same problem... my friends and i call it "wheat anger", or "pws" (not pms) post wheat syndrome.

Here's how mine goes like clockwork... I get contaminated food, my stomach burns within 15-30 min then i get super tired, by the next day i barely can get out of bed i have joint pain, muscle pain, muscle weakness, my entire body hurts i get bad sinusitis headaches, my allergies go nuts my brain doesn't seem to function correctly, i have problems concentrating and remembering words i want to say...
as all the goes away and i start to feel better... about 3 days later i have super out of nowhere anger for no reason, everything and everyone pisses me off and i feel like i want to punch things, i don't want people around me, i feel closed in, i have anxiety and am jumpy. I just try to kinda joke it away with my boyfriend, he knows and understands whats up and i try really really hard not to be personally mean to him or anyone else. Then as fast as it comes it disappears 12-24 hours later out of nowhere and i am completely the opposite super happy, goofy and normal again.

I believe it is a total chemical reaction in my brain from the wheat. It is like this every single time i get glutened like clockwork.
I had anxiety all my life, depression, paranoia, i worried all the time, had phobias, and panic attacks. After I took gluten out of my diet ALL of these mental problems disappeared like magic...It was as if I was an entirely new person with less limits and new found mental stability with NO medications ONLY no wheat!