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seeking_wholeness

Member Since 31 Dec 2003
Offline Last Active Feb 13 2005 07:36 AM
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#5755 Gluten And Vertigo

Posted by seeking_wholeness on 30 March 2004 - 03:21 PM

I used to get infrequent vertigo attacks that I wasn't able to link to any trigger, but I haven't had one since I went gluten-free, so I think gluten must have been it. (Quite possibly an empty stomach had a lot to do with it, too; my eating habits used to be abysmal!) For me, it felt like my head was hovering a few inches above my neck and my "inertial dampers" were broken.

The scariest vertigo attack I ever had came when I was nine months pregnant (and NOT gluten-free; this was before I found out about celiac disease), about a day or two before my due date. My husband and I were visiting friends, and we were all sitting around the table playing a card game when I suddenly fell over sideways into my husband's lap! I tried to sit up again, but I couldn't, so I decided to go over and lie down on the couch. Well, the shortest path between the two points was a straight line, but my attempt to walk it took me in a big clockwise circle. I lay down and dozed for a while and felt a bit better when I woke up, but--and this was the scariest part for me--after I woke up, I COULD NOT REMEMBER the past nine months of my pregnancy! It wasn't total amnesia; I wasn't surprised to look down and see my pregnant belly, for instance. But I no longer felt bonded with the baby AT ALL--I felt like in just a couple of days I would be permanently put in charge of some stranger's new baby that I didn't want and hadn't asked for! Yikes! Well, I decided that I would give myself time to recover before I panicked totally, but a couple of days later I still didn't feel attached to the baby. I called a very close friend to ask what on earth I could do about this crazy situation, and she suggested that I draw a picture of it. I thought this might be helpful, especially since I DON'T consider myself an artist, and I found myself drawing a self-portrait in profile. Then I drew the baby inside my belly, making it as realistic as possible. I put a lot of effort into the picture, and I'm glad I did, because I was probably in early labor even as I drew it! It helped a lot, and this story has a happy ending anyway: at 3:57 the next morning, after ONE HOUR and fifteen minutes of noticeable labor, my son arrived by surprise home delivery (right into his father's hands)! Talk about a bonding experience! It was wonderful, and if I had it to do over again, I wouldn't change a thing!

I'm sorry if my ramblings here were a bit irrelevant, but it helps to tell my story. It really was frightening while it was happening!
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#1159 Crest Syndrome Vs. Celiac?

Posted by seeking_wholeness on 15 January 2004 - 08:03 PM

Terri,

It's great that you're here. Your mother must be so proud to have such a concerned and caring daughter!

If I am remembering correctly, CREST syndrome is related to scleroderma, an autoimmune condition that results in abnormal collagen formation and growth. Autoimmune conditions in general are more common in individuals with celiac disease, so it is definitely prudent to have your mother tested. Doctors can be remarkably stubborn when it comes to testing, though, so remember, "the squeaky wheel gets the grease!" DON'T take no for an answer! It would probably be a good idea to research testing through Enterolab as well, as a backup option or an adjunct to conventional testing. It seems to be MORE reliable than blood tests, actually, and it would be SO much easier on your mother's frail body than running the entire gamut of conventional tests! (Enterolab can also test for sensitivites to dairy and yeast, which could also be causing your mother distress.)

Am I understanding correctly that your mother uses her IV port for parenteral nutrition, and not just for fluids? If so, I wonder how hard it would be to find a gluten-free formulation for her to use. Maybe they're all gluten-free; I don't have any idea, but I know it would be vital to find one that is if she receives nutritional support that way.

Your mother's intuition is doing her a valuable service; by all means, honor it! Get some testing done, then ditch gluten for good. I wish both of you the best of luck as you pursue improved health!
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