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Member Since 25 Jun 2009
Offline Last Active Yesterday, 04:36 PM

Topics I've Started

Good News And Bad News And Need Some Help

18 April 2015 - 06:30 AM

The good news: The biopsy of my small intestine and blood work show no sign of celiac. Yay for the gluten free diet working and all my careful eating. Yes I will continue to eat gluten free, but nice to know the hard work is paying off.  


The bad news: They don't know what is causing the inflammation in my colon (which apparently .is in the exact same place it was when I was diagnosed).   They also don't know why I was passing and throwing up blood, except they said that it might be stress. Good luck getting that to go away with my job.


What I really need help for. The doctor wants me to go diary free to check and see  if that helps with my D that I have been having. I'm really sad about having to give it up. I eat a lot of dairy. The help I need is finding replacements for the dairy I eat. I don't even know where to check for dairy in my diet except for obvious places (milk, cheese etc). Any advice from people who are diary and gluten free would be really helpful. I'm not that good of a cook, so I need help. I also use dairy for protein, but don't like beans and don't eat a lot of meat. So help there would be appreciated. 

Do I Say Anything?

26 December 2014 - 04:45 PM

I got food as gifts from my extended relatives. They often give food as gifts. Last year my relative searched a lot for a baking mix that went with a cookbook and was gluten free. But I don't think they really understand what gluten free means. This year everything she sent me food wise contained gluten. I am very thankful for the gifts that they gave me. I don't know if I should mention when I thank them for the gifts that they got me that I will be sharing the food with friends since I can't eat any of it. I don't want them to think I don't appreciate the gift, but I don't want them going and buying me food year after year that I can't eat. Any advice? Thanks. Just another piece of information. Since I live on the other side of the country I don't see these relatives so they don't understand about the whole gluten free thing as they haven't been part of that part of my life as I was diagnosed after I moved. 

Labeling Laws In Us

10 November 2014 - 08:22 PM


I was wondering about labeling laws in the US. I was wondering if products that are processed in the same facilities or on the same lines as products that contain wheat are required to be labeled as such. I was looking at dried fruit the other day and was glad I looked at the ingredient list because even though it didn't have wheat in it, it did say that it was processed on shared lines. Are they required to do this? Or was this just a nice company. I was really surprise as really all I thought it would have had as ingredients was some preservatives and the fruit. I hope this question makes sense. Thanks. 

Recurrent Nightmares

18 October 2014 - 06:55 PM

I've been having recurrent nightmares about not having anything that I can eat. My dream is that I'm in college (I haven't been in undergrad for almost 10 years, but am thinking about going back to grad school). I wasn't diagnosed with celiac in college (though I'm pretty sure I've had it since child hood). The food is all buffet style and in my dream every food item has gluten. I can't convince the cooks that I need gluten free food and get them to prepare it for me. In some of the dreams they say I need paperwork from a doctor saying I need gluten free food. But for some reason I can't get a hold of the paperwork to give them. In other dreams there is no one to talk to. I end up not having anything to eat for days. Yes this wouldn't happen in real life, but my dreams have no logic. I've had similar dreams in the past that I've visited my parents and there hasn't been any gluten free food for me to eat, but nothing this consistently. I've had multiple dreams a week for the past couple weeks. Other dreams i've had is been me realizing I've eaten something with gluten in it after i've eaten it. But again only sometimes. 

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