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Member Since 13 Jul 2009
Offline Last Active Apr 11 2010 02:51 PM

Posts I've Made

In Topic: How Long

05 April 2010 - 03:37 AM

i do follow a gluten free diet but im so sensitive to it i probably break out from breathing it lol.when there are products that im unshure of i call the company but im at the point now where i cant trust their word.

In Topic: Topical Dapsone

02 April 2010 - 04:53 PM

hi i was just wondering what dairy and gluten have in common because sometimes i think im 100 percent gluten free then i flare up,i have a glass of milk in the morning and i also eat nuts for snacks can some food even if gluten free cause a flare up im confused and also i wounder about shampoo and stuff dont u have to ingest it

In Topic: Topical Dapsone

02 April 2010 - 04:50 PM

I've had a really bad case of DH on my scalp for @5 years, and it got much worse the last year or so until I stopped using any dairy products, and anything with corn syrup, xantam gum is just another name for corn syrup, so watch out. also any processed corn, chips ,tortillas, are bad mojo. swear to God, my DH is much much better in the last few weeks since i phased out dairy. i was just putting a little in my tea, but it was enough to keep my DH in full blown mode. I swear it's 50% less itchy or more, and it does'nt look nearly as inflamed, and is'nt oozing like it used to.I'm actually going out in public w/out a hat on for the first time in years! I hope this works for you, too!

In Topic: Dh

24 February 2010 - 12:59 PM

thanks for the info,my problem is that ive been on the diet for 6 months and i still get it prety bad,there are little things that i must be missing but its fustrating because i never know what i ate that did it,the reason i asked if it was long term was because im in the army and right now i cant go to the field because i cant eat the food they provide,i know i drink a lot of coke and coke zero but coke says it is gluten free so i dont know im lost i just want to live a normal life with out having the rash on my face i guess im just really sensitive to gluten,maybe if i take the dapsone for a bit it will help me a bit we will see,thanks

In Topic: Dh

24 February 2010 - 12:51 PM

I had a rash that had all the hallmarks of DH... had it for over 10 months and no topical provided relief. I never sought formal diagnosis (long story) but went gluten free 8/10/09. Within a week or so I was already seeing a difference, in that the topicals that did nothing before, now provided relief.

When I had a couple of pasta meals on a weekend away from home, I experienced an exacerabation of the rash.

Now, 6+ months out on the gluten-free diet, I am almost completely healed, save for the leftover purple spots.... I never went on dapsone. But from what I have read it has some undesirable side effects in the long term.

Yes, your DH may be greatly helped while you are on dapsone, and I am guessing you are currently adhering to a gluten free diet.

So what will happen if you go back to gluten??? Maybe - and others of more experience will correct me here - you will be ok as long as you stay on the dapsone. Maybe.

But do you really want to stay on a drug with known side effects forever? If you don't stay on a gluten free diet, that's what it will take.

Once you stop taking the drug, if you are still eating gluten, I would bet you a hundred bucks your DH will return to haunt you.

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