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Member Since 16 Jul 2009
Offline Last Active Jul 15 2014 01:57 PM

Posts I've Made

In Topic: Irritated

29 December 2009 - 02:26 PM

My wife was just diagnosed with celiac disease and having found this site has been great... I hope to become informed and be able to help her with this as much as possible.

I am just now beginning to comprehend this disease and what's ahead for her and am glad and very hopeful that she can beat this (or at least be able to live with it ... knowing is half the battle). Several posts on here have brought me to tears as there's nothing like reading real life stories of people/family/friends coping with celiac disease to make something that was foreign to me a couple of days ago seem very real. I am very grateful to all of you and hopeful that the collective thoughts and energy as they're being put in writing via this forum will help my wife in one form or another.

I feel the same way... I was diagnosed "severe gluten intolerant" by my ND in July 09 so it's still fairly new to me too. And it's hard... especially the holidays! Since I found out about my intolerance, I've been really good at avoiding all gluten, and cooking and baking all my food from whole foods with lots of veggies and no sugar. I was feeling about 50% percent better overnight just from the diet change... then I was getting sick and tired a lot and found out my vitamin D and B and iron levels were far too low, so now I'm taking a bunch of different suppliments and am feeling GREAT!!

My little rant of late is this: My hubby, who is very supportive in most ways, doesn't think using flour around me makes any difference. I honestly didn't know for sure myself until last week when we decided to bake a bunch of goodies to give to friends as gifts. I was so good and didn't eat any of it or touch my mouth or eyes or anything while I was baking (which is tough since I usually eat as much raw batter as finished product). I made myself a gluten-free blueberry tart and some gluten-free fudge to snack on so I wouldn't be tempted.

Imagine my dismay the next day waking stiff all over and nauseous. I got through most of the day before I started vomiting (I have BAD constipation so when I get "glutened" I get real sick and bloated and then everything in my tummy goes the other way). I spent 12 hours being sick like that and now it's 3 days later and I feel like I'm 95 years old ~ all my joints are popping and hurting, my head is pounding, my face broke out, my tongue swelled up, my throat hurts, I'm super depressed, and am SO TIRED, all my muscles ache and some are cramping... right back to how I was before the diet change.

I'm trying to stay positive and the one good thing that came out of all this is that my husband now takes me seriously and has trashed all flours and bread, even the goodies we made, out of the house. The thing is even though this food NEVER made me so sick before, so I'm a little surprised as well. Nothing like an experience like this to KNOW I will never intentionally eat or even be around flour and other glutens if I can help it.

So good luck to everyone getting through the holidays ~ it can be so hard. Especially when people think you're making it up (like many of my "friends") I'm SO glad to have this forum to read or write on when I need a little support. I am very appreciative... THANK YOU

In Topic: I Never Feel Rested

09 August 2009 - 11:52 AM

wow ~ everyday I'm learning something new here! This is a great forum.

Anyway, I too am TIRED all the time.... I've been told my adrenal function is low (by my acupuncturist) and my ND told me my DHEA/Cortisol levels are unbalanced. But that doesn't really explain much.

I had a very stressful/traumatic lifestyle till about 10 years ago ~ Now I've got my life somewhat together and of course, NOW my health seems to be falling apart.

I'm getting a good mutli-vitamin on Monday... and I'm hoping that taking that will help in my exhaustion, light sensitivity, dizziness etc.

Hopefully someday I'll be able to get on this forum and GIVE good advice instead of always NEEDING it. Thanks to all who are writing ~ it really helps :D

In Topic: So Tired...

08 August 2009 - 11:03 PM

sorry to hear some of you are experiencing the same thing... but I'm glad to hear I'm not the only one. I'm motivated to keep it up in the diet dept. in hopes in a few months I'll be having all sorts of energy! Keep me posted ~ let me know when you all start feeling better ;)

as far as insomnia... I stay up late because I can't fall asleep easily ~ I usually fall asleep between 2 and 4am, but once I fall asleep I'm out until 10 the next day (with a few bathroom breaks). Lately, I've also been taking naps during the day.
If I know I'll get better, I can do this for a while.

In Topic: So Tired...

08 August 2009 - 11:54 AM

Thanks Amyleigh, I just ordered gluten free multi vitamins... should get here Monday. Doc put me on enzymes and probiotics, and something to facilitate iron permeability.
I've been taking EmergenC's when I feel woozy... and I think that helps. I know the vitamins will help.

In Topic: Another Newbie...

08 August 2009 - 09:32 AM

AND...my kids get them. My daughter also has geographical tongue. I had NEVER seen or heard of this until my daughter was diagnosed with it. I read somewhere that it's a symptom of celiac disease.

I had this too when I was a kid ~ no one thought anything of it. I also came down with something called trenchmouth right after I had chickenpox in second grade... it lasted for 3 weeks ~ terrible thing, it was like my mouth was a big open sore.

Sorry, I don't even know if I have celiacs ... I'm like you, everything I read about it is like "OMG... I have that too!! My stool samples came back negative, but was still diagnosed gluten intolerant due to extremely low levels of IgA.

I'm also overweight and didn't think this could be my problem because everyone else who has it (like my sister) can't gain weight very easily at all. It's almost as sad as not being able to lose weight.

Good luck with your diagnosis... and even if it doesn't come out positive, I would recommend following a gluten free diet anyway. It's helped me IMMENSELY so far.

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